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10947 tn?1281404252

EVERYONE IS WELCOME!!

Hi Friends,

We've received several very complimentary e-mails about the richness of the information and support being shared in this forum.  THANK YOU ALL!!

Some new members have mentioned that they feel their comments are not given the same respect as some of the older members.  Let's make sure everyone's thoughts and ideas are respected.

"Make new friends but keep the old,
One is silver and the other gold"!

Thanks for all that you do to make this the BEST Hep Forum in the world!!

Cindy Thompson
Med Help International

26 Responses
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Avatar universal
Thank , sure I hope I dont remember unplesant s/e. That would be nice. Right now they are winding down from full blown. Just got in from 12 hr shift and am brain dead , one more day to go .

Who is the person who posted ...Hi to you , back from vacation . Sounds lie it was a real great , needed time.
         E
Helpful - 0
Avatar universal
the rev=revenire, in charge of the church of interferon a long time ago.

I am 7 months post tx, and I honestly do not remember many details of the last year and a half.

The three sons will take a lot of your energy, especially if the older son does not want to get "hassled" about things he should take responsibility for.
I do hope you find the energy, though and
Make time for yourself.
Helpful - 0
Avatar universal
Thanks so much . As you can see from the thread I have not felt my norm  and this has scared me to death . Out of control.
I know that this will pass its just the waiting.
I am menopausal so thats not in the mix. But the death of my husband is factored in . I know that my own children are concerned .
The two boys are a handful . ADD x2, insecure , both require/demand  attention , lots of acting out and head games. Dad...well lets just say I have dubbed the whole relationship "MY Three Sons".
However, we did finally sit down a talk..one more time.

You said at 6 months you hardly remembered the feelings. Where are you in tx ?
Oh, and who is rev???
Helpful - 0
Avatar universal
i've always felt i wish i could give more to the hep "b" ers and others with different types of hepatitus!  since most here are hep c, i wonder if it would be helpful to the hep b's or other forms of hepatitus folks to have thier own forums...since not alot of us know much about some of these other forms of hepatitus we tend to say little cause we just don't know how to help...this one thing has always saddend me...

the other thing is that we really do need to be mindful of posting on other folks threads...first medhelp is against it and secondly it may offend the original poster...that thier question isn't important...if we have to it should be at the end of a
thouroughly discused question...

we seem to be getting plenty of room to post these days so we should tag on only if we have to and perhaps on an "oldies" post...newbies should feel very comfortable and welcomed to post on a brand new question and we should be very careful how we treat them if they are not farmilar with taking too many "new" questions...

and to the newbies...some days around here are very chatty...and we all feel like saying something...and then there are days where we are exhausted and just can't put the energy into every post...so please don't take it personally...just try your question the following day and say hi again...and also try to add more information as some new posters don't give enough detail and it's hard to comment on thier question as it is written...also if you post in the morning more folks will read it throughout the day...some don't read old posts even from the day before...so if you post late at night you may want to post again the next day. i guess what i'm saying is post often and you will not be disapointed!!! we really do care about you...some of us just need to be awakened from our hep c sleep! :O)

but you are loved!!!! be sure of that!!!
Helpful - 0
Avatar universal
i've always felt i wish i could give more to the hep "b" ers and others with different types of hepatitus!  since most here are hep c, i wonder if it would be helpful to the hep b's or other forms of hepatitus folks to have thier own forums...since not alot of us know much about some of these other forms of hepatitus we tend to say little cause we just don't know how to help...this one thing has always saddend me...

the other thing is that we really do need to be mindful of posting on other folks threads...first medhelp is against it and secondly it may offend the original poster...that thier question isn't important...if we have to it should be at the end of a
thouroughly discused question...

we seem to be getting plenty of room to post these days so we should tag on only if we have to and perhaps on an "oldies" post...newbies should feel very comfortable and welcomed to post on a brand new question and we should be very careful how we treat them if they are not farmilar with taking too many "new" questions...

and to the newbies...some days around here are very chatty...and we all feel like saying something...and then there are days where we are exhausted and just can't put the energy into every post...so please don't take it personally...just try your question the following day and say hi again...and also try to add more information as some new posters don't give enough detail and it's hard to comment on thier question as it is written...also if you post in the morning more folks will read it throughout the day...some don't read old posts even from the day before...so if you post late at night you may want to post again the next day. i guess what i'm saying is post often and you will not be disapointed!!! we really do care about you...some of us just need to be awakened from our hep c sleep! :O)

