Can I be later on injection this evening?

Hi everyone, hope you all are doing ok on this great Sat. afternoon!  My sweetfie just walked into my office and said "Lets go to the Casino in Lake Charles"!  WOOHOO let's go!  But tonight is injection night.  Usally do shot about 7:30 pm.  What do ya'll think if I held off untill about 2-3am, then took 2 tylenol pms and slept late in the morning.  Would it make a difference if I was 7-8 hours late on my injections?  Sure would like to get some fun in before things hit hard.  9th injection tonight.  Some feedback would be great soon,as I am ready to hit the highway (2hours) if this is not a prob.....Sweetie thinks it may be a prob.....not for me physically just worried about late injection!  Oh got flu shot yesterday.
Thanks,

Fish

[jmjm530]

I'm not at all finicky about what time I take my injections or riba, as long as it's the same day.

That said, this is only  9th injection and it's stil. in that critical 12-week window, and you are taking it not a couple of hours late, but 8 hours late.

So maybe I'm being overly-cautious but I'd listen to "Sweetie" in this instance.

If you do decide to go, put a little on "red" for me. :)

-- Jim

[Healed24]

When I asked my doc about taking an injection late he said avoid it if you can (I'm on Pegasys). He said that it's usually okay if you are an hour or two behind but anymore than that you should change the time gradually. I don't know if it was because of the sides or the levels in your system but that is what they advised for me. All said, I agree with Jim your in the early stages so you might want to think about that as well.

Brooke
GOD BLESS

[painintheside]

Can you take it with you and do it there? I personally have no sides right after injection. Just remember to keep it cold. Best wishes!

Sincerely,
Dana

[Fisheress]

Sorry, did not mean to take up a whole post for my silly lil question (YES I DID)! Please feel free to use for other posts.

Thanks jmjm for your response.  Guess I was just trying to talk myself into it and it be ok.  You are right me being in my critical 12 weeks.  Not only that but now that I think about it, that puts me in the general public and will expose me to anything & everything thing that can be caught that is possibly out there (touching slots and cards, etc.), breeding grounds for flu and virsus there in the casions.

Here is something that is really bothering me since yesterday.  My brother from Biloxi has been staying w/me since he lost everything due to katrina (moves into his apt next weekend....yea!) well anyway, he was ill about a week after he got here, spent 4 days in the hospital due to infection in his legs.  They were so huge, feet and all.  I kept telling him he was retaing fluid and he kept arguing w/me he was not!  Anyway the swelling is back with avengence.  Took him to doc yesterday and made sure they had his reports from the hospital.  Turns out he tested postive for hep C, fatty liver and cirrosses.  He is in total denial and said the doc is wrong, so he gowes to the liquor store gets a pint of vodka and drinks it.  I told him tha was the LAST TRIP & DRINK!  With what I am going thru, I am not going to sit back and watch him kill himself!  Doc told him no soda's, alcohol, no juice....nothing, just a liter & a 1/2 of water a day, has him taking a lasix and potassium pill in the mroning and wants him to weigh himself everyday to see how water he is getting rid of.  They did another blood workup on him yesterday to see how well his liver is functioning.  Now from reading on here and doing my own research I tried to explain to brother the reason he was swelling up so.  He takes all kinda pain pills, drinks alcohol therefore his liver is not filtering properly which is causing toxins in his body and retaining fluid.  He says, oh BS!  I asked him then to explain whatelse it could be, docs before could not figure out what was wrong w/him till he came here!

I just want to bang my head againt the wall with him!  Once he gets into his apt, I get him a set up i kno what he is going to do and it just pisses me off!  What do you do w/a 51 year old man, treat them as if they are a child, go over there everyday and search his place to see if he's been drinking?  Do I threaten with "tough love"?  Do I let him be a grown man and let him take responsibility of his own action and "hide & watch"?  Whats a lil sister to do??????????????????

[new-sojourn]

All you can do is give him more info.  Doc Cecil (under 'hepatitisdoctor') has a good long printout called hcv_handout.  13 pages long and he wants us to hand it out.

