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End stages of Hep. C?????
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End stages of Hep. C?????

I just recieved a frantic phone call from my mother (she has had hep C for 20 years, 15 years untreated and she is in the end stages of Hep.C) And she is scared because she says she feels like she is losing her mind, she said she forgets everything!! She said that she has to write things down in order to remember. Well I bet this is a little scarraed but im very upset!! About 4 years ago i told to a women who lost her husband to this and she told me right before he dided he lost his memory and then his mind and he died shortly after! I dont know what to say im just ask all of you to please respond to this and tell me what you all know about the final stages of Hep. C.
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Avatar_n_tn
I have never heard of "end stages of Hep C"

Most people with hep will die "with it" and not "from it"
Do you mean she is in end stages of liver cancer or cirrosis (cirrhosis)?
Im sorry, I am not understanding exactly what you mean.
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Avatar_m_tn
Sorry about your mom and what both of you are going through. There are no doctors here so all we can do is speculate. If she's seeing a liver specialist, maybe you should give the doctor a call and discuss her condition. If she's not currently seeing a liver specialist (hepatologist) now would be a good time to get her one. A lot of us have forgetfull periods so I wouldn't jump to conclusions before you speak to her doctor.  I hope everything works out.

-- Jim
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Avatar_f_tn
I haven't really heard of End Stage HepC before either.  There are many different levels and you are NOT even talking about cirhhosis which would be a level here. Transplant is a viable option that people pursue when their livers are too badly damaged and it is a LIFE SAVER.

MANY of us have brain memory problems...and we are NOT in any End Stage anything.

Please make sure she see's a doctor ASAP it could be something simple like anemia causing her this problem maybe.
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Avatar_f_tn
Zoey, you have been here before, haven't you? I seem to recall your name. If your mom is in end stage liver disease, there is a forum that addresses folks in that condition, I don't have the addy handy, sorry.
I hope you can get some answers.
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Avatar_m_tn
Sorry you are so worried about your Mom. Is she seeing her dotor regularly? I agree with the others, you or she should cal the doctor, there might be something he should/can do for her. I know that sometimes ammonia can build up in your system and that can cause the symptoms you are describing. There are medications for it so I'd think a doctor visit is in order. They also need to check her I would think in case it is being caused by something else.
Good luck dear, you are a very sweet and loving daughter, I bet your Mom is very proud of you.
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Avatar_f_tn
Isn't there any possiblity of a transplant?  Is she on the list?

GOD this disease makes me mad. I'm so sorry that you are having such a bad time with it - mommy's are our mommy's no matter how old we get. It breaks my heart for you.
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86075_tn?1238118691
Hi, just wanted to point out to you that none of us are doctors, and none of us can really pinpoint what exactly is going on with your Mom without a whole lot of info, and then we would just be analyzing these things from our own experience, etc...and not as professional experts...did you mention if your mother had alcohol or any problems like that? Forgot...

As far as who exactly knows what a person's timetable is for dying, only the universe, etc...knows that, certainly not any one of us here, not even the doctors always know that one for sure...

My younger sister was almost pronounced dead, and was only given days to live with a 10% chance of pulling through...went into liver failure and kidney failure, was incubated for close to a month, spent 3 more months in the hospital...and that was almost 4 years ago now, just talked to her yesterday and she's walking almost 2 miles a day...course she still has health problems, but I wouldn't bet what her timetable is...

Not to say everyone will have this experience, but I just know from this experience that there is always hope...

There is a woman on another board I speak with every so often, everything went wrong with her, kidneys, the whole shot, I was almost certain she wasn't long for this world, her liver transplant kept giving her trouble, etc...She just posted yesterday that everything seems to be getting much, much better, she's feeling much better, etc...and has resumed close to a normal life with great expectations...

So remember don't give up hope, find out what's going on with her, talk to her doctors, etc...best of luck to you...