but you are loved!!!! be sure of that!!!
Helpful - 0
Avatar universal
as the rev said, hold off on major changes, well, too late on some of that advice, but from now on if you can.
The first 6 months on tx, I was in some strange emotional mood, but since I did not want the sx of ADs I decided to wait things out. It was a dark period, but it lifted after 3 wks and after my anemia was managed. Lowering HGB can contribute to depression and moodiness, as you know.  I think that perimenopause, the meds and using the Ortho Evra patch set up an enhanced mood/emotions stage that needed a lot of energy to overcome. BF lack of tact did not help either.  But I held and it passed and I hardly remember the feelings I lived then.  Talking things out is scary sometimes but worth knowing where everything stands.
Having teenagers in the house can't be easy either. My ex's son had a lot of power games going which put a strain on our relationship.
You will do what is best for you in the end, I can see that in your words.
Helpful - 0
Avatar universal
Thank you . Your comment has been a real leveler.
C ,I have worked as a chemo nurse for the last 10 years , still am working. I administer , case manage , refer, listen , support from dx to discharge . Then many times for the second and third go round. I love Oncology. This medication is much the same as the chemo I administer. . The side effects are the same with only a few variations .
I firmly believe in the mind / body connection and have seen first hand the quality of life , side effects , and out comes experienced by those using possitive or negative energy.
I too , wish there was a magic wand that is waved , but I believe the only magic wand we will see is our mind. I know without a doubt that the direction of my negative energy is bringing about nothing possitive. The stress that I cause myself cannot be measured.
So, it is part of the reason I come to this site.I need help getting back on the right track . No one told me life would be smooth sailing , in fact I know it rarely is. However , I have always been able to make lemonaid or pie out of lemons . I am really good at that . My girls tell me "you are the most positive peron we have ever met."
I truly believe that I can find what I need inside my self , to channel the energy in a constructive life giving direction. A
Helpful - 0
Avatar universal
Thank you . Your comment has been a real leveler.
C ,I have worked as a chemo nurse for the last 10 years , still am working. I administer , case manage , refer, listen , support from dx to discharge . Then many times for the second and third go round. I love Oncology. This medication is much the same as the chemo I administer. . The side effects are the same with only a few variations .
I firmly believe in the mind / body connection and have seen first hand the quality of life , side effects , and out comes experienced by those using possitive or negative energy.
I too , wish there was a magic wand that is waved , but I believe the only magic wand we will see is our mind. I know without a doubt that the direction of my negative energy is bringing about nothing possitive. The stress that I cause myself cannot be measured.
So, it is part of the reason I come to this site.I need help getting back on the right track . No one told me life would be smooth sailing , in fact I know it rarely is. However , I have always been able to make lemonaid or pie out of lemons . I am really good at that . My girls tell me "you are the most positive peron we have ever met."
I truly believe that I can find what I need inside my self , to channel the energy in a constructive life giving direction. A
Helpful - 0
Avatar universal
Thank you . Your comment has been a real leveler.
C ,I have worked as a chemo nurse for the last 10 years , still am working. I administer , case manage , refer, listen , support from dx to discharge . Then many times for the second and third go round. I love Oncology. This medication is much the same as the chemo I administer. . The side effects are the same with only a few variations .
I firmly believe in the mind / body connection and have seen first hand the quality of life , side effects , and out comes experienced by those using possitive or negative energy.
I too , wish there was a magic wand that is waved , but I believe the only magic wand we will see is our mind. I know without a doubt that the direction of my negative energy is bringing about nothing possitive. The stress that I cause myself cannot be measured.
So, it is part of the reason I come to this site.I need help getting back on the right track . No one told me life would be smooth sailing , in fact I know it rarely is. However , I have always been able to make lemonaid or pie out of lemons . I am really good at that . My girls tell me "you are the most positive peron we have ever met."
I truly believe that I can find what I need inside my self , to channel the energy in a constructive life giving direction. A
Helpful - 0
Avatar universal
And with the help of others BEAT THIS DAMN THING.
       Thank you All for listening
                   E
Helpful - 0
Avatar universal
I just moved here from Va. 9 months ago. Built a house . Changed jobs ,  was suppose to get married in Aug and my fiance two teenage sons were to live with us.
I am driving my grown kids crazy .I have always been down to earth and stable . I feel anything but that now. There are times I can laugh at myself but not at this moment.And yes I can see me in you ...sane enough to know you are not crazy, just acting out the part.
thanks       E
Helpful - 0
Avatar universal
It sure looks to me like you have legitimate reasons to be feeling all that you are feeling. I wish I had a magic wand for you (and all the rest of us!) I'm a firm believer in the mind/body connection and I know we influence the physical outcome of things by how we think. If there's some way you can think of to channel that healthy anger that you have directly toward the virus itself...after all, it IS a large part of the reason your life is the way it is -without it things would probably have been quite different- maybe you can help yourself deal with your feelings and at the same time be actively helping the meds clobber the virus. Just a thought!
Helpful - 0
Avatar universal
I read , learn then research from this site . Lord, what I do not know could fill books.
I also draw support from listening to others . Compared to most I seem to be having a rather easy time of it. I did have to get sleepers , huge problem there. AD which I havent started , and Xanax for panic attacks .
Unfortunately I was confronted with some unpleasant realities in my 4 year relationship right at the start of tx...Which has caused rexamination of the relationship, emotional distance and feelings of betrayal , bitterness, resentment and anger on my part.I don't think I would need these support drugs if not for the situation . So that makes me even angrier. My Dr dosent think I am depressed , just having sleep deprivation and situational panic attacks and tells me ,"get thru TX at all costs." Now I must pull myself from the mire, figure out how much of this is over reaction due to the Riba, how much is him being an inmature, selfish weanie. Then sort things out and figure which way to proceed.
I deliberately waited to go on treatment until I was emotionally ready to handle the cognitive sx. I knew that the medication could be rough. My husband of 27 years underwent Tx 7 years ago . He committed suicide less then a year post tx.
I have alot on my plate right now and am grateful to have a place to voice my heart. And I am really feeling sorry for myself. So thanks for listening.      
         E
Helpful - 0
Avatar universal
I'm somewhat of a Newbie myself with the intention of being an old timer some day...
I have found this forum to be both welcoming and respectful.  They have answered many questions for me and continue to help me through one of the most devastating times in my life.  My doc has allowed me to do some things out of "protocol" because he thinks I've educated myself...when actually this forum's old timers have taught me just about everything I know about Hep C.
I can't thank everyone enough for all their support!  :)
Helpful - 0
Avatar universal
You are so funny today!  It's ok with me if you post under another name so you can argue with yourself -- I bet it would be a lively one!

