Hepatitis C Community
Chat Room
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Chat Room

Does anyone know of a chat room for people with Hepatitis C ? that i can go to and talk with people like myself? Trying to talk with friends and family is not working out for me, it's like they don't even want to talk about it, like if they don't talk about it it will go away. : (
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45 Comments Post a Comment
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149918_tn?1208132344
HEPCNET.ORG, I have never been to it, but I saw they have chat room. :)
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Avatar_m_tn
http://janis7hepc.com/
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87972_tn?1322664839
You might try Janis and Friends chat; here's the link;

http://forums.delphiforums.com/n/main.asp?webtag=friendship7&nav=start&prettyurl=%2Ffriendship7%2Fstart

If that doesn't get you there, Google Janis and Friends, and follow the links. Just remember that they aren't nearly as inteligent as us, and the guy's here are much better looking and of course charming.....

Bill
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107513_tn?1232290064
Unless you are into uneeded drama, I would personally avoid the Delphi scene. It is like a revolving soap opera over there..

Try this...Tell Kathi Snook sent you.
<a href="http://www.hepcoutofbounds.org/">Chat</a>
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131817_tn?1209532911
GEEZ, I just went over to Janis and was shocked. They were calling each other f***** stupid cow etc. It was NOT pleasant to even be there for a second. I wouldn't recommend it, but I didn't stay long.
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Avatar_m_tn
SF: GEEZ, I just went over to Janis and was shocked
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They didn't like your "bend over" and duct tape story ?
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131817_tn?1209532911
Actually, they were going to do a lot more then bend over and use duct tape. They were talking about beating each other up! Not my style ;)
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131817_tn?1209532911
If I didn't think he would show up, I would mention that I think s8888C****4 is over there!
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Avatar_m_tn
SF: They were talking about beating each other up! Not my style ;)
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What was the topic? The usual alcohol/smoking/extending/Vertex/herbs/stuff ? Imagine if we had a chat room here :)

-- Jim
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Avatar_m_tn
Maybe we should send our own S(*&^**** LOL. Half could stay here and half there :)
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131817_tn?1209532911
They didn't seem to have a topic on the chat room. They were going at it! Some said hi to me and all I wanted to do is jump under the bed. I didn't want to get beat up! You know how chicken I am.

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131817_tn?1209532911
I was going to buy that article today. They want $15. I am cheap and can't bend to get my wallet anyway. Does that seem high for an article?
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Avatar_m_tn
sf: I am cheap and can't bend to get my wallet anyway.
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I see. Alteratively you could email the author or go to a medical library. Or, you can keep on taking Neulesta forever :)
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86075_tn?1238118691
uhhhh, I've been going to Janis chat for a few years now (not often) and have had very few problems....if someone gets out of hand, they have moderators over there to blip them off the chat if need be...

Don't want to compare boards, but there can be mean spiritedness and some ganging up at some other boards besides Janis....this is the internet and everyone can come out to play...

It depends on an individual's tastes as to what board you prefer, it's good we have a few to choose from.....and the benefits to all of the boards usually outweigh the bad....

There just aren't a lot hep c boards with live chat...
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132578_tn?1189759437
Hey.... what are we , chopped liver??? (I've always wanted to say that)(: (:
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86075_tn?1238118691
Also, if you go to some of these chats when there aren't any moderators there (eg.late at night) there are these "cyber trolls" that roam around the different chat boards and cause havoc, especially if they can readily read your profiles...it happened to me on a Film chat a few times...it's really awful that they would go to boards with ill people, but they will...
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86075_tn?1238118691
I think she was asking about "live chat" and they don't have that here at this board...
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132578_tn?1189759437
Oh , I didn't know there was such a thing. Isn't that what we do?
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Avatar_n_tn
Chopped Liver!!

That was a good one.
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86075_tn?1238118691
After a fashion...but at a live chat, you can speak to people and carry on conversations with mulitiple people...you go there and there's little area we're you chat and you can read everyone and everyone can read you spontaneously...there's also a way to address a person privately so only they will see your post...