Here is a support group for cirrhosis with a lot of info, and there is another liver failure support group from the Janis and Friends site if I'm not mistaken....

http://groups.msn.com/CirrhosisSupportGroup
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Avatar_n_tn
she has Chirossis of the liver, everything that can go bad with the diease has happened to her. She isnt able to have the interferon shotd due to be too weak for them.... she has a liver specialist as well.... i just know this woman who told me years ago about her husband who had dies from Hep. C she said at the end, he lost his memory and he lost his mind (one night she woke up tp a scratching noice and it was her husband scratching the closet door!! The he died shorlty after)She will die fron this, she knows it I ust want to know if anyone knows if this sounds like the "end". My mother is only 40 years old!!!! She has had hep C for about 20 years now (it went untreated for 15 years -she didnt know she had it-

P.S. I have been here before i love this site!!
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Avatar_m_tn
(Natto) is sticky and has strong smell and taste. Natto is a good source of protein...
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Interesting. I used that protein line a lot in my younger days, but never had it referred to as Natto.

But seriously, thanks for the heads up. Whoops.

-- Jim
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86075_tn?1238118691
wow! Jim! youre treadin in Goofy waters now!!!! PC police gonna be after yous now!!! ha ha! Have a great weekend everybody, gonna go walk the pooch! (do I take it you natta gonna try natto?)
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Avatar_m_tn
For says; gonna go walk the pooch!
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No comment. Have a great weekend. And yes, I'm already researching Natto at this Japanese food site: http://www.links.net/vita/trip/japan/food/natto/

"Natto resembles bits of hardened fox feces anchored in snot..."


Yummy.



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Avatar_m_tn
says........"Natto resembles bits of hardened fox feces anchored in snot..."

I think me would rather spend and hour in the ladys department trying on creame.
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Avatar_m_tn
cdm:I think me would rather spend and hour in the ladys department trying on creame.
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You post a picture of that and I'll eat the Natto. Hope you feel better soon.

-- Jim
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Avatar_m_tn
I was told the problem is not needles or the ink, that most reputable parlors use sterile single use needles and sterile single use ink The problem is in the tattooing tool itself, by design they can not be fully taken apart to be sterilized ony part of it can be so that is the culprit. Remember the virus can live a long time on any surface. Most think if the needle and ink are sterile, all is ok. The ink has to flow through the tool, unlike say, a dental drill where the sterilized parts of the drill are the only thing you are exposed to, the tattoo tool has to have a way for the ink to pass through the tool. I cringe to think of all these young people getting tattoos in such large numbers.
I was in Bali and my sons wanted me to let them get tattoos, they do pretty ones there and it is a big thing to get them there because they are cheap too. I wouldn't let them, I am so glad I didn't! They grew out of that phase and don't want them now (hooray) Artistically I think they can be nice but the risks are scary.
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Avatar_f_tn
I  know you are scared and totally understand what you are going through.  At your young age to think of loosing a parent is very scary.   Maybe you could make an appt for your mom and go along.  There is a patient confidentiality thing so she would have to okay him talking to you. Anyway maybe he can tell you what to expect.  Also ask if hospice would be an option. At the end I really recommend it.  They truely are wonderful and can help your mom.  I would have never believed it until I experienced it with my ailing father.  Anyway I know you need someone to talk to and wish I could help more.
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Avatar_f_tn
Did anyone see the artile in the news today about the kids getting tatoos back in 2004 from people that did not sterilize etc.  They are now finding skin problems....I bet in the next 5 years or so there will be HEP people out of the woodwork.
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86075_tn?1238118691
I remember Kalio talking about tatoos and she brought up an interesting point, that it's not the needles per se that always have the virus? forgot exactly.. but it was interesting and I was discussing this with someone the other day and spaced it..(whoda thought? haha) anyway, what was that you said Kalio? if youre around and can refresh my memory...no, I didn't see that article...
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Avatar_f_tn
I'm very sorry to hear about your mom.  I hope she finds a way to manage her hep c/cirrosis.
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Avatar_n_tn
Some of these posters are totally out of line and others are mis-informed.

