Hi All, I know I have been a little distant lately. Going on week 19 on my TX post INC, with 6 weeks to go and I feel like a big slug. I have an agenda everyweek for things I would like to do. Nothing strenuous but something that will give me a feeling of accomplishment around the house. But by gosh, All I want to do is sleep ! I sleep all night, I get up take my meds with breakfast and then go back to sleep until 5pm , eat watch a little tv and then back to bed. I am so tired.
Is anyone else feeling this way. I dont think I am depressed, taking my AD's , I just dont have any mojo !
great way to put it. I am the same way on weekends I dont even get motivated to get into the shower until after 3, hang around watch tv. Try not to sleep because I havent been sleeping at night very well, usually up at least once or twice. But feel very antisocial. I dont want to go anywhere or do anything unless it involves my grandkids they are my ONLY movitator these days. I did shot 15 last night on soc. Feel physically ok just zero motivation............. stinks!! I dont think I'm depressed. Who knows at this point. My skin is a mess, hair is getting thin, white as a sheet but killing this crap, so I guess life is good! Could always be worse right?
I'm in week 16 and feeling much as you describe. When I'm awake, I feel much better than I did on INC, but, just want to sleep a lot more now. Of course, the every 8 hour food fest did get in the way of a good rest!
Maybe in your mind 'slug' fits, but personally, I don't think so. With the dry skin that goes along with treatment, you couldn't possibly be a slug.
Slugs eat all night long, love to drink beer, and delight in leaving evidence of their social shenanigans in trails of wet gooey unwashable slime that shimmer in the sunshine after they disappear. Nope, you ain't no slug. Maybe more like a sloth if you haven't the energy to shave :).
I'm on week 28 of triple with victrellis. I go to work, wonder around, forget why I'm there, come home, and sleep for 10 hours. I can't handle a lot of people or having demands placed on me. 8 more weeks for me. I have never spent more than a weekend in jail but it feels like I'm doing time. I don't think this is depression more of survival reaction to the drugs...physically and psychologically shutting down circuits to conserve energy..I'm going with it and riding it out...been undetectable since wk 4.
I think some of it is that the drugs have saturated my system...I have not reduced any dosages. I get 3 nuepregon and at least 1 procrit a week. Can't wait till it is over. Good luck, hang in there.
The look in my husband's eyes when I cannot get out of bed makes me get up and get to work and pretend I am ok when all I really want is to sleep for months. I know getting up is best for me,and its easier post incivek, but sleeping for a few weeks still sounds good. I don't believe I am depressed either. Maybe in a few weeks you will become a butterfly and realize you were a caterpillar not a slug. Like a insect version of the ugly duckling. :-). You are almost there.
I think you have a lot of company in this crowd. Monday will be inj. 17 for me. I have been off Incivek 4 weeks. That did help, getting off Incivek. I do feel better but don't know how long that will last, lol. I can do a few more things before I tire and have to rest, but not very much. My energy level is zilch and my motivatin is no better. I do not even want to go into all the stuff I have let go. A few other things I force myself to do, mainly hygiene things like clipping nails. Showers I usually do take every day because my hair gets unbelievable greasy and dirty on these meds and I need to wash it every day. Besides, the warm water is the best thing for the external flaming butt, that and Desitin with 40% zinc. I do try to do at least one or two work type things every day, the dishes, laundry, clean litter boxes, sweep, cook, or get groceries. One little project I have been working on, ever so slowly, is sorting photos. Many are going into the trash. It is easier and less overwhelming to just get rid of them (not all of them but probably more than if I was not on these meds). I am dreading having to collect all of my papers for tax filing. The mere thought is daunting. I have been faithfully watching educational DVDs while sitting in the recliner in the evening and that has been a good thing. I will probably need to watch them again they are college level courses and since my brain is only at 30% power, my concentration level is about the same as a two year old, and my memory is lacking. However, I am 1/3 of the way through this treatment and with any luck I will attain SVR. That is my carrot and I will stick this out as will you and most of the others on the forum. Hopefully, in a few months, we will all reach SVR and have our lives back.
Anyway, that is a long way of saying I think the meds make most of us feel rather crappy and tired.
your so close now...i know the sleeping gets to be a drag....i was sleeping much of the time...you'll feel a lot better soon!!!! 4 weeks after tx things really got better...now at 2 months post i feel really good...good luck....billy
I took shot 20 Friday and do understand being tired, not having motivation.
I try to tell myself I am doing the best that I can and being as I am now is not me. That is the only thing keeping me going right now.
Fellow slug here
this week will be shot 18 and I am finding myself sleeping..MORE. besides for all night, this week end I was on the couch all day yesterday in and out of sleep. Today I am making myself get up and get out of the house no matter what. Don't feel depressed, just tired. The metalic taste in mouth is getting worse, went away for about a month now its back even worse!!! I hate it. I tried all the drops, gums, Biotene which helps the most. Sounds like we are all in the same boat.
I am right there with you.. I am also on week 19 and seem to be feeling worse instead of better. I try to get up and at least sit in a chair, but find myself nodding off. and I'm also finding that my hair is thinning big time. I'm trying real hard to keep a positive attitude... but, this just plain *****..