I printed it out b/c a blues guitarist my partner plays w/has hep c and doesn't think its a 'big deal.'  There is also a printout on  cirrhosis.  Print them out and hand them to your brother.

I know several people who have hep c and choose to ignor it and continue to drink and take drugs-whatever their drug of choice is-and in 4 yrs I've learned that there is nothing you can do about it.

I always make a point of telling them that its slow painful suicide to drink and drug-legal or not-knowing that they have hep c.  And it makes me uncomfortable to be around drinking 'actives' after I fought so hard for my svr.  And I tell them that too.

I also point out that w/the dx of hep c, they are eligible for medical marijuana and some forms of disability and if a vetern, free care and help.

The 'benefits' of hep c usually sticks w/the person and a couple have decided to tx and a few like the benefits and chose not to tx.  Now my friends are in their 20-60's, and the older ones -will, we're all in pretty bad shape regardless of lifestyle.  It's just the course of the disease.  And most, after 30-40yrs are pretty bad off.

[mistybean]

I missed an entire day as I was on vacation and did not want to go.  it had no effect on me.

[Easywriter2222]

I came from a very co-dependant family. Alcholics, Drug Abusers, and the like. I even started to slide down that path early on in my life. One time with an invenious drug in 1975 and boom now I have Hep C. Anyway I am sorry for your brother and I am sorry for you. It sounds like you are going to miss your trip tonight and I hate to hear that. I would reccomend that you go and take some anti bacterial spray and hand cleaner that you use all the time, perhaps wear some white cotton gloves. You probably need a little reward and time off. (9 weeks way to go) But also your brother being there.... you deserve a break. Take your shot with you in a cooler go out to the car and inject. No big deal you can always sleep on the way home. But no drinking. Have a tall glass of water with Ice and it will look like straight vodka. (smile) Behave and go for it. As far as your brother is concerned I don't know what you can do to encourage him it seems that people like that requrie the attention for negative behavior. I think if you don't worry about and don't talk about it he might ask you. (I know it's hard) It seems sometimes when we tell people less they ask us more. But when we offer information they ignore us like we think we are know it alls. If he does start asking questions tell him only a little at a time so he will ask you more. It might work. Good Luck Easywriter

[Easywriter2222]

Also I forgot to say I usually take my injection on saturday night at around 10:00PM but in August I took my daughter to the Visa National Gymnastics Championships in Indianapolis. I did not get home until 1:00 Am Sunday Morning and I took the shot then and had no problems but used it as an excuse to lay in bed all day on Sunday. When all of this is over and done my daughter remembers the time I took her to Indianapolis more than anything else. It was totally worth it. Also since you are trying to get clear of this disease and you have to go through a lot remember so does your sweetie. They deserve a break now and then also. I don't think a few hours is going to make a difference a couple of times during the course of a 24 to 48 week program. Good luck Easy.

[susan400]

What I did, when I had to be flying to N.C. and needed to transport meds and keep them cold, was to wear a fanny pack bag with fake ice in it.  It might look a little funny, but you could always sneak in the stall in the ladies room and inject in there.  After that, you could ditch the fanny pack bag.  I don't know about carrying the syringe in a normal pocket book, I've never tried it. I was always nervous that somehow, I'd accidentally push the plunger and lose all the medication, especially in my purse!!  There's already so much junk in there.  Anyway, this is just an idea and a way to not be so late on your dosage.

Susan

[GoofyDad]

So sorry about your brother. That's hard.

My med team says it's OK to move my injection by a day, either way. I think that's like a one-time adjustment though. But it points out that they don't worry about a viral bloom by injecting late. Could you do the injection there, where you're going? Maybe in the parked car? For me, I have at least 3-4 hours post injection before I feel it - and even then it ain't so bad.

Having said all that, if it were me I'd probably blow it off - but if it's something you'd really like to do, I'd figure out a way I was comfortable with.

[GoofyDad]

Further to Susan's comment ---- cigar tube? Water bottle? Spice bottle?

[GoofyDad]

Sorry.

