'Dr.' Teresa Hanbey

Curiousity killed the cat. Are you a doctor Teresa?

[Revenire]

<a href="http://www.womens-health.org/0javascripts/dropinnav.htm?/policy/Coalition/whrcmembers.htm">Dr. Teresa Hanbey
Hepatitis C Outreach Project</a>

This site has thanbey listed as a doctor. If she is boy do I owe her a big apology. Why not come right out and say it? Don't be bashful about your credentials.

[thanbey]

I have never once claimed an MD. I am a Medical Social Worker (MSW) by training.

Thanks for asking.

thanbey

[thanbey]

I had no idea they had listed me as a doctor. Of course they might mean PhD (that's piled higher and deeper. lol)

I will have them correct this mistake and I thank you for bringing it to my attention.

best,

thanbey

[DownThisRoad]

A few months before I started treatment (almost a year ago)and all through my treatment time, I've  gone on healthboards.com in order to gain information. Healthboards is a great forum with vast amounts of information regarding this disease;  hepatitis C and treatment of hepatitis C .

I have followed your (Teresa Hanby's) comments and advice on that board as well as through your hepatitis c outreach project/www.hcop.org.

Thanks Teresa for your dedication to continually research and publish information with this disease. I've learned so much from you and your comments.

Thank you  ~dtr.

[thanbey]

Thank you so much.

thanbey

[jg2001]

reverie -  I bet that was a shock!  LOL!  I know it's not funny, but I actually got a chuckle out of this!  Looks like a good time to "start over"...even keel!

Teresa - I apologize for any statement I made to you that could be deemed a personal attack.  Though there was no excuse, I attribute my remarks to my own insecurity and fear of this disease.  It will not happen again.

Jamie

[Revenire]

It is sort of like 'Dr.' Kissinger to me.

Her credentials are not a question I care to 'debate' with her or anyone else. She isn't a doctor and the website had her listed as one.

This was started when Teresa questioned Dr. Douglas Dieterich's public statement on a particular subject, which she later denied doing. She acted as if she was THE authority on the subject when, in fact, she is not a MD and couldn't provide any solid evidence to contradict Dieterich when asked. She discouraged one person to the point where they almost stopped treatment. Read back on the board ...

I don't care for that sort of support. My opinion only.

I applaud the good that is done but have to take issue with self-appointed experts that list their good deeds like Tarzan beating his chest. I ran for US Congress several times and State Assembly. Big deal.

My goal certainly isn't to cause this board to deteriorate into something it shouldn't ever be so the subject is closed for me.

[cuteus]

I too am suspicious a little.  Volunteer, travel at own expense, etc.   Maybe there are some seminars/videos/books that are making up for the cost? Maybe Sybil.  

But since most of us can still think thru the fog, we can differentiate and be cautious at best.

[Revenire]

Ha, yes he is isn't he? LOL That was my point!

To put a finer point on it and then I am leaving this alone before I dig myself a deeper hole: Al Capone used to donate bread to the poor in Chicago. You know?

Sorry to have dominated a thread with this stuff everyone.

[jg2001]

Please, please don't think that I am "taking sides".  I actually read EVERYTHING that you post and definatley see your point and I admire your spunk.  You are one of the people that I hold in high regard.  I just don't like see you attacked or anybody else for that matter.  Peace.

Jamie

[jg2001]

No, I wasn't talking about thanbey.  Down a couple threads there was some name calling and I found it to be unnecessary.  I must admit, Rev and Thanbey do argue their points well.  And PeeBee, I love your posts, you always bring a smile to my face...just like Ring use to do!  I wanted to thank you for that.

Jamie

[cuteus]

I miss ring too.  but at least we got PB, Indy and Vicky still.

[jg2001]

Peebee and Indy both are too much! Those boys had me laughing out loud at work yesterday!  Vicki is a sweetheart.  She's actually making some CDs for me and Ringer is off having fun with her daughter.  Honey is another one ya got to keep your eye on...be wary of the "quiet" ones!  LOL!  She's a kick in the pants!  

[thanbey]

No apology necessary.

(The good news and the bad news is, I can't keep track of nicknames to save my life, so if you had said anything, I wouldn't know it anyway.....)

Have a great weekend.

thanbey

[thanbey]

Wow!

