Cirrhrosis/liver cancer

[thirdone31]

I have been diagnosed with hep c for 11 years now and did treatment in 2000 for five months but had to betaken off for kidney damage and blood problems. In 2003 I did Pegasys for 9 months with no resluts and had to be taken off for kidney damage, blood, and other complications, since 2005, I have had alpha-fetoprotein levels at a high rate and almost tripled in 2 years, then hemothomachrosis and thrombocytopenia showing up now, my liver doc said yesterday that I now have chronic cirrhosis (? terminology?) and we are doing blood work tomarrow for the tumor marker because he thinks my gallbladder/ducts are involved along with my liver and he said I am not at liver failure yet but I am very close. I do have other serious health problems and he said I can never do pegasys treatment again because of the difficulties and I did not sustain any positive results. I am angry that I have serious cirrohsis and fatty tissue when I dont drink and have not used any drugs for 11 years. I was told to stop using salt because it was dangerous to my liver. Because of my other health issues, I do not beleive that I am a good candidate for transplant and I also heard that hep c patients get the lower grade livers, because the hep c will return and damage the new one and because we wwere either drug users or alcoholics. I know that if there wer a new treatment that did not involve interferon or ribaviran then I could and would gladly try the new treatment but my doctor says there isnt any thing for me to try or do for now. I am now being seen by an oncologist for the thrombocytopenia and possibly spleen damage with surgery and lukemia or lymphoma. I s anyone going through any of this or all of this?

[choprchk]

There are other cirrhotic people on here that will chime in...I would get a second opinion....the SOC tx drugs are being given to cirrhotic folks on this site along with the new protease inhibitor drug and so far some of those people are having good results!  Like I said, get a second opinion....take care and good luck to you!  

[orphanedhawk]

Salt intake increases the ascites, fluid build up. I kept ascites at bay for almost 3 years by eating an extremely low salt diet-not an easy thing to do. You have to read all labels.

I had a live liver transplant in April and am feeling great however, I didn't have cancer or other problems other than an occluded (blocked) portal vein, which isn't minor.

You might see if your insurance company will pay for live liver transplant. Then you will know exactly whose liver you are receiving.

good luck