[mikesimon]

That is a tough situation with your brother. I know people that have hep c and drink and so forth and they cavalierly tell me they don't care if they die. I ask them if they think they're going to just wake up and die. I tell them they'll be in the hospital begging the doctors to do anything to make them feel better and most of the time that's what happens. End stage liver death is not a pretty sight. Maybe you could have him visit a liver floor in a major hospital and just walk down the hall and look in the rooms. I had never been there before my transplant and when I got up after surgery and walked the hall it scared the hell out of me and I had already been transplanted. Just before my surgery my surgeon was telling me he'd find me the perfect liver and that I could wait because I wasn't that sick. I said "Doc I hate to disabuse you of that notion but I don't feel too good lately". He said "you're not that sick" and after walking the liver florr I believed him because some of those people looked very bad and very scary. That might sober him up - pardon the pun. But some people just won't change their lifestyle and if it's a loved one it can be brutal to witness. And after you take your very best shot at getting him on track and it fails you'll maybe have to back away and save yourself the misery. But there is no way out because if you back away you'll feel guilty and if you don't you'll be misserable watching. I feel badly for you. Mike Oh yea, I changed my shot several times by a day at a time. I was on Pegasys which stays in the body longer than does Peg-Intron. I cleared and stayed clear. Good luck,

[go-girl]

Do you suppose he may have Cryoglubulinia or whatever that is called, just had a friend with those symptoms? Thats a tough spot to be in, you sure don't need the stress, its a worry for you. Would it help do you think if he read up on the dangers etc; hope it all ends well for you both.

[go-girl]

Do you suppose he may have Cryoglubulinia or whatever that is called, just had a friend with those symptoms? Thats a tough spot to be in, you sure don't need the stress, its a worry for you. Would it help do you think if he read up on the dangers etc; hope it all ends well for you both.

[strator]

Fisheress-I know very little about the injection question and I'm just doing shot #8 tonight. That question hasn't arisen for me, yet.

As far as your brother's situation-I'm don't know if you have experience with recovery or if he's just in denial or has a real problem-but that's something close to my heart, and maybe to others here. I may jump around a little bit here cause I have a broken thinker from 35 or so years of hardcore alcohol and drug abuse. 20 of those years I drank and drugged 24 hours a day, to the point of waking up every hour and a half through the night to drink. I'm baffled that I'm a grade 2 stage 1-2 because I've probably had hep for over 30 of those years.
I have to say this ..I consider my alcoholism far more deadly to ME then the hep c. The doctors telling me I had hep c and booze would kill me had NO bearing on getting me sober. The way I drink and drug will kill me faster tahn the hep probably would. Years ago I thought I'd just stop drinking if the drs  ever told me I had to. In around '93 by a miracle I sobered up for 7 years(without a program). When I first stopped my doctor at the time told me my liver was very enlarged and if I kept drinking I wouldn't last too long. After 7 yrs dry I figured my liver was better and I could drink like a normal person. But alcoholism is a progressive disease. Within 3 weeks I was once again downing a half pt or more as soon as I woke up and right back to the 24/7 at . I put myself in detox after 2 years of misery- and on the way home I stopped for a bottle. Anyways they notified me from a blood test in detox I may have hep c. About a year later after 2 more detoxes with no success I got a biopsy. Yup - you got hep if you continue to drink your way you  won't last but a couple of years. I stopped at the packy on the way home from the biopsy. That year I went through a 1/2 dozen detoxes, seldom getting more than 30-60 days clean in a row. Now I have over 2 years and a very solid program. The fear of death was not as scary as was the fear of LIVING the way I was living.
I don't know how much your brother drinks but he may not be able to stop on his own. My body needed alchohol. The doctors would get furious with me when I'd tell em to go scr## and try to stop on my own without going to the hospital because they were afraid I'd have a seizure. What he does need to do on his own is ask for help, or at least be open to help.
I have 5 super supportive loving siblings, son and father but none of their pleas(or anger) got me to get help. It was only when the inside pain was great enough. I hear very often from people in recovery who have siblings that need to stop and won't. Time after time they realize that family members can very seldom get family  sober. Too close. Remember just as we come here because we can relate to each other having hep c, he really needs to talk to other alcoholics. This may sound harsh but sometimes it's only when the pain is great enough that we ask for help.
All you can do is pray. My heart goes out to both of you.
God bless you and your brother.
Don

[friole]

Oh, Fish, I am so sorry about your brother.  It would seem that he as lost his purpose.  I know he is grateful for the new start you have provided him in Houston, but that may not be enough.  I hope you find comfort in the words of Strator because, once again, I think he is right on.  He does know you care, but he must want to change himself.