So much wisdom. I love the idea of wildflowers and I have done that in a part of my garden for years. Just keep reseeding when they are dying off.

I noted in one post the word Sybil (cybil) and it went right over my head. Okay.......I am not sure if you are asking me a question or not, but I didn't know about this board until only a few days before I made the first post. That would be about a week or so now.

I don't post anywhere as anything but thanbey...good, bad, or indifferent.

This might be a good time for amnesty for everyone. It takes courage to say you're sorry and to ask for forgiveness.

But don't be so hard on yourself. You have done what you can to make peace. The rest will be up to them.

I hope this helps,

thanbey

[honey1616]

ROFL...yep...now I do know why you have been fretting over getting all those flowers out there haha  The scenario of a beer can being thrown out in a yard where a lady is busy planting and on top of it is on....RIBA...Could call for some rage to say the least!  lol  Just kidding with you and good post!

[jg2001]

There you two are!  Vicki, there you go with the picture words again!  Nicely put!  Honey, how was the chicken and did you make it to Amazon?

[thanbey]

I haven't figured out how to start a discussion. Anyone who does know,would you post this, please?

I received this email today. I am not involved in any way and pass it along for your information only.

"To Whom It May Concern:  

I am a research study assistant at Memorial Sloan-Kettering Cancer
Center.  We are currently conducting a study on an Asian herbal medicine
known as Sho-Saiko-To (SST).  Sho-Saiko-To has been used for many years
in Asia to treat liver disease and there is some emerging scientific
evidence that SST can be of benefit for hepatitis patients.  The purpose
of this study is to evaluate whether Sho-Saiko-To may improve liver
inflammation and injury caused by chronic hepatitis C.  If SST reduces
inflammation and fibrosis, this may alter the natural history of disease
and prevent the development of cirrhosis and thus HCC (hepatocellular
carcinoma).

Like your organization, we are looking to help people affected by
Hepatitis C.  At this time, we are recruiting patients for this trial
and would like to know if you would be willing to pass on information
about this study to the patients you come in contact with.  We would
also love to post information about this study on your web site.  For an
example of web site information you can see our posting at
www.mskcc.org.  Click on "clinical trials" and on the drop down menu for
"all trials," select Hepatitis C.

If you have any question or need additional information, please email or
call me at 212-639-8610.  

Thank you,
Cheryl Co
Research Study Assistant
Memorial Sloan-Kettering Cancer Center"

[new-sojourn]

Well, that's the kind of news we can use.  As you probably surmised, I'm into the herbs.  The 1st book I bought was 'The hep C Help Book.'  I didn't own a 'puter or even knew how to turn one on.  I bought a 'puter to make the time on tx go by, b/then I cl'd a 24yr transfused infection in 18 DAYS.

I've always felt the intensive 'prep' work I did before I tx'ed contributed to the fast results.  I'm now searching out long time maintanence to continue healing and rebuilding while handling the sx's of ESLD.

I'm glad the Western medical profession is looking in this direction.  Life after hep c will always demand special considerations for the damaged liver.

[Indiana]

Apparently "some" folks did not get the point I was tryin to make a few threads ago. We all need ALL the information from ALL sides to make this decision to start tx. Those who would be put off by a single persons comments here probably should not start tx anyways. To do tx requires a "firm" commitment to finish it once you start. What drives me crazy are those who start this with the idea of..."Well. I'll just TRY it and see how it goes". That is the worst thing I can think of. We all need ALL the information we can get on this BEFORE we start....good, bad, right, wrong, or whatever. It's up to US to sort it all out for ourselves.
Apparently my last story didn't get the point accross.....GREAT. That gives me the opportunity to tell another one.................(I hope you all are ready for THIS).....

THE GOOD NAPKINS!!!!!

