Aa
Doing 1 year of tx
Hi so early in the week I posted "treatment so far" I was informed I must continue for another 9 months .. I just spoke with my doctor unfortunately everyone was right.. I want to know what the statics are if the virus coming back if I was und at month 3.. And if its really worth this extra time. I'm afraid treatment is just going to get worse. Like I've said it made me very depressed at all costs I will try to avoid thAt feeling.. I have lost about 15 pounds (bullcrap wish it was more) I'm hoping to loose more. I used to excersize but I always have headaches and am all around just blah. Also does anyone has suggestions for boosting my mood??
Hey guys it's been a while just an update you know my doctor was a ******* moron and I really should have gotten another option shortly after posting this I received a phone call from one of the nurses saying I completed my 6 months of tx etc (she called 7mo into tx) anyway a week later they called me back and said she made a mistake I was going to be on it for another year.
What I did was stop tx. I stopped everything. I ignored my doctor. And I really didn't handle the situation as maturely as I should have. Anyway I have not gotten blood work I'm too scared but I really fell off after tx. I'm feeling better now and hope to get enough courage to get some blood work. I hope the hep c is gone. Wishful thinking :)
What I did was stop tx. I stopped everything. I ignored my doctor. And I really didn't handle the situation as maturely as I should have. Anyway I have not gotten blood work I'm too scared but I really fell off after tx. I'm feeling better now and hope to get enough courage to get some blood work. I hope the hep c is gone. Wishful thinking :)
"Also does anyone has suggestions for boosting my mood??"
Yes stay as active as possible, nothing worse then just sitting around, I found if I got up and got moving not only did I feel better but it took my mind off of treatment....... Hang in there, you can do this.
I am another 48 week winner.
Yes stay as active as possible, nothing worse then just sitting around, I found if I got up and got moving not only did I feel better but it took my mind off of treatment....... Hang in there, you can do this.
I am another 48 week winner.
Without knowing the other information (the questions I asked in the post above), one study of treatment naive people who did not attain RVR showed an SVR rate of 64%. Another study showed slightly lower SVR rates for thee same people. This includes all people in that study who did not attain an RVR and the numbers were not broken down into subgroups according to additional factors.
"The response-guided therapy strategy with telaprevir is based on the results of 2 phase III trials in treatment-naive patients. Results from the ADVANCE trial strongly suggested that 24 weeks of therapy is sufficient for patients with eRVR.[29] In the T12PR48 arm of this trial, patients with an eRVR received 12 weeks of triple therapy followed by 12 weeks of pegIFN/RBV, whereas patients without an eRVR received 12 weeks of triple therapy followed by 36 weeks of pegIFN/RBV. Among patients who achieved an eRVR and received 24 total weeks of therapy, the SVR rate was 89%, confirming that this strategy results in a very high SVR rate (Figure 11). .....Patients who did not achieve eRVR all continued pegIFN/RBV through Week 48, and 64% attained SVR (Figure 12). "
http://www.clinicaloptions.com/Hepatitis/Treatment%20Updates/HCV%20New%20Agents/Module/Practical_Guide/Pages/Page%204.aspx
So, depending on other factors such as fibrosis stage, your chances are about 64%. You are very young and probably have minimal, if any, fibrosis. This would go in your favor.
64% may not seem high, but it is actually very good. You have a very good chance of attaining SVR (cure). If you stick with the treatment for another 36 weeks and take your doses as prescribed, you have a good chance for SVR. Just try to hang in there. It is not easy. But try to create some way of hanging in there. I sort of divided treatment up into quarters and months and weeks and finally days. It helps to think positive. You are over 1/4 done. When you get to 24 weeks you will be half finished and then you are on the home stretch. Then soon you will 3/4 finished and so on.
Several of us were not UND at 4 weeks. I was DET at 4 weeks and I did 48 weeks. Others did too. There are several of us who did 48 weeks and we attained SVR. So try to hang in there. Keep your eye on the prize. You can do it and it is worth it.
