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Danger to give a hep c patient iron supplements?

Hello

I am new to this forum and have a question: a doctor i saw a month ago who knows i have had hep c for 30 years told me after doing a complete blood work that i have low red blood cell count and told me this means i have anemia and he then prescribed iron supplements to take twice a day.

I saw a new doctor yesterday and he told me this was very dangerous for me to be taking iron supplements that anyone with chronic hep c should never take iron supplements.

Now i am very confused. This new doctor was very concerned and took new blood test this morning and i get the results back tomorrow.

The first doc told me that my blood work was fine except for minor liver enzyme elevation and the low red blood count.

This first doc did not schedule any follow up at all simply sent me on my way a month or so ago.

The new doc was shocked.

Anyone know which doc is right; was it dangerous as the new doc said that i was prescribed iron supplements?

I concerned as i dont know who to believe now.

Please any feedback would be most welcome.

Thanks so much!

fluugy
36 Responses
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Avatar universal
the second doctor that gave you the impression that taking iron supplement tablets is really bad for hep c patients is full of it im not a doctor i have just been diagnosed with hep c myself im awaiting a rna pcr test to see if it is active or dormant but back to the iron supplementry tablets everything you eat has iron in it pork rump steak brussle sprouts hep c sufferers also are aneamic of suffer from tiredness or fatigue so if anything iron should be good for this
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163305 tn?1333668571
I'd like to suggest we take the chit chat over to the social side of the forum.
This thread is going off topic.
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Avatar universal
Yes, true Dee. We will pray for this person.
    And yes, my hair is still thick, I think because it is grey!  When I was younger, I had this light brown hair that was stick straight, but I went grey prematurely, and the grey hair shaft is much thicker, and has a nice wave on the end.
   Hey, of course, Pride Cometh Before the Fall, so I will probably now began losing clumps of it, and if this happens, I will post the photo, for all of us to see, and then enter the MedHelp Hall of Shame, lol
  
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317787 tn?1473358451
Hi I came back to say that there are many people who have been cured.  You must be looking at old information
I apologize for showing my irritation earlier.  I could not believe that someone could come on here, ask for help, prayers, information and then start calling people here names.  It was cruel.  I will pray for you.  I realize now that you must need help.  No one comes on to a site and writes all of this stuff if they are well and happy.  I hope that you get the treatment you need and then hope you get treated for the Hep C.
Good luck to you
Dee
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317787 tn?1473358451
Hey girl!  You still have luxuriant hair?!  No fair, LOL
You guys are the best
I love all of you!
Dee
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766573 tn?1365166466

Many vegans are notorious at being anemic. Recall too Bo that these are all pre-treatment labs. This mean genetics, lifestyle and eating habits could be a larger contributor than HCV.

Anyway, I will send you a PM & maybe we can think of something together.
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2061362 tn?1353279518
Absolutely wonderful BoGal.

Like you, I started feling better two weeks into treatment, joint pain gone, chronic sinus and eye issues gone, spider veins and vericose veins going away, no more horrible bruising, bowel habits are normal, and yes my skin does look better. Like you said, this is not bragging this is a testament to the treatment we are on. I'll also admit I don't have it too bad with sides, but as crappy as I can feel at times, I feel so much better than I did before tx. UND at week 4 (pretty sure before that) and week 12; It has been so worth it.
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179856 tn?1333547362
I believe there is a lovely alternative medicine thread o medhelp.

When you find that we are cured, and you still are not, we will welcome you back with open arms. If it were that easy my friend, do you think we'd have done this? If I had cancer I wouldnt take vitamin c.