On this board, even though it's not techinically "live" you can get answered pretty darn fast..... but it's not the same thing...check one out if you'd like, why give all of your charm to us exclusively??? just kiddin...but really, check one out if youre so disposed...
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Avatar_m_tn
Forsee: but at a live chat, you can speak to people and carry on conversations with mulitiple people
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But we can do that here, isn't that right :)
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86075_tn?1238118691
Hey you vintage guitar man! it's the same, but different....another one of life's imponderables...
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Avatar_n_tn
How do they beat you up in a chat room??

Virtually? Using ALL CAPS??
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86075_tn?1238118691
I'm glad youre here SFbaygirl, hope youre having a good weekend...
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131817_tn?1209532911
Thanks! My weekend has so far been on the couch. Standing, bending seems to startle that bone pain and headache. Hopefully tomorrow will be better. It's not too warm today anyway, so I am not missing the pool. It is finally blue again.

How's the weather down there? Hope you're having a good one!
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86075_tn?1238118691
yeah, it's nice down here too, not like the 6th level of Dante's Inferno like it was last week, uck!!! I hate it when you walk out the door and a wall of heat knocks you over....

I've been working all afternoon but I'm fixin to quit right now and go with the pooch to the park, I hope your aches and pains go away soon...be well...
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131817_tn?1209532911
Yeah but people in chat rooms and swear, call names and beat you up! Who wants that when you're sick! I'll stick to our little forum here.
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131817_tn?1209532911
The people in that chat room were talking literally about kicking the s*** out of each other! I couldn't believe it! It wasn't just one person calling names and making threats it was everyone! I thought our S)*&^%$%^$ was bad until I went there.OMG this place is cool, calm and collected compared to that place. Everyone has Riba Rage all at the same time! Not lots of caps, just threats and names.
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Avatar_n_tn
http://www.medhelp.org/forums/Hepatitis/messages/41263.html

Here is a very good thread in the archives about coping with family. Alot of good advice.
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Avatar_n_tn
start my pegasis and ribitol mon any suggestions
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Avatar_n_tn
Yes...My suggestion would be to put some extra blankets and a heating pad near your bed.
Get some water "sports bottles" with the squeeze lids, and some chapstick near your bed also.
I would definately take about 800mg of ibuprofen about 1-1/2 hours after injecting.
Eat a light meal and take your Riba before your shot and have something kinda bland around to eat later in case you get hungry- yogert worked for me.

Most people agree that the first shot is the worst, it was for me. So don't let it scare you the others will be way easier.

Welcome to the forum and let us know how it goes!
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86075_tn?1238118691
Hi! No, but I've been in Texas though, really like Austin but who doesn't right? I'm always jealous of you guys who own horses, judging by your name, becha you have one or two...happy to meet you!...funny, what I'd like to have besides horses are goats! Love goats!
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I, too, just read your last comment of Wellbutrin thread.  I was wondering last night if perhaps you had a cold since you are no longer on Riba.  I also believe the end of a stressful situation causes me to relax and that's when I'll get a bacterial infection.  However, seeing that you've added 'dizzy' to the mix, I think you're very wise to discontinue this particular ad.  Jim, even mountains feel the effects of errosion.  Please, consult your doc and don't try the depression road solo!  You know my motto, "Better living through chemistry".  Best wishes to ya, big boy. Lori
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Avatar_m_tn
Thanks for the concern and suggestions.

Right now I have what feels like a bad head and chest cold with a very irritated throat. Very hoarse. My three theories are: (1) Wellbutrin side effects per package insert; (2) Wellbutrin triggered my LPR (Laryngopharyngeal Reflux) causing both throat, head and chest symptons; (3) I simply came down with a bad cold and it was a coincidence that it happened a day or so after starting Wellbutrin. I would like to think #3, however, I haven't had a cold per say for over a year so it may be just too coincidental, or not.