My mother taught me to read when I was four years old (her first mistake). One day, I was in the bathroom and noticed one of the cabinet doors was ajar. I read the box in the cabinet. I then asked my mother why she was keeping 'napkins' in the bathroom. Didn't they belong in the kitchen? Not wanting to burden me with unnecessary facts, she told me that those were for
"special occasions" (her second mistake).
Now fast forward a few months....It's Thanksgiving Day, and my folks are leaving to pick up my uncle and his wife for dinner... Mom had assignments for all of us while they were gone. Mine was to set the table. When they returned, my uncle came in first and immediately burst into laughter. Next came his wife who gasped, then began giggling. Next came my father, who roared with laughter. Then came Mom, who almost died of embarrassment when she saw each place setting on the table with a "special occasion" napkin at each plate, with the fork carefully arranged on top. I had even tucked the little tail in so they didn't hang off the edge!!
My mother asked me why I used these and, of course, my response sent the other adults into further fits of laughter. "But, Mom, you SAID they were for special occasions!!!"


So...you can see that without ALL of the information(good or bad) it's hard to make the right decisions.
Lighten Up!!!!!!!!!

[Ambush]

:)  You're two for two ~ keep tryin' ~ :)

[ral]

Right on Indiana

We have all kinds of choices in this world and in our time on this planet. I have made some I could have sworn were right and I have failed. I have made some that I have sworn were right and were right. I have made some looking back were wrong but turned out O.K. I made some that were wrong that almost ruined my life including drug abuse. There are no gaurantees in life.

I think looking at all sides of the coin is a good thing.


The Constitution has has a line in there I love "All truths shall become self evident"

The other line was either Churchill or Roosevlet "The only thing we have to fear is fear itself".


Guys don't be afraid we will all see the truth someday.

We have to make our own decions and stick by them right or wrong we made them.


GOD BLESS
Bob L

[Tosser]

Jeff...you crazy thing...I think I have seen that story somewhere else, but you weren't suppose to tell it in mixed company...unless this is open season :), then I have a bunch more saved up!

Take care buddy!

Tosser  ;o)

PS...almost got my PC straightened out now.

[berlynn]

Thank you for putting this all into perspective. I fell badly for all the negative you have experienced here. I think your analogy reflected an insight that made many things more clear for me....I have been one to stay away from any battles that have rocked this board...I come here to give and get support......they made me feel very uncomfortable. However, another advantage to this board is the knowledge that is shared....before I came here...I did not want to research....I wanted to JUST DO IT and GET THROUGH IT.......I was lonely for empathy and contact with someone who understood my feelings and fears. Although I was already almost halfway through tx when I first found this board...I think I can now be considered ...if not an oldie...an inbetweenie...LOL.I have learned alot from this board...although that was not my original intent....Iremmember when some of the "Good Ole Boys" debated and shared info all the time. It is what got me "hooked"  forum (that and willings analogy of this forum, when he welcomed me aboard)

Anyway,,(sorry, I always ramble) None of us are experts...we all have ideas..and opinions...that is OK....that is what I try to teach my students...That we are all INDIVIDUAL...and that is what makes us ALL special.

Look what happened to Tom....he was doing so good...I am a 1A as well and that news was really hard to take (you are in my prayers Tom)

We have to face it.....TX may not work for all of us...especially us 1's...we need to know what else is out there..just in case.
I do believe that Tx is the best option....but...we alll need to know about options too.....keep our eyes and our MINDS open.
Who can't learn from a good debate...... but it is important to debate intelligently and respectfully ...I hate to see the name calling and and the fowl language. We all come here for various reasons.....mostly for support...and I would hate to see someone not get the support thy so desperately need......The support that I have recieved from this forum has been the glue that has held me together for 40/48. love to all. berlynn

[jg2001]

I have been trying to refrain from reading your posts while at work...BUT IT'S NOT WORKING!  You're gonna get me in trouble!  I just tried to supress a laugh and snorted..which was worse than laughing out loud!  Thank GOD its Friday!

Jamie

[GwithHepC]

Thanbey:

Thank you very much for posting this clinical trial.  I am in New York City and will be calling that number to find out more information.  

I also want to add that I have been reading your posts on other message boards for quite sometime and appreciate the perspective you bring.  I have had a difficult time deciding whether to treat or not, but have decided it makes more sense for me at this time to wait.  I am a 37-year-old female infected at birth through an exchange transfusion.  My liver biopsy shows Stage and Grade 1-2.  To me it is was a matter of weighing the likelyhood of progressing rapidly vs. the risks and side effects of the current treatment. Given my particular situation (and that of my 13-year-old daughter was was infected by me through preganancy/child birth) I feel it is logical to wait - although I must say I have struggled tremendously with the <I><B>emotional</i><b> desire to start treatment and get rid of this virus.