I hope you get it before it's too late  get you biopsy
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Avatar universal
Oh whoops, correction: my yellow rubber bracelt says "Hep C can be cured!"
     I got it from my Home Support Group, where a bunch of people attendm, and some have been cured for years and years now, woot
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Avatar universal
  Well, all I can say is that 16 weeks into Pegasys, (weekly shot) Ribavirin, 1200 a day, and Victrelis, 12 capsules a day, and I am feeling pretty darn good : )
   Before treatment, my liver enzymes AST/ALT, were at 400/500.
Four weeks into Treatment, and they were in the normal range, for the first time in 20 years!!  
   My digestion is better than it has been, in years, all my constipation is gone, and I feel like a Spring Chicken! I havent had even one loose bowel, since I've been on Tx.
   I have to also admit, my hair also, is quite luxuriant. I stopped dying it, and guess what, my natural color (silver at the temples, mixed with copper brown, looks so much better than those awful box colors I had been dyingi it (like mahogany, and spaghetti red)  I am also seeing NO hair coming outinthe shower, after washing my hair (once weekly) I used to see tons of hair in there, before Tx, after I dyed it.
   I dont know if it is the extra water I'm drinking, or the fact that my Viral Load is Undectable, and has been, for three months, but the skin on my face also looks MUCH younnger, than it used to!
   I am not bragging about these things, to make my other friends on here feel bad, because I know so many on here do suffer from Hair loss symptoms, and worse,. The reason I am testifying to my own health, during my Tx (and I am about to turn 50 yrs old) is to give others out here HOPE!
     YES...there IS a CURE for Hep C!!!  And many of us, dont suffer from too many bad side effects. We just dont post about it, because we want to be supportive of those who are suffering.
   Today I am wearing my yellow rubber bracelet that says in big proud red letters, "There is a cure for Hep C"
Helpful - 0
163305 tn?1333668571
When I was diagnosed, like you I was so scared by the idea of taking these horrible drugs, that I didn't do anything for months and months.
To make a long story short, I finally did the tx, relapsed and had a liver transplant.

Hep C can kill you. It almost killed me. No Chinese medicine will cure you of hep C. Believe me. I was diagnosed in Asia.
They didn't pretend there was a better treatment.

Finally post transplant I did interferon treatment and I am now hep C free.

What you really need is help for your anger and anxiety.
Calm your mind, so you can think clearly.
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2061362 tn?1353279518
Well said!
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1747881 tn?1546175878
"Please any feedback would be most welcome.
Thanks so much!
fluugy"

"Please pray for me.
Thank you.
fluugy"

"Feedback please.
fluugy i scared"

"I feel so sorry for all of you that you are all so brainwashed"

No need to feel sorry for anyone here as we are all adults and know what we are up against.

Your welcome for all the help that these nice people took the time to try and answer your desperate questions.

Have a great day

Just a few facts for you from the uninformed Americans

There is no natural cure for Hepatitis C, and if anyone claims they have one, they are lying. It is as simple as that

Countries with high rates of people chronically infected with Hepatitis C are Egypt (22%), Pakistan (4.8%) and China (3.2%).

http://www.hepatitis-central.com/hepatitis-c/what-is-hepatitis-c.html
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317787 tn?1473358451
Who are you?  You came on here acting as if you needed help and then started actin ugly (as my grandmother called it)  People here were sincerely trying to help you.
You are wrong, yes, treatment was terrible however 3 months post I feel better than I have in many years
I could list all the people on this forum who have treated and are now fine however I have a feeling that is not what you want.  
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Avatar universal
We all know here that all the combos and interferons...all the "latest and greatest" do nothing but make you all sick as dogs and make your doctors RICH!
---------------------------------------------------------

Please show the data for members to go over that Inteferon /Ribaviran and either Victrelis or Incivek has 0% success rates ("do nothing" ) for HCV  therapy.
Thanks ...
Will
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Avatar universal
Why are you here then???
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Avatar universal
What makes no sense about my last post? Makes sense to me. NO...I have not had a biopsy...not planning on getting one either.

My latest plan is to run like hell from any and all traditional western doctors and find myself a competent Chinese medicine and acupuncture doc.

We all know here that all the combos and interferons...all the "latest and greatest" do nothing but make you all sick as dogs and make your doctors RICH!

You all should be happy to hear that I am once again feeling fine. Seems every single time i go seek out treatment i go through a few days of feeling i am about to die as this is what all these docs say to me...how "dangerous" my "condition" is and i already have "one foot in the grave." I just got a fax from the doc i saw TWO YEARS ago and the blood work was virtually identical to the blood results three days ago...virtually the same virus count...actually the one three days ago was LOWER than the one of two years ago but virtually all the same. I have been feeling fine for the past two years up till i went to see this doc a month ago when i felt fatigued then he told me i was "fine" and after that i felt just "fine" then a week or a little less than that ago i went to this second doc feeling fatigued and he took another blood test that conflicted completely with doc number one and told me how "serious" my condition was and how "gravely ill" I was. So all of a sudden i start feeling worse than i ever have.

Starting last night and i awoke this morning feeling good again. Like i have been feeling for all my life.

Every single time i have sought treatment i have for some reason immediately began to feel like death. The last hep specialist commanded me to drink only ONE liter of water or any liguid a day and he was one of the most horrible human beings i have EVER encountered. He told me if i drank more than one liter of water or liguid a day i was asking for total disaster. He was a pig.

That was about five years ago.

