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Dragon_Killer after 92 weeks

by drofi, Mar 19, 2009 01:43AM
http://video.yahoo.com/watch/4143632/11162955

Sittin' here at home I'm lookin' back on where I've roamed
And laughing how I swore I'd win and not get burned
Left my family
Left my home
I worked my fingers to the bone
And there was not a stone I did not leave unturned
And I was havin' no good time
Roll on Roll on Roller Coaster
We're one day older and one step closer
Roll on there's mountains to climb
Roll on we're on borrowed time
Roll on Roller coaster
Roll on tonight
Roll on tonight yeah
no pain no success
I don't complain about the stress
I wanted SVR and now it's here
So I don't *****
And I swear that time's the trick
It disappears in oh so quick
Man I was just twenty
And now I'm starin' at fifty-one
But I'm still havin' a good time
Roll on Roll on Roller Coaster
We're one day older and one step closer
Roll on there's mountains to climb
Roll on we're on borrowed time
Roll on Roller coaster
Roll on tonight
Roll on tonight
And I know it's hard to see with the sun in your eyes
But one day you're gonna say I saw the light
And now headin' for the hill
And I just cannot wait until
My children grow up to have children of their own
And I'll be telling them about
The times I turned the party out
And how I stood against the virus all alone
Drinkin' water and stayin' high
And realized it wouldn't last
And how I turned myself around
And went down another path
And the signs we must observe
When life's changes do occur
But most of all I'll tell them
Just how proud I am of them
And always have a good time
It's all love and good times
Let's all have a good time Yeah
Roll on Roll on Roller Coaster
We're one day older and one step closer
Roll on there's mountains to climb
Roll on we're on borrowed time
Roll on Roller coaster
Six months negative tonight
SVR is allright
SVR is allright
SVR is allright
Member Comments (24)

by merryBe, Mar 19, 2009 01:51AM
To: drofi
yippee, let me be the first to congratulate you!!!

you have crossed from a deer in the headlights to a light at the end of the tunnel that isn't a steamroller....feels pretty dog gone good doesn't it!!!

I beat cancer 15 yrs ago, and that "all clear" news is hard to beat.
Hope you have someone to celebrate with !!!!

mb (@wk77)

by Teufelhunden, Mar 19, 2009 07:38AM
To: drofi
Welcome home drofi! Your journey has been a long and difficult one. It does the soul good to see another one slay the dragon. Best of luck to you!
Teuf

by mikesimon, Mar 19, 2009 07:41AM
To: Drofi
Congratulations on your wonderful news!
I am thrilled for you.
Stay well,
Mike

by portann, Mar 19, 2009 08:19AM
To: Drofi
Congratulations, Drofi. You fought so long and hard. Feels good, huh?

All my very best wishes,

Port

by justme53, Mar 19, 2009 09:02AM
To: drofi
Congratulations! Great news after a long fought battle.

May the healing continue.........Pam

by smaug48, Mar 19, 2009 09:28AM
To: drofi
The Friday Night Fight winner stands victorious!!!  I am so happy for you, my friend.  Well done.

smaug

by Bill1954, Mar 19, 2009 10:16AM
To: drofi
And a hearty congratulations from me as well, Drofi! I treated for 96 consecutive weeks and got SVR in January of this year. Way to go—

Bill

by goldyn, Mar 19, 2009 10:18AM
To: Drofi
I remember when you just started your tx, Im am so glad to hear of your  wonderful news, i am also 2yrs svr, Thank the Lord....Great poem.....

                                                   Blessings
                                                            Goldyn

by meakea, Mar 19, 2009 10:19AM
Congratulations on your wonderful news!!!

by Marcia2202, Mar 19, 2009 10:32AM
You are another tx hero in this battle!!! Congratulations!!!!

I wish you a beautiful hepc c free life!!!!

Marcia

by AKHepper, Mar 19, 2009 12:02PM
Congratulations! I'm curious how you picked the 92 weeks number.

by Isobella, Mar 19, 2009 01:55PM
Congratulations!  Great News!!

Great song, too.

Isobella

by GrandmaBRZ, Mar 19, 2009 02:21PM
To: Drofi
Terrific news!  And thank you for the song!  Your news and the song made my day! Jen

by jankar, Mar 19, 2009 03:19PM
beautiful

by zazza, Mar 19, 2009 04:11PM
Drofi,
I am so very happy for you! You did it! Perserverance beat the virus! This is good news for everybody else who is/was detectable but not quantifiable at week 24. Enjoy your virus free life!

