I'm so glad you have a hepatologist lined up! Try to get your own copies of all your lab reports and also make sure the hepatologist gets them all. Be sure to give them the family info too. I'm not a doctor, but that family history and your own series of problems sounds to me like it would be a case of great interest to any doctor with the right background to do some sleuthing. I'll keep my fingers crossed that your new hepatologist will be one with a high degree of scientific curiosity and the persistence to work through a puzzle. You might also want to check out the Hepatitis-Autoimmune forum here. It doesn't seem to be as active as this forum but it might be more relevant.
Thank you. I know my sister saw a specialist when she was evaluated to get on the transplant list, but in general, she uses a GP she has known forever. Very hard to get through to her. She hasn't done any lifestyle changes, either. On the other hand, I already have a hepatologist lined up and ready to consult with. We were raised around some serious chemicals that are now known carcinogens, but so far, no one has suggested cancer for me or her. Brother just passed from non-Hodgkins. My positive antibody test threw me for a loop, I wasn't expecting it. Have Type 2 Diabetes, "diagnosed" Fibromyalgia (incredible muscle pains, but I'm not sure personally if it is Fibro) and my blood glucose recently went through the roof, which triggered all the tests.