In any event, how I was feeling combined with a very jittery anxiety, dizziness, amphetimine like feeling, etc, made stopping one of those no brainer decisions you never look back at. Unlike with combo tx, I have very little invested in this (3 days) and can always revisit ADs another time with most probably another AD. Wasn't crazy about taking another med anyway after my olympian drug consumption during tx. Did pop a Zegerid (fast acting Nexium) this morning in case LPR reflux is part of the problem.

So, today, I'll play "sick" in bed, nix the gym, and watch Tiger Woods win the Buick Open. In a way, I hope it's a regular cold because during tx I often felt I was coming down with one but my body just wouldn't allow me to probably because of the interferon. If that is the case than a full-blown cold maybe will have some kind of cathartic benefit if that makes any sense which it probably doesn't because the MS Wellbutrin invited Mr. Brian Fog over for breakfast :)

The one good sfx from the Wellbutrin is that it may make me appreciate my normal baseline mental state a little more :)Hope this finds you all well, this fine Sunday.

-- Jim
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Avatar_n_tn
Hey, Forsee - "fixin' to do" is the Texas state verb.  Are you a fellow Texas?  Is this 'chat'?

Jim, how is your throat tonight?
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Avatar_m_tn
Throat still hurts and I'm off the Wellbutrin. Details in the Wellbutrin thread below. Thanks for asking.
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107513_tn?1232290064
Naw, I only used Effexor for the last stretch of my tx.. Anxiety got severe, and I was ordered to take that and the Xanax for situational attacks. Upon completeion of treatment, I stopped all meds immediately. I'm back to strictly herbal supplementation and healthy diet. Wife can't even get me to take a tylenol or cough syrup.
My theory is during that 48 week period, I was pumped with enough drugs to last me a lifetime!!
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86075_tn?1238118691
have you guys tried Lexapro? that's what I've started lately, don't have much experience with AD's but I thought if I'm going to start some kind of treatment I better see which AD works for me...I actually tried Celexa before (lexapro's sister drug) but I stopped after two weeks just cause I wanted to...I know I better adjust to something and some friends tell me Lexapro is good...though I know everyone is different and what might work for you won't for me type of thing...I guess some people take a while to adjust, right now I'm more spaced out then usual and can feel dry mouth, body a bit tense...will try for a few more weeks to see how it goes...
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150807_tn?1194958915
Lmao @ Chopped Liver...i hope i didn't hurt anyones feelings here, i meant no harm, just thought yall might know of a good chat for people with Hepatitis C. I know how bad chat rooms can be, maybe i should stay out of them lol.
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86075_tn?1238118691
you didn't hurt anyones feelings, you just had a legit question asking about live chat rooms, hope you got some leads and opinions, have a great Sunday!
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107513_tn?1232290064
I saw from post here and explantion below that you stopped the Wellbutrin.. My recommendation is Effexor Xr. I took this for several months, and it got rid of anxiety almsot 100%, and also helped me put on that happy face. No real sx's whatsover, other than I noticed increased perspiration..
I first tried Celexa, which was an absolute nightmare..It gave me a headache unlike anything I have ever experienced before. My Dr actually told me that it gave here the exact same reaction when she took it..
But I would honestly look into Effexor Xr, and possibly ask you Doc for a sample pack. It starts working within a week, but takes a month to feel full effects.
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85135_tn?1227293372
My wife and I are going to buy some Tennessee Fainting Goats. We are getting very close to retiring from the Bell system and thought it might be a fun hobby to do and make a bit of butter and egg money.
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96938_tn?1189803458
I'll do a little reasearch but I'm pretty sure you can't get eggs from a goat. But, maybe that's the reason they faint. I would too.
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Avatar_f_tn
I am at end of stage liver disease and waiting for insurance company which is taking months however for the past few days I have all over pain and back pain like never before . Anyone have any ideas on what I can do.
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t:  This is a very old thread.  I suggest you go to the top of the topics, pick the orange box which says 'Ask a Question' am
nd post our auestion there.  You will have a much better chance of it being seen and of getting responses - probably a lot of good advice about insurance, treatment w/o insurance, etc., also.

Good luck. Pat
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