"The response-guided therapy strategy with telaprevir is based on the results of 2 phase III trials in treatment-naive patients. Results from the ADVANCE trial strongly suggested that 24 weeks of therapy is sufficient for patients with eRVR.[29] In the T12PR48 arm of this trial, patients with an eRVR received 12 weeks of triple therapy followed by 12 weeks of pegIFN/RBV, whereas patients without an eRVR received 12 weeks of triple therapy followed by 36 weeks of pegIFN/RBV. Among patients who achieved an eRVR and received 24 total weeks of therapy, the SVR rate was 89%, confirming that this strategy results in a very high SVR rate (Figure 11). .....Patients who did not achieve eRVR all continued pegIFN/RBV through Week 48, and 64% attained SVR (Figure 12). "
http://www.clinicaloptions.com/Hepatitis/Treatment%20Updates/HCV%20New%20Agents/Module/Practical_Guide/Pages/Page%204.aspx
So, depending on other factors such as fibrosis stage, your chances are about 64%. You are very young and probably have minimal, if any, fibrosis. This would go in your favor.
64% may not seem high, but it is actually very good. You have a very good chance of attaining SVR (cure). If you stick with the treatment for another 36 weeks and take your doses as prescribed, you have a good chance for SVR. Just try to hang in there. It is not easy. But try to create some way of hanging in there. I sort of divided treatment up into quarters and months and weeks and finally days. It helps to think positive. You are over 1/4 done. When you get to 24 weeks you will be half finished and then you are on the home stretch. Then soon you will 3/4 finished and so on.
Several of us were not UND at 4 weeks. I was DET at 4 weeks and I did 48 weeks. Others did too. There are several of us who did 48 weeks and we attained SVR. So try to hang in there. Keep your eye on the prize. You can do it and it is worth it.
I was shocked, bummed and disappointed when I discovered I treat for 48 weeks rather than the 24. In my case it was supposed to 48 weeks from the outset so I was more mad at myself for not paying attention. I remember you saying you vomited a lot on Incivek and I admit I am a little concerned since the nausea was horrible on Incivek but it is a common known side effect. It is a new drug for some doctors and because of that we as patients have to learn about treatment and what is supposed to happen and when since some doctors do not quite have the experience under their belt. I am not saying this is the case with you but it helps to know that since you are in this for the long haul.
I felt better mentally when I finally got off the Incivek. On the other hand my Hgb dropped like a rock right after the Incivek and we did not catch it right away since I was no longer having weekly labs.
It helps to keep an eye on your Hgb and your TSH. Have you been collecting copies of your labs? If not I would start asking.
Meanwhile hang in there. My workouts totally flopped during treatment but I tried to stay active. It is not easy but I think it is important since it is really easy to give in to how crappy these drugs can make us feel. Wow sorry to sound so preachy! ♫
I felt better mentally when I finally got off the Incivek. On the other hand my Hgb dropped like a rock right after the Incivek and we did not catch it right away since I was no longer having weekly labs.
It helps to keep an eye on your Hgb and your TSH. Have you been collecting copies of your labs? If not I would start asking.
Meanwhile hang in there. My workouts totally flopped during treatment but I tried to stay active. It is not easy but I think it is important since it is really easy to give in to how crappy these drugs can make us feel. Wow sorry to sound so preachy! ♫
Just to recap:
You are 23
You are Genotype 1
Do you know if you are 1a or 1b
Do you know if you are CC, CT, or TT
What is your liver fibrosis? Probably little or no fibrosis?
You were DET at weeks 4 and 8
You were UND at week 12?
You stopped Incivek early ... How early? At what week?
If you can give us more information it will help us respond better.
You are 23
You are Genotype 1
Do you know if you are 1a or 1b
Do you know if you are CC, CT, or TT
What is your liver fibrosis? Probably little or no fibrosis?
You were DET at weeks 4 and 8
You were UND at week 12?
You stopped Incivek early ... How early? At what week?
If you can give us more information it will help us respond better.
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