It did me good to read all these posts. I thought it might be just me lacking motivation or becoming a procrastinator. I have only 4 more days of Incivek and looking forward to getting rid of the extra fat. I liked the idea of To Do List. Maybe crossing off things I get done will give me some motivation. I agree with the others, exercise at least walking does help. At least the procrit has increase the HGB to 9.5. which gave be more energy. We will get through this.
I woke up this morning and put my work clothes on, sat at the kitchen table drinking coffee and reading the newspaper thinking, "Only 5 more days until the weekend again." I am walking around in a fog. All I do is take pills and eat. I forget which pills go when. I had an antibiotic added this week for a tooth infection and something oral for the itching. So it is really gettting confusing. Someone put me on a prayer list at some church and I am wondering if it is because I look so bad (I think they ought to have permission to do this). I certainly have not told anyone I am treating!
My choice would be to come home from work and have no committements every evening and to never leave the house from Friday to Sunday. Do you know I had a root canal last Wednesday and I was so happy because that got me out of committements on Tuesday night (stayed home for the pain) and Wednesday night because I was so sore from the root canal. How nuts is that to be happy for the root canal?)
I am on week 21 of Victrelis and was wondering if everyone else was feeling like me, so thanks for this venting thread.
Hi All, Thanks for the comments. I thought it was just me. Just took shot 19 yesterday (only have to go to 24, Thank God ! ) And today was another day of sleeping. Yes, them nice warm pj's are always so welcoming and look forward to my bath every night and my pharmacy of pills I have to take. Then it is off to bed praying that I will sleep. Morning comes at 8am, take more pills and then eat some toast and off to bed again until 12 pm. If it is a good day then I will get up and wonder around the house trying to make myself look busy so my family dont think I am half nuts. I think I put alot of the happy face on for them most of the time, so they are not freaking. Seems like the only time I get any attention is when I am at the throne puking my guts out or sometime I just make a mad dash outside so they dont hear me. Honestly, though I really have intentions of doing alot of things, and then once I try I am winded, or cant keep my thoughts together. I usually get one good day a week which is the morning and afternoon of shot day, then I might have some mojo and actual thought process.
My Skin is dry, my hair is thinning and I am starting to loose a little weight.
Just so greatful I have all you to vent to as well. And please if you ever need to leave a note or email please do so. I dont think Ive missed any SX, except having to go on blood emergency aids.
And thanks pjhep80 for letting me know about the litter box. I just told my husband and he is thrilled !
Prayers and Hugs, Carrie
I think we have all entered that phase, now that we have kinda figured how to tolerate the sxs with of course more pills, ointment and creams. The over the counter things add up. I am on week 21 triple tx with vic, at this stage I could never leave the house if I didn't have to. We have entered the Heppy brain fog, spaced out stage. I'm glad I'm not the only one that goes to get something and when I get there have know clue why! Positive thoughts and prayers to all!
I am getting worse with shot 19 tomorrow I thought SE would decrease but no. The mornings are the worse. I now do not get out of pj,s until 11 and only because I want to look half way decent or I have to go to work. I am scaring my hubby with how bad I look. He did not want me to go out in the snow because he said I am the same color as snow. LOL. I never know when or if I took a pill. Is the pill for itching helping? Let me know. I can.t take the itching anymore! I have lost more than half my hair, darn. We can do this. I was never going to come on the forum and complain but I had to do it. I always try to remember, "I complained because I had no shoes then I saw someone with no feet"
Just watching the tread go on, and now am on week 21, getting ready to cross over to 22 in a few days. Slug-go is my name. I get up, throw up (sorry for the visual) eat , take riba, take other meds and lay back down and sleep. If all goes well I am back up by 2pm looking for something to eat because I am so weak and nauseated. Not eating really heavy food, just lite stuff like jello, yogurt, bagles, chicken noodle soup and oyster crackers, lots of juice and water and anything that is wet if I can keep it down. Found out that I have gall stones, and though I was getting ready to give birth but surgery is going to probably happen next week. Hopefully that will deplete my back and stomach pain that has had me semi bed ridden for 4 weeks now. On the good part, I have dug out my lap top and started to watch DVD's right at my bed side, so thats a plus to keep my mind functioning and not on my problems. Got to Keep the Faith , till the end :)
Dear Livin, thank you for posting, as you can see you are not alone and it appears that most of us are pretty far into tx..Thank the rest of you for responding. I have been feeling so weak and tired and just can't get motivated to do much of anything. I am about to take shot 22...or is it 23?... and I do not want to do it. I naively thought that as time went on I would get better at this, no such luck. As we do not get a "time out" while on tx life goes on and accidents happen, people get sick, etc. I used to get a small break the morning of shot day and would feel better which would motivate me to keep on. Now it just seems to all run together and there is no good day. Is it possible that at some point your body is so saturated that there is no bounce back time? I want to force myself to for a walk however my anemia just knocks me out.
I know it is only 3 more weeks however I saw this vent it makes me feel so much better to know I am not alone. To all of you who have worked through this triple therapy, my hats off to you. Bless you all
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