Everyone:

I have been fascinated at the strong feelings Thanbey's posts bring out in people.  When I was more convinced than not I would begin treatment, I was very eager to read anything that supported this decision and anything that presented a negative view of treatment caused me considerable agitation and uneasiness.  Now that I have decided to wait, the opposite is sometimes true.  I have read many times on this site the opinions of people who are currently treating that to not treat is paramount to not fighting for your life; when I read these statements it bothers me because I feel the implication is that I don't care enough about my life because I choose to wait to treat. (I know that is not what is being said, but it does feel that way sometimes.) But I don't think one must kill this virus AT ALL COST.  Our livers are extremely important, but everything must be taken into consideration.  If Thanbey's post's cause anyone to be uneasy, I would ask yourself if perhaps you have not answered all the questions should have asked yourself BEFORE beginning treatment.  I think under the best of circumstances no one will get any definitive answers concerning this disease (at least not yet), but anyone who opts to treat should at least have made a very serious attempt.  If after THOROUGHLY researching the potential side effects, long term damage, etc. you do decide to treat, than God bless you and DON'T SECOND GUESS YOURSELF otherwise you will drive yourself crazy.  At that point have faith in your decision, that is was made wisely, and is the best for you.

If Thanbey's post caused someone to reconsider treatment, perhaps the decision to treat was not as well researched as it should have been before beginning.  I don't know that this is the case - I am simply speculating.  It seems to me that even if you have doubts sometimes about the treatment itself, you must have an absolutely firm commitment to the DECISION itself, if not, you very well might be better off stopping and getting that straight first.  Perhaps that is what can sometimes be so disturbing about her posts - they unearth self-doubt.  But this can be a very good thing if it causes you to really examine your decisions.  I can also see where this can be bad to someone struggling to stay on treatment, but again, if you did your homework and made the decision after seriously weighing everything, then realize the self-doubt is natural and dismiss it in the knowledge you made the best decision for you and that is the best anyone can do.

My 2 cents...

G

[thanbey]

Do I get a vote?

thanbey

[Nann]

As a person who earns her living by writing and feels that words are powerful tools to convey ideas and sway opinions, I often find that they also can be merciless attackers. There are people who love debating with words either by battering you with them or being so smugly sure of their meaning and content that they unsettle most readers even if the intent is outwardly stated to help.
    Sorry Thanbey, you are clearly knowledgeable and cordial, but you insist on placing yourself in controversy by your own words.   Example:  "I'm not going away."  (Who asked you to?)
"It is a good time for amnesty." "It takes courage to say you're sorry and ask for forgiveness" "The rest will be up to them"
(Huh? Are you who has been on this board for 11 days--once again telling members what to think, why they should think it and if they don't, it will be their folly. But, of course, we are reminded, it is all really up to them. And here are the studies to prove it.)  
    That just doesn't fly here.  This is an incredibly intelligent, discerning, thoughtful, considerate and caring group of thinkers and writers. We have all looked up a lot on our own.   We have a disease and people are emotional about every facet of it and this is the place to lay it all out. No one, not even someone who knows a lot, has the right to try to dominate.  That is why I said to you last weekend, "State your opinion and leave it alone." Try it.
    You don't have death staring you in the face when you bring up a Chinese herbal trial in the midst of a post on why you have Dr. in your name on an important website.  Be gracious,--you apologize for what you say you did not know about and bow out--for the moment. Get out of people's faces.  Bring up your herbal study on another day. If you want to be believed, be believable.
    Rev--please don't compare anyone to Hitler, Al Capone or other notorious individuals.  
     Indy--I remember when you got mad about a perceived criticism of Erin. We can all be touchy.  WHERE IS G.I.P.A. when we need her desperately?  At least she should be thanked and know she is missed.
   Thanks for your time.
      
    

[thanbey]

Unless I am mistaken, I was confronted as soon as I posted by someone who claimed to know me, what I think and what I stand for and to label anything I offered as anti-treatment and inappropriate for reasons that are still not clear to me. The assumptions ran rampant and many signed on on the strength of familiarity with my accuser.