Please all of you continue to "enjoy" your lives as CUSTOMERS to your greedy docs who couldnot care less about you just wish to keep you alive for as long as they can squeeze every last cent out of your insurance companies and cause you to wish you were dead and your poor loved ones all the suffering they endure.

As for me...thank god i have never compromised my liver with all that interferon/combo poison that makes for a total lack of "quality of life."

Wake up and smell the coffee...everyone dies...even Jesus died....i used to go to this google hep c newsgroup for way too long hearing stories every single day of "oh i am starting a new combo tomorrow" "oh i feel so sick...hope THIS time it works"...got sooooooooooooooooooooo depressing i had to leave that ng and ditto with this one.

I feel so sorry for all of you that you are all so brainwashed into believing that Eastern medicine is somehow nothing but a bunch of "witch doctors." I mean AmeriKa has got you to believe all their propaganda...politically and medically and in all other areas of your lives and it is not only making fools of you it is killing you. Do you really think the Chinese are a bunch of STUPID people...do you really believe THAT? My god they had a glorious civilization when we in the west were still living in caves and today they OWN THE USA!!!! And they not all dropping like flies due to bad medicine.

You may choose to believe that the AMA and their greedy incompetent docs and their killer drugs is THE BEST in the world but you would be mistaken. I could tell you true stories when the M.D.s had given up on those with one i recall from a colleague i rented office space with and the docs had given up on him end stage of cirrohsis and hep c they told him to get his affairs in order he would be dead in two months. Fat out of shape etc this man for whatever reason made an appt with my colleague who happens to be a chinese medicine and accupuncturist doc and it is TEN YEARS later and this man who should have long since been dead is very much alive and not only alive but plays a strenuous game of tennis each and every day. This is not a lie and this is not the only true story this competent healer has told me.
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Avatar universal
  This whole last post you made, makes no sense. Have you even had a biopsy?
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Avatar universal
Hi everyone...

Bad news the new doc got my blood work back and everything is terrible. That other doc i saw a month ago must have read someone else's blood work!

I have VERY LOW iron which this new doc said is rare for someone with hep c. This is what it said" Feritin should be between 13-150 mine is EIGHT!!!

My HCV virus load is 2340000 which he said was dangerous.hemoglobin red blood whould be between 13.5-17.5 and mine is 9.1. liver functions not too high 0-36 is normal mine is 42 for both. i meant commas with the periods but my comma key doesnt work .

He wrote me an rx for some hypnothyroid med to take once in morning and one for more iron once each morning. He told me i would continue to feel weak for about 3 weeks but then i will feel better.

I asked him for 2 ten mg tabls of ritalin not for recreation as i dont take anything for recreation but i know this will make me feel less weak and i am a therapist by profession via phone and skype and mp3 downloads and i cannot discuss my challenges with my clients and told that to doc and of course he agreed i cannot i must be strong for them bu i have no one here and dont speak german.

This doc told me that in TWO YEARS there is supposed to be finally some effective drug for hep c and i found this very amusing and we both agreed it is highly unlikely i shall be around in two years anyway.

This new doc refferred me to a professor of hep c and told me to phone for appt and i asked this new doc how long he thought before i could get in to see this professor and he said that it would probably be 3 or 4 weeks.

I also asked this new doc what the point after 30 years of hep c i mean what could the professor of hep c do for me and he said well he could discover the type of hep c i have and i said to this new doc well...it is too late for interferon and a liver transplant is out so why bother. So far as i have been able to discover there are no other treatments. And he agreed.

I told him i all alone and broke down in his office and he could have given me the ritalin as i have done reseach and i have seen although unconventional that it works to ease this impossible fatigue and i told him i have no support at all none at all and cannot really even take care of myself but this latest creep refused knowing i in hell. I HATE ALL DOCTORS NOW.

I toild that doc i was now thinking of killing myself even though i have never in my life been suicidal and i not suicidal but i mean i do not wish to die all alone in this apartment getting weaker and weaker everyday and suffering all alone with no one to even care at all for me.

I dont know why he didnt hospitalize me under the circumstances.

I thinking of flying to London as my late husband's doctor is there my husband was a psychiatrist and died of brain cancer in london. There is a really cool hospital there called Princess Grace which is more like a five star hotel than a hospital and it is small and only hospital i ever liked. Maybe this doc will refer me to a hep c specialist and hospitalize me there .

I dont know if they even do hospitalize anyone in my condition as this nice new doc did not suggest i be hospitalized as i guess because there really is no treatment for me.

I dont want to be in some regular hospital especially here in Germany where i dont speak German but at least in London they speak English and this hospital is not like a hosptial i so loney and dont want to get weaker and weaker all alone dying here all alone unable to care for myself.

