Doc says it is the hep c causing pain

[gibsongal]

hi everyone..i have 1a. have not had a biopsy in a long time  10 years? but the last one was good. better than the doc expected. so.. will be getting another soon, and a neuro work up.

I think i have Lyme and they do not.

here are my symptoms that started a year ago very slowly. first one ankle, then the next, then a wrist then another till i was engulfed in muscle and joint and stabbing bone pain..i live in new england and am a country girl and have many tic bites but never got "sick" or a rash..
that said..this all can't be from hepc can it? thanks!

leg pain,cramps
extreme stabbing pain
foot cramps          
conjunctivitis
knee pain, locked
tinetus
anxiety
runny nose/stuffy/phlem
temp never normal. 1x in months.
temp 94.5, 95.6  97.0 97.2 96.8  change in minutes during attack
migraines / with facial numbness and impaired speech , numb arm
legs gave out  without feeling faint            
back, neck, shoulder pain deep in joint
jaw pain
foot /ankle pain                                                                               arm pain/elbow pain  / locked elbows upon waking      
wrist pain                                
sleep paralysis                
pain attacks  /  electric feeling effervescence? pac men?  whole body                                                                        
memory
can't get warm.
hands and feet cold
knees hot
blurry vision went to eye dr. tried various contact lenses
extreme stabbing pain  shin arms wrists ankles
tic bite
mood swings (when on atripla fall  2010/ spring 2011
writing dyslectic
saying the wrong word
some depression over money now health
wonderful family /was happy energetic person

recent more of olfactory hallucinations burning smells..gas
floaters,seeing things.
heart? pain left side chest under breast pumps hard on little exertion
more tinitus louder

[Dee1956]

Hi I am not a doctor just a fellow sufferer, or was, some of the things could be life, others could be a result of your liver damage from Hep C

ID gave you some great advice

The first thing is to get blood work and a liver biopsy.  While you may have had a good result 10 years ago the damage is not linear. i.e. it took me 30 years to get cirrhosis therefore I have another 30, it does not work that way.

I found out I had HCV in Dec 07, then found out I was in early cirrhosis.  The only symptom I had was fatigue and red spots on my legs, a sign my body was fighting the HCV.  I did have some severe tendon problems and pain however that is up for debate as to relation to HCV

It is really important to have the biopsy so you can figure out where to go from here.
I finished the new tx with Incivek,Peg,Riba 6 months ago, I am now cured.  The new meds are working, if  your liver is not damaged you could afford to wait for the newer drugs  which should be FDA approved in 3 to 5 years.  If you are like me you would need to treat as soon as you can.

There are a lot of variables.
I wish you the best and please let us know how you are doing
This is a very caring supportive forum I call my support group.  Since there is only one support group in my area I joined here in 2007 and it is a great place for information, support, laughs etc.
Best wishes

[gibsongal]

thanks. i go monday to the ID doc and will have new labs done that day.

i can't imagine that all my symptoms are HCV related.

thus looking into CFIDS Lyme and getting a neuro work up.

i did a round of ABX for Lyme and i felt better for 2 weeks! so i think i have something going on that is not viral! HCV

Doc does not think it is Lyme as my tests, 2x   negative  but hear the tests are not reliable and some people have like 6 tests before a positive lyme. (if you have had it a long time and that is when severe symptoms start)

i have hiv and doing great with that undetectable..the biopsy was so long ago and am waiting for the new drugs! with 1a i don't want to try what is available especially feeling like i do right now!

thanks again

[Idyllic]

What were the results of your last biopsy? How rapidly HCV progresses varies from person to person.

You have a wide and varied list of symptoms, many of which could be the aging process :)  :) Many are not symptoms of Hepatitis C. The best thing to do sooner rather than later is have a physical and a full set of labs. You don't have to wait for your next biopsy to do all this.

Be sure to have a TSH:
cold hands & feet & can't get warm could be thyroid

Mood swings, dyslexia and the other items on your list could be addressed by a neuropsychiatric assessment. Or maybe you could see a regular behavioural health professional and see if you are depressed or anxious.

Either way the first thing is getting a recent set of labs and the physical. You could start troubleshooting some of these things now. Why wait until you feel worse?

There are others who have considerable insight and advice so be sure to check back later.

I hope you are OK and continue to post and let us know how you are doing ♫