Laika
Helpful - 0
Avatar universal
I am a newbie who posts rarely and people have been welcoming and warm. This is by far the best source of info I have come across (although all of you would have laughed to watch me watching the Pegasys video step my step when I did my first injection ;-)

I am a research junkie and when I want to learn something new I scour the web--this is by far the best site I have found. In fact I rarely go elsewhere now because I can find everything I ever wanted to know in recent or archived posts.

THANK YOU MEDHELP--THIS IS A TREMENDOUS SERVICE.
Helpful - 0
Avatar universal
First of all Scott: LOL, you are both knowledgable and funny.
And YEA for all of us on this forum, oldies and newbs. I ditto the others with "what a great place this is to get info and support"  BEST FORUM EVER!!!
Helpful - 0
Avatar universal
ditto ditto ditto....this is the only site/forum i have ever been too - i went to another once but it was mentally beyond me - too much doctorspeak....what i get here is support and love and understanding and sometimes some really good sprited discussion.....whoever responds to me wether they be new or old i don't know; but all are good at meeting my needs..
a god send.
<3 michelle
Helpful - 0
Avatar universal
I think Gina said it perfectly and I echo her sentiments. Thank you so much for providing this forum that is so wonderful. I have always felt welcome and always found support . I hope that I can be as helpful to the new folks as all the veteran people have been to me.
Lauren
Helpful - 0
Avatar universal
This place has been a God send to me.  And I will be very pleased to welcome new comers and hope to help them the way this place has helped me.  It is called full circle.
Gina
Helpful - 0
Avatar universal
I have to say that although I am not very savvy about medical terms the people here have helped me understand a lot by just reading the posts. I also want to let you know that I was/am so immpressed with the way I was welcomed that I gave this site to the nurse who does my blood work. She was telling me about all of the new cases coming in and how many questions they all had, so I told her about this site. I'm sure many will take a peek and come to see that this site is just the best.....thanks again to all of you who take the time to help, may God bless.
Helpful - 0
43671 tn?1205930871

<font size="2" color="green">What else can I say!!!


If your in need of help dealing with Hep-C, This is one of the best forums.
Many here will be with you to Guide you, Comfort you, and offer you information..</font>

<font size="3" color="Blue">Both Newbies and us old timers..


            Blessings................TonyZ,<font>
Helpful - 0
Avatar universal
As a fairly new person, I want to tell you how warmly I have felt accepted here.  I don't know how many times I have seen the same questions answered over and over again by the friendly folks here.  You'd think people would be tired of answering something that is in an archived thread, but whether they do or not, they answer with grace.

You have all have helped me so much navigate the terrible anxiety from diagnosis through biopsy to treatment. Both the medical and especially the anicdotal information is valuable and the compassion shown is outstanding.

Cindy and Phil, this is by far the finest Hep C forum I have run across.  It is so easy to get around in here and without that I would probably not be here. The only threads that I see with little response are those not exactly on topic.  And it amazes me how many of them have responses from the knowledgeable people here.

So a BIG thank you from this newbie
Helpful - 0
Avatar universal
sounds like a plan. LOL.
Helpful - 0
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