Also i do have hypnothyroidism too VERY low red blood count and as i said that F thing is extremely low but before i take this i ask you people if i should take it even though this doc said that it is rare that hep c patients have lack of iron i do have low iron.

Feedback please.

fluugy i scared
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Avatar universal
I have hemochromatosis and it has delayed my starting of tx for several months.  It's imparative that you keep these numbers in line for the rest of your life as it will continue to "add" damage to your liver if you don't.  I have enclosed a link that hopefully will explain it to you in more of a laymens terms.  I hope you are feeling better soon!  Jules

www.irondisorders.org/hemochromatosis
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Avatar universal
In the past few days since i saw the new doc i have been feeling like death. I dont know what is wrong with me...maybe it is psychological. I am all alone in Munich and dont speak German and i scared. I suppoed to go to the new doc this afternoon but i so tired and feel i am dying never felt this bad before. I been involuntarily moaning and this is not like me. Cant stand it anymore. I must walk to the s bahn which is 7 minute walk and then go one stop then take another train then walk ten minutes to his office and then up 3 flights of stairs. I must take a shower as i look a total mess. I so weak. I Feel i belong in hosptial. I scared of hospitals. Never been in one all my family died in them. I dont have anyone here to support me. I try to "get a grip" as i usually very strong woman but not now. Like i said i feel like death. Cant explain except so weak and never felt like this before. Dont know if this is depression or fear that all those iron supplements have done me in. I am a vegan for long time .I always have done daily long walks. But right now nothing matters. I have had very loose stool this morning and have had to use the toilet for bowel movements four times this morning. Not dark stool but just medium color. Just very loose and i think sticky too. I dont know how i can get to the doctor. I really do not think i can travel by public transportation but it is the end of the month and if i take a taxi i will be flat broke with maybe just five euros till the first of the month. I scared to call ambulance as not into drama. What should i do? Anyone got any suggestions. That first bad doc a month ago did an ultra sound of my liver and spleen and told me no signs of cirrohsis and no enlarged liver and my spleen looked good and no ascites in my abdomen although i dont think he is right because my stomach for at least three years has been very very large like i very pregnant and i know i have fluid retention in my arms and hands and ankles and feet but this bad first doc who gave me the iron tabs after just discovering i had low red blood count and that is all he did knowing i have hep c for 30 years and i think i had "wishful thinking" knowing that iron for hep c patients is a no no so i guess i was just so "happy" that here i am a hep c patient and he had done the ultra sound and told me the hep c was not bothering me and when he said i needed iron that made me feel that i really was ok. Of course this was me to blame as i am not a stupid person and i know pretty much everything about hep c so far as at least the basics i.e. iron no good but i so much wanted to believe him. I have lived in fanasyland all my life. This may have killled me i dont know. Seems when i had no treatment i always felt ok. Everytime i do get some treatment i start feeling horrible...this always happens dont know why.

I know what i will do i will take a taxi as i want to see this doc and somehow i will call someone of my friends in the US and beg them for enough money to last till i am paid on the first because just to take a shower and wash my hair is going to be a major miracle i cannot walk as far as i must to get to this doctor.

Please pray for me.

Thank you.
fluugy
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Avatar universal
I have NO idea why I wrote in the past tense about iron.  Yikes.  I AM an iron storer.  I have to watch my Ferritin levels ~ have even had to ASK a dr. treating me for HepC to PLEASE check it out... because it wasn't on the order.  I was petrified of the first phlebotomy, but it was no big deal.  And it worked - twice.
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Avatar universal
I didn't mean to scare anyone.  I just know what my own situation was - and I was an "iron storer"/high Ferritin levels, so for me, iron was a big NO.  But this is definitely something that has to be looked at carefully by your doctor.  I never quite understood the Vit. C thing - as in, it tends to bind iron - but I haven't taken a Vit. C supplement for 10 years because of it.  If I get a cold I get Vit. C via juice.

orphanedhawk - I will check for those mulitV's with no iron.  Right now I take a whole shelf full of supplements just to avoid iron in a multi.  Duh.
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163305 tn?1333668571
The doctor who diagnosed my hep C told me to take a mult-vitamin w/o iron because of my cirrhosis.

Then I asked my hepatologist about iron, while living in the country where the iron levels of the water was quite high. He said I might want to have the water tested because too much iron can cause cirrhosis.
He's a top notch doctor, up on all the research.

cebean:
I've been taking a multivitamin w/o iron for years now.
They aren't that hard to find. I get mine in the health food store or online.

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