As to your mother, memory problems and 'losing one's mind' are signs of heptic encephalopathy.  this is a toxic build up of unprocessed chemicals in the body.

Ammonia is a major cause b/not the only toxin that causes this condition.

There are meds to reduce the toxins and there are certain dietary changes that help immensly.

Dairy converts quickly to ammonia as does red meats and animal proteins in general.  Avoid these.

A diet of whole grains, brown rice, lightly steamed veggies and juicing are preferable.

Getting the proper nutrients is vital when the liver is mal functioning so badly that memory and personality changes occr.

I have a decomp'd liver due to a massive bled cause by mis dx hep c from 1967 transfusion.  I cl'd the virus-2b-b/ still must monitor my food very carefully.

  I'm classified as end stage liver disease/hep c.  Appearently, you can't 're-comp' a liver, so here I stay-end stage.

The best nutritional boost I take is a protein shake/smoothie every morning.  I use a rice protein, Activa yogurt-live bacteria-apple juice and fresh fruits.  all in the blender-sometimes an egg.  I also add liquid 'joint juice', calciunm-minerals and all around vitamins.  I get all these @ costco.

Junk food, white flour, corn syrup and fruitous are really bad, trans fats the worse.

The fewer toxins one takes in, the fewer toxins the damaged liver has to filter out.  And the fewer toxins the body makes, the same filter thing.

Sam-e and milk thistle, green tea and fish oil caps all help too.

Don't worry-the 'end' is not really then 'end'.  One can linger quite well @ this whistle stop.
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86075_tn?1238118691
Just wanted to say, my sister, who has ESLD also, does very much the same as New Sojourn in terms of her diet, and it has benefitted her greatly, she's come back from a lot...she maybe cheats a little once in awhile, but not often...she also exercises and drinks plenty of water, all the healthy things youre supposed to do anyway...
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Avatar_m_tn
Do you mean intubated?
Never heard of incubating adults!

Gad your sister is doing so much better. You are right, there is no way to predict outcomes, peope beat the odds every day.
Hope you are well
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86075_tn?1238118691
typing without my glasses again, and I refuse to wear those granny grabbers for them, oh well...have a great weekend Kalio, sounds like youre really doing well all things considered...it's prob going to be really nice in SB!
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Avatar_m_tn
It IS beautiful here, I am very blessed to live here. Now if I just felt good enough to go kayaking or something!
Hey what the heck is Natto?
Sounds like something Robin Williams would say
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Avatar_m_tn
Sorry to hear about your mom, We are not drs hear but maybe you could give her dr a call and see what he or she has to say.

Beagle
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86075_tn?1238118691
You bet it's beautiful there, love going up the coast and seeing those Montecito Mountains, so nice...want to go up to Cambria so maybe we'll catch a little of that "Sideways" tour of SB on the way...couldn't hurt....

Natto is a traditional Japanese food and is commonly eaten for breakfast in Japan. Since natto is made from soybeans fermented by natto bacillus, it is sticky and has strong smell and taste. Because of the smell, some people dislike eating natto. But, natto is known as a nutritious food in Japan, and the popularity has been increasing in recent years.

Natto is a good source of protein and vitamin B2, which keeps your skin young. Natto is also rich in vitamin K2, which is helpful in preventing osteoprosis. Further, a fibrinolytic enzyme found in natto is called nattokinase. Nattokinase is reported to reduce and prevent blood clots. So, eating natto may help prevent heart attacks and strokes....

You know I'm a health nut foodie, (and I like most everything I eat) but I think I'll even draw the line here, ha ha! well, I'll try it anyway...
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Avatar_n_tn
(after reading your response to Natto)LOL  LOL
hahahahahaha     you really crack me up sometimes
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Avatar_f_tn
The artile that I read yesterday said that these parlors or basement folks were not sterilizing at all.  The only reason they found them is because of a bacteria that was popping up on the people.  Apparently most are 16 or so years old.
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