Aa
Checking in after a few years
Haven't been here for a while, so I'm updating my situation.
I used to post as Bthompson4, but couldn't get that password working.
I got a liver transplant January 2001 with hep c 1b genotype. Did 72 weeks of tx from June 2006 to November 2007, peg-intron and riba. Did not clear until week 20 (bad, I know) and relapsed a month after stopping.
Anyway, my liver is doing great even with the failed treatment. I was stage 2 fibrosis (and therefore was approved for treatment) in June 2005, a year before starting treatment. I had two biopsies nine months and fifteen months after starting treatment that both showed minimal scarring.
Here is a before/after of some of my numbers pre-treatment and the labs I did yesterday.
June 2006: AST 60; ALT 93; BIL 2.4; ALBUMIN 4.1; CREATININE 1.0; PLTS 224,000
July 2010: AST 52; ALT 57; BIL 1.8; ALBUMIN 4.3; CREATININE 0.9; TLTS 227,000
Not bad, eh? Looks like I will easily make it to Vertex's release, at least I hope so. I haven't seen my hepatologist at the transplant clinic for two years, as for some reason he doesn't want to see me, even for a biopsy, although he gets my lab results regularly. Last biopsy two years ago showed minimal scarring, but probably not much worse now considering my relatively low enzymes the last two years. I guess the upshot is that even with the "failed" treatment you can get lucky and reverse liver damage and even maintain some good numbers for a good period of time. I'm also ecstatic about my creatinine being .9 after almost ten years of cyclosporine.
Hope everybody is hanging in there.
I used to post as Bthompson4, but couldn't get that password working.
I got a liver transplant January 2001 with hep c 1b genotype. Did 72 weeks of tx from June 2006 to November 2007, peg-intron and riba. Did not clear until week 20 (bad, I know) and relapsed a month after stopping.
Anyway, my liver is doing great even with the failed treatment. I was stage 2 fibrosis (and therefore was approved for treatment) in June 2005, a year before starting treatment. I had two biopsies nine months and fifteen months after starting treatment that both showed minimal scarring.
Here is a before/after of some of my numbers pre-treatment and the labs I did yesterday.
June 2006: AST 60; ALT 93; BIL 2.4; ALBUMIN 4.1; CREATININE 1.0; PLTS 224,000
July 2010: AST 52; ALT 57; BIL 1.8; ALBUMIN 4.3; CREATININE 0.9; TLTS 227,000
Not bad, eh? Looks like I will easily make it to Vertex's release, at least I hope so. I haven't seen my hepatologist at the transplant clinic for two years, as for some reason he doesn't want to see me, even for a biopsy, although he gets my lab results regularly. Last biopsy two years ago showed minimal scarring, but probably not much worse now considering my relatively low enzymes the last two years. I guess the upshot is that even with the "failed" treatment you can get lucky and reverse liver damage and even maintain some good numbers for a good period of time. I'm also ecstatic about my creatinine being .9 after almost ten years of cyclosporine.
Hope everybody is hanging in there.
Wow, this site is really busy these days. Thanks for all the encouragement. Glad to hear that you are still doing so well, Mike. I hope to join you in the post-transplant svr club someday!
It's great to hear that you're doing so well. I have wondered about you recently and now I know all is good with you.
Be well,
Mike
Be well,
Mike
Great to hear a success story! Glad things are working out for ya. Don't be a stranger :-)
I didn't meet you before-I joined this community a year ago after lurking for a while. But I am very happy you are doing so well. With PIs so close on the horizon, I am sure you will clear this evil virus some time in the future.
Hope your liver continues to work well and you enjoy your gift of life to the fullest. Welcome back to the forum.
Hope your liver continues to work well and you enjoy your gift of life to the fullest. Welcome back to the forum.
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