Each of my responses has been posted after repeated assaults on my character and my name by anonymous people. I am not anonymous. Is your position that I not respond to this at all, even the questions I am being directly asked? I seem to be cursed if I do and cursed if I don't. I have made a good faith effort here to answer questions honestly.

I have not sought to dominate anything, but this attention has been foisted upon me. Believe me, I would certainly not seek attention of this kind and if it was not designed to make me go away, what would you assume the effort was about if you were me?

The  response to befuddled had to do with what appeared to be a suspicion that I am someone I am not. I reached out only to offer some comfort. If it in any way offended instead, for that I am truly sorry.

I may only have been here 11 days, but I have been part of the HCV community for at least 11 years. With all due respect to you and others, I reserve the right to decide where I post and what I will post. As far as I know, I have abided by the terms and conditions of this board.

No offense intended and none taken.

thanbey

[thanbey]

Unless I am mistaken, I was confronted as soon as I posted by someone who claimed to know me, what I think and what I stand for and to label anything I offered as anti-treatment and inappropriate for reasons that are still not clear to me. The assumptions ran rampant and many signed on on the strength of familiarity with my accuser.

Each of my responses has been posted after repeated assaults on my character and my name by anonymous people. I am not anonymous. Is your position that I not respond to this at all, even the questions I am being directly asked? I seem to be cursed if I do and cursed if I don't. I have made a good faith effort here to answer questions honestly.

I have not sought to dominate anything, but this attention has been foisted upon me. Believe me, I would certainly not seek attention of this kind and if it was not designed to make me go away, what would you assume the effort was about if you were me?

The  response to befuddled had to do with what appeared to be a suspicion that I am someone I am not. I reached out only to offer some comfort. If it in any way offended instead, for that I am truly sorry.

I may only have been here 11 days, but I have been part of the HCV community for at least 11 years. With all due respect to you and others, I reserve the right to decide where I post and what I will post. As far as I know, I have abided by the terms and conditions of this board.

No offense intended and none taken.

thanbey

[hph5477]

Our GIPA is moving up north.  Don't know if she plans to still monitor this site or not but I sure am going to miss her as my doc.  She was so very knowledgeable and had such a great manner about her.......I could ask anything and was never rushed on appts.  I actually looked forward to my appts so I could catch up on all my counts, questions, etc.

[Nann]

You are really priceless.  I love being able to hear your Brit accent in the midst of your posts.  I think you should be elected the leader of the band.

[Tosser]

Paul...I remember that day...boy was I fightin' mad. I have a feeling this may be different, and even back then I finally got to confront him directly about his motives. It turns out that he was just as lost about which way to go with treatment as all of us were at one time or other...so let this one just voice her opinion as we all have here and we will regroup and reunite in or efforts to learn, understand and overcome this dreaded disease.

There miss thanbey...you can vote on that!

Tos

[honey1616]

lololol  This is too funny and wait...are we slaying dragons here or thanbey?

[Revenire]

Nann - You're right ... comparing someone to Henry Kissinger was totally "over the top" and I am very sorry. ;-) It's good to see you post things Nann. I don't know you but you have a refreshing outlook on things.

Indy - Napkins? LOL ... good story but I might need one more.

Take care everyone,

Dr. Scott

[Revenire]

I agree with you on people deciding for themselves on tx. I believe sometimes liver damage is such that they have to treat though. Thankfully, many are not in that position.

My only issue with thanbey was her Moses-like attitude that she knew more that Dr. Dieterich about the infamous 'blood brain barrier" -- that's it. All I wanted was something, anything, that would prove Dieterich wrong. I was greeted with silence and told Dieterich just doesn't have the competency in that particular area. Let's be clear. I never said I didn't like the way she parts her hair or the color of her socks.

I did a simple search on thanbey's name and up pops a site that lists her as a DOCTOR when in fact she is not a doctor.

Take care,

Scott

[honey1616]

Have a better idea here...Lets label first thing in morning thread "boxing ring" and everyone can stand in line that wants to put her to the ground.  And there up,,,and shes down...but wait..now she is back up and so on and so on...Then maybe everyone will feel better and we can move on.  We have new people and people that have not been in a long time and they certaintly don't want to see us scrap each other...do they?

[jg2001]

I'm in your corner!

Jamie