Hugs,
Za

by comeagain, Mar 19, 2009 04:23PM
To: drofi
Ich gratulieren ihnen!!!!

schuss.

ca

by lalapple, Mar 19, 2009 04:38PM
92 weeks?!  you're SVR already!  WAAAAAHOOOO!!!!

by ilene341, Mar 19, 2009 06:00PM
To: drofi
Ilene here 1b tx 24 wks. I'm sooo happy for you! you are really a great inspiration for me right now. I just spent a week and a half in hosp. They didn't know what to do to with me. I couldn't keep anything down. They took me complete off tx Igo back to Dr on 30th. It was hell but I'm home weak but your note has made me uplifted. I have no family support. The day I get home from hosp they told me is all I do is feel sorry for myself. So your SVR gives me hope to look forward and say "in your face". Probably a couple of other things thats if I ever see them again.

by Kristina538, Mar 20, 2009 05:12AM
I wasn't here at the beginning of the journey, but am honored to celebrate at your big finish line.   Congratulations :-)

by charm27, Mar 20, 2009 08:07AM
To: drofi
Congratulations on your wonderful news! Time for the happiest dance of a lifetime!
Wish you a free life now!
Be well.

Charm

by drofi, Mar 20, 2009 02:32PM
To: all who still have to fight
thank you very much for your congratulations. I am happy, yes I am. To be negative in week 26 was not a good start. Today I have liver enzymes in the lower normal rang, my thrombos went upto 204.000 again, and PCR (<12IU/ml) is negative.
Perhaps Arase et al. are on the right way indeed? Well, one single case (me) without a control is no evidence, but another hint.
My deep solidarity is with all of you, who still have to fight.

Best wishes, drofi

Arase et al., Inter Med 47: 1301-1307, 2008
The aim of this study was to determine the suitable treatment period in patients who achieve virological
response during combination therapy of peginterferon and ribavirin for chronic hepatitis C virus infection.
Methods: Inclusion criteria were HCV-genotype 1b, serum HCV RNA level of 􀀀100 KIU/ml before treatment,
and negativity of serum HCV RNA during treatment. The 366 patients were enrolled in this retrospective
cohort study. Patients were classified into four groups according to difference of response: rapidvirological
response (RVR) at week 4 after the initiation of treatment (n=37), early-virological response
(EVR) at week 5-12 (n=161), late-virological response (LVR) at week 13-24 (n=131), and superlatevirological
response (SLVR) at week 25-48 (n=37). A non-relapse in patients with undetectable HCV RNA
during therapy was defined as clearance of HCV RNA 6 month after the cessation of therapy.
Results:
Of the 366 patients, 241 had non-relapse and the non-relapse rate in each group was 89% (33/37)
in RVR, 79% (127/161) in EVR, 54% (71/131) in LVR, and 27% (10/37) in SLVR. In RVR, 26 of 27 patients
with continuance of negative HCV RNA of 􀀀30 weeks during treatment had non-relapse. In EVR, patients
with period of negative HCV RNA of 40 weeks had non-relapse rate of 90% (71/79). In LVR and
SLVR, all nine patients with continuance of negative HCV RNA of 60 weeks had non-relapse.
Conclusion A suitable treatment period of combination therapy for chronic hepatitis C should be determined
based on the time of attainment of negative HCV RNA.

by jmjm530, Mar 20, 2009 02:46PM
Congratulations. Well deserved! Not sure if he mentioned "Arase", but Dieterich did comment in the professional forum to someone (maybe you not sure) about continuing on past week 24 if still detectible as long as they got truly UND fairly soon and added on I believe 48 weeks. Obviously you weighed the risk versus rewards of such an approach and thankfully you have that SVR. Enjoy it.

-- Jim

by CockSparrow, Mar 20, 2009 07:37PM
To: Drofi
Congratualtions!!!
Really happy for you.

More evidence is accruing that treating for 44 weeks or so past UND is getting good results.

Anecdotal evidence is still evidence drofi.

CS

by willing, Mar 21, 2009 12:15AM
To: drofi
Congratulations, Herr Drofi - truly a remarkable feat. If I had a hat to take off in your honor, I most certainly would. As far as I can remember, which isn't that far, you are the 1st SVR with VL at w24 since I've been on this board.

And I think you're absolutely right about Arase; newbies  routinely ask how Drs came up with 24 and 48w. Determining tx duration from evidence seems such a duh-concept it's really remarkable it's just surfacing now (the trouble with Drusano was that it was based on retrospective statistical modeling of standard-length tx).

Anyway, you're free now - enjoy!
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