Oddly enough, my brother also has Hep C.  He was the only family member I confided in when I decided to treat.  He is a commercial fisherman on Cape Code and worries that he would not be able to work if he tx'ed.  I have been trying to keep him abreast of my sx in case he decides to treat sooner or later.  Fortunatly he quit drinking years ago.

So what did you do yesterday?  I never got on the computer so missed this post.  Did you go? Your whites and ANC are awfully good, and I don't think you should fear infection. I have heard on TV that those little bottles of hand antibacterial stuff are quite effective and carry one in my purse.  Personally, I think I would have taken the shot before I went, not after I got home.  I like the fanny pack idea however, and might consider that too.

friole

[friole]

Hey, Chev, you old early riser too.  Good Sunday morning to you.  Thanks for the little ray of hope.  See you down under
bean

[cquest]

My brother in law died of cirrhosis of the liver, bloated up and all yellow, drank himself to death...The family blamed his significant other because she supplied the booze (he lost job after job because of his drinking problem so where was he getting the money for the liquor?). So anyway, she ended up dead too, drowned along with 3 kids she was babysitting...how tragic is that? Nasty situation all the way around...

Bottom line, there is nothing you can do directly, he has to figure it out on his own...maybe the whole hurricane thing has him off balance and once he gets settled, you can talk some sense into him....do an intervention or something if you have to...Good luck!
Cin

BTW you all know Veg got kicked off MH right? That's why she hasn't posted at all...too bad..I really liked her...

[cquest]

Yep, I also asked for Veg's reinstatement. We'll see what happens...
Cin

[johnisme]

Count me in, i like the dipster....John

[GoofyDad]

She brought a lot to this place - we all know that.

[mikesimon]

I think she should be allowed back too. Come on, can't we get a little rough around here and make up and forget about it. Mike

[GoofyDad]

Not to alarm anyone, but IMHO, Veggie's trangressions last week were not all that bad, comparitively. So, I think it's possible that it was the flagrant posting of her email addy that put that Martha Stewartish crispy skin on her her well cooked goose flesh.

Speaking of Veggie and Gooses - well maybe it's best I don't go there after all - what with her not able to mount a defense. Hmmm, speaking of mounting, and geese and....... awww just fergetit....

[oneday]

I also struggle with the shot time question.  I have a choice on the 18th to do something really fun which means moving my shot about 12 hours.  It's only my 7th so I'm generating fear about screwing things up.  I am on Peg-intron.  Have to make a decision in a few days to let others know my plans.  I don't know what to do....it's hard to to feel like it's another loss.

[cquest]

I know Veg is reading posts and if it's ok w/her I would go to bat for her and see if we could get her back online. It's a shame really...she is a very sweet lady and I know she needs everyone here as much as we need her back! I am willing to try for her sake as long as it's ok w/ her (watch, they'll kick me off next...ha!)I also know the reason everything got so out of control last weekend is because they don't work weekends here at MH...
Cin

[dammitjanet]

I have sent an email to MH administration (attn Cindy & Phil) expressing support for veggie.  I urge all who would like to see her back on this board to do the same.  cquest, I can email you a copy of my message to MH, if you want.
DJ

[strator]

My Mom always told me Veggie's are good for me, and I dare anyone to tell me my Mom was ever wrong.
Don

[Healed24]

I thought veggie decided to leave MH voluntarily, I didn't know she was kicked off. That's too bad I really liked her and if she is able to come back I hope she does.

Brooke
GOD BLESS

[azgrl]

I would love to see veggie back also...

I can understand the email thing but I don't understand how blatantly mean people should still be allowed to post and continue to attack even though names aren't mentioned everyone knows who the attacks are towards.

