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'End-stage' liver disease from Hep C

My Father has been diagnosed with "end-stage" liver disease from Hep C.  I would like to understand what the descriptor "end-stage" means - what does this tell us about his likely duration and quality of life?
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Avatar universal
It is with a very heavy heart that I submit this post.  On August 6, 2011, my beloved brother who was 44 years of age passed away from end-stage liver disease.  I am compelled to share no matter what the docs state during this illness, never lose hope.  I truly believe my family gave in to this disease and hastened his death by putting him in hospice.  Prior to calling hospice, he fell, hit his head and then began to suffer from grand mal seizures.  No rescue was called, but the homicide warriors of hospice were called, and stated to bring him in... the end is near.  Since when are they GOD.  He arrived at the inpatient facility at 1 p.m. and was dead by 4:35 to be exact.  

I have completely detached from my family for this grave decision regarding the sanctity of his life, and their self-will run riot which lead to his demise.

I am now an advocate for Hospice Alliance and American League for Life.  

There is only ONE author of LIFE AND DEATH and that one is JESUS CHRIST.  

Never lose hope for your loved ones....
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Avatar universal
My husband just died on March 11, 2011. He had Hep. C and so do I. We have five children. He was so healthy for so many years the at the end of February, he started feeling bad. I made him go to the hospital a week later. They told me he had end stage liver disease. His skin became so yellow. It all happened so fast.Hepatitis C is a sneaky disease that creeps up on you. You can be fine for years then all of a sudden, by the time you feel sick, it's too late. I am currently in the third stage and I am young with 5 children who will be losing their Mother before a year is up. If anyone gets diagnosed early, get help. I wouldn't want anyone to end up like us. Thank you.
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Avatar universal
I new to this site. But been reading all your stories. You all are so brave and live with much Faith for healing. I love that.
I am at ESLD with hep c. I have had hep c for  more than 30yrs not knowing it.I had blood transfusions 2 seperate times way back in yrs when they did not know anything about hep c. So all these yrs I have had this with No symptoms at all until 2 yrs ago.
I have tried 2 times Rebavirian and Interferron, along with injections to keep my red/white cell count up enough to take it. My body still rejected efforts.
Dr took me off all meds for 6 months to give my body time to get back to more Normal, then I will try something new. Side effects are suppose to be worse than what I took before. My blood acct. went down to 5 and I had to get infusions. So in a couple of months I am going back on some new med that is suppose to come out. Not looking for ward to it, but I am trying. I am on a Transplant list already so if and when time comes, I will have all paper work and dr appts kept.
God is Good and He will never leave us. Stay encouraged my friends.
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Avatar universal
I was told in 2003 i had 2 to 5 years to live from end stage hep-c. My liver was damaged on a scale of 0 to 4 at-- 3 1/2 destroyed. I have so many side affects there are to many to mention. I eat right and took care of myself as best as i could but i feel the end is close. If my liver dosn't give out first my heart or blood vessels will. I have no illusion of a transplant because i am 60 years old and i doubt a healthy liver would be wasted on little old me! All i can say is i wouldn't ask any of my siblings to donate a portion of thiers as it would just be to dangerous. Don't kid yourself, cure it or forget it. Today they have a new drug that shows promiss but i will not take it as the same interfiron and ribaveron is still part of the cure. It almost killed me last time and i wont do it again. This is sad , i know, but i'm trying to be realistic. I'd rather see a liver go to a young person with a life ahead of them than to take one and die of natural causes a few years later. Just my oppinion.
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Avatar universal
Hi - You have posted on an old thread and may not be noticed.  If you like, go to the top of the page, and click on the ‘post a question’ button; this will open a new page and let you start your own discussion in here.
Good luck
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Avatar universal
sorry my previous comment was to lostfaith.
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