Yes... anything that you can give would be much appreciated.
Regards,
Phil
Med Help
yikes! TY Layla, I HAD forgotten, but I had the fog to blame it on. can't use that one anymore.
I found this article at the CDC site, a recent review. I know we are weary of Big Brother but last year we were throwing around the development of some national database on hep c, that would include stats of individuals that were never on trials or studies, it looks as if CDC might be considering it to some point.
I wish it would include tx and post tx data also, but it might be a start, do you know what your state does as far as recording hep c infections? I thought all states had to collect this data!
http://www.cdc.gov/ncidod/diseases/hepatitis/c/plan/surveillance.htm
Since there are so many new folks coming on board, I thought I'd post a few of the information sources that many of us here have found invaluable. Unfortunately there are far too many gastroenterologists who are just not up to speed on HCV and its treatment. This means that it's up to us to stay on top of it so we can lobby effectively for ourselves.
First, check out the Hepatitis C section at natap.org as new info is posted there on a daily basis. Here's an up to the minute review of HCV RNA qualitative and quantitative testing: <a href=http://www.natap.org><b>Sensitive HCV RNA Test: use at week 24</b></a> . Other good sites are:
http://www.hepcchallenge.org [see "Hep C Choices"]
http://www.janis7hepc.com/
http://www.hcvadvocate.org
http://www.hivandhepatitis.org
http://www.clinicalcareoptions.com/
http://www.projectsinknowledge.com
WebMD
Please feel free to add to this list. And to everyone just starting treatment for the first or second or third time, please know that my heart goes with you.