Goose....mounting....goof make sure you do your basting before...

deb in az

[sunspot]

My post from last night was removed. I was asking you for a copy of the email and (gasp) posted my public email address.

[2irish]

put in my vote for veggie...!

[cuteus]

I don't think it was the email alone but a combination of things that might have done it. Name calling and personal attacks is against the rules(and I do wonder why some doing it are still able to) and MH has those rules posted and re posted them in a thread not too long ago. My friend Vic was banned for it and has not been allowed back. I was warned, as well as other older members two yrs ago. I guess they could have warned her as well, maybe MH is not as willing to tolerate things after the big Close out last year? On the other hand, some of us know PeeBee as Sam Hall and Balrog.;-} There is always a way...

[NYgirl]

I do not know how to write to the managers - and maybe don't want to overkill anyways but to reiterate

BRING BACK VEGGIE DIP!!!!!!  She is such a loving wonderful woman it's not the same and it's not fair at ALL what happened!

[PasoPerson]

Had surgery on a finger, can't type worth a durn right now, so no long ditty on reasons why.  It's just that v-eggie, as I call her, was very helpful to me time and time again.  I appreciated that and miss her input now.

My considered opinion is that if a brawl results in banning one, they all need banned.  However, that said, I believe a one-time warning to that effect would have gone a long way.

Please, Cindy, let v-eggie come back.  Thank you for considering out input.

God bless -
Carolyn

[GoofyDad]

but that's why we have hair designors...

Them's with the french spelling, they cost more or just smell funny?

[cquest]

I sent MH another request to reinstate Veg...they never responded to my first request...I also pointed to this thread so they can see all the support she has gotten for those that haven't sent them a message....sorry, horse ain't dead yet and this old dog ain't sleepin' either...

Is everybody going to VOTE tomorrow? I hope so! Beat back the republican right wing natzi's! Don't vote? Don't complain!
Cin

[painintheside]

Most people on here have never said anything that I would consider bad enough to be kicked off but  there was one particular that I would've like seen banned cause of his rude comments! But, Veggie, not that person!

Sincerely,
Dana

[Forseegood]

Having been around the block for awhile now, not too much on this board but on some others, I have come to the conclusion that these boards are not publicly run democratic institutions, they are clubs> And like any other club, the administrators can ban or admonish as they see fit, it's pretty much arbitrary. This goes for every hep c board I've ever been to. People who have befriended the adminstrators and have been around for a much longer time will usually be given some lattitude that a newer member will not have. Cliques form, enmities form and fortunately...really good and long lasting friendships. You see this phenomenon happening in any long term grouping of human beings. Or short term for that matter, he he he. For all their faults....I am really grateful for these boards, it's really great to have some other people to talk to and get information from - re this disease. And the administrators are greatly responsible for keeping these boards going, it's prob a lot of work.

That's nice to see Veggie has so many supporters here, to me she's a very sweet woman and if she made a transgression, she probably did it because of having her feelings hurt and nothing more. As was said, I've seen other members here act far more aggressively towards one another...over and over again too. Sometimes it's just a question of style for me...it's not always what is said but how it's presented, sometimes people get a little "snippy"...sorry if I've done this.

Fisheress: have you considered Al-anon? It's a great program and it's a really good place to go when you have a family member that is slowly killing himself with booze or drugs. They'd be very understanding of you being on treatment, and it always feels good to go to some other people who are suffering the same issues you are, like these boards for instance. My younger sister was in the hospital for almost 5 months due to end stage liver disease from drink and drugs. She "died" twice, they kept calling us from England telling us to make funeral arrangements. Her liver shut down, and her kidneys. But somehow she pulled through and they flew her back here and she is still at my mom's house and she's much better now, almost 3 years later. It took that to get her sober, nothing or none of us worked in getting her sober before something like that happened. Others are more lucky, and of course others don't make it. The good thing about programs like al-anon is that they help you understand that none of us can change other people most of the time, we can only change ourselves and a lot of us have plenty of trouble even doing that. Good luck to you and your bro.