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Everything Smells Strange
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Everything Smells Strange

Has anyone experienced a change in their sense of smell while on tx.

There is a room in my house that I can't enter without being offended by the smell of the room.
My eyes dry and throat burns.

Also, I think my skin smells funny no matter how much I wash.
I've tried washing in baking soda to try to get rid of the smell.
Additionally, when I wash clothes the clothes smell funny to me.

Could  this be my imagination or what?

Reva
38 Comments Post a Comment
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1748829_tn?1338040641
No it happens. Smells can change and taste can change.
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Avatar_f_tn
No, I have that one also.  The offensive room is my sons' room, but it smelled just fine to me, before this Tx.
   I do plan on cleaning their carpet this week, to see if that helps, because I can barely stand it though.
   And it's not my skin that smells to me, but me teeth!  I have to scrub them with Golden Seal powder, and them brush them thru-out the day, and use all these different types of mouth-wash...which helps a bit.
   Also, if anyone in the house uses(stinks up) the bathroom, it smells HORRIBLE to me!
I go in the bathroom, open the windows, spray disinfectant on the toilet seat, in the toilet, and around the toilet, etc. I never used to be like that!
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Avatar_f_tn
everything smelled bad to me, including my skin. My house smelled like the meds and I believe they were leaching out of my body. I couldn't even stand the smell of laundry soap and had to use fragrance free soaps for laundry and bathing, it also will pass with time.
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766573_tn?1365170066
It is not you.
I never used to be one of these hypoallergenic, fragrance-free, non irritant kind of people and quite frankly thought they were a pain in the rear...until I became one when I started treatment - the last time around. I have happy memories of the smell of Tide and Downy but now those smells are so over the top they literally nauseate me. Oh, and the Bounce fabric softener sheets.

As far as "phantom" smells around the house, the one I pick up on is old, krappy metallic smell. I know it's not real, but it is there nonetheless.


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Avatar_f_tn
  I also have the Bounce fragrance revulsion, and any scented detergets now. I used to kind of enjoy going to Used Clothing stores, but would never be able to go into one now!
   I alos keep smelling a strange mildew odor, coming form my side of the bed. My mattress is brand new, so it's not that (I keep smelling, just ot checkm, though) and I smelled my lamp, nope...although, at one point I thought it was my heating pad, but that has dissappeared, and I still smell the old mildew smell waft my way, while I'm in bed. ( I wash all the sheets al the time, it's not them)
   This smell phenomena, compiled with the fact that I am itchy all over,makes me feel a bit like i am losing it, sometimes!
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1986676_tn?1329866071
I had the carpet in my room replaced because of the smell.That was about a week ago. There is an elevated platform in an area of the room
and now I'm wondering if there's mole or something under it.

The platform was in the house when I moved in nearly 25 yrs. ago.
I've  replaced the carpet several times.

My mattress which looks clean smelled to the point I put it on the sun porch
to air it out. This is driving me crazy.

I have a man  coming to look at it today. Thankfully, the rest of my house has hard wood floors. As a matter of fact there hard wood under the platform, but I would prefer not to have to pay to pull it out.
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Avatar_f_tn
Smell perversion. Interferon notoriously perverts state and smell. The smells are either not real or are greatly exaggerated. Don't bother spending money on replacing things, etc., this will either go away during tx or after.
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190885_tn?1333029491
don't pull your house apart!!!!!...i couldn't take smells either...the good thing is it goes away after tx...then the burger cravings for a few months...good luck...hang in there....billy
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317787_tn?1373214989
Hello I do not know if it is "normal" but I had a similar experience.  About halfway through tx my sense of smell increased and I could smell everything in the home.  I ended up throwing out a few things that I could not get the smell out of.  I now understand people who have sensitivities to peoples cologne and other smells
It was awful but it did go away.  Now I wonder what smell am I missing :)
Hang in there, it does get better
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317787_tn?1373214989
Just read your posts, thank you, I thought my sense of smell had increased.  Gosh wonder what I threw out that has "phantom" smells :)
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1986676_tn?1329866071

There is something up in the bedroom because when I moved to another
room I stopped getting the very potent odor. I was getting ready to tear up the new carpet so I could investigate. Was also getting ready to donate the
mattress. The carpet installer said he didn't smell anything. I had painted
the surface with a stain block. So maybe I now have Blood Hound sense of smell. I will put off tossing anything else.

It's interesting that two days ago when a relative passed and I went to visit I asked all my cousin's to try to smell me. They said I smelled fine and laughed at me. But, this situation is not funny. I didn't smell anything while I
was there and the body was still lying there.When I go to other homes
I don't really get this reaction to the air.

Yesterday, I changed the air conditioning filter to one that's claims to trap
everything from dog hair to spores. Maybe that will help.

Also, I do believe the meds leach from my skin because my clothes now
smell strange to me.

I still have 40 weeks to go do you think this will last the entire time I'm treating?

Reva



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163305_tn?1333672171
Yes. taste and smell~ they're interconnected.
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Avatar_f_tn
I am five weeks off meds, and still have that problem, but it is getting better.  I did like everyone else, had them smell me, etc.  I could not get this horrible smell to go away.  But for me it got to where the same odd smell was at kroger and at my mom's house.  It was not just at home.  I was using fabreze every day trying to get rid of the smell.  There are some really strange symptons to these drugs.  You do not need to toss things out! But I did think i was going crazy because no one else could smell anything.  Hopefully it  will not last that long for you, everyone is different.
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1644356_tn?1349786811
I hope this improves to a tolerable level. I am on a trial all oral with Riba and have experienced some olfactory symptoms. The symptoms are not unpleasant though. Throughout treatment every now and them I will "smell" something that is extremely evocative. Memories directly related to smells will flood. Kinda strange but wonderful in a weird way.
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1986676_tn?1329866071
Is there anything that can be done in the meantime to allow
me to tolerate myself and my home?

Does anyone have a home remedy that worked to get past this situation?
Should I by a mask of something?

I guess I could clear out a little area in the basement of something?

Reva
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2061362_tn?1353283118
My sense of smell did change; it increased as it did when I was pregnant. But that has actually gotten better over the last few weeks. Also, My taste changed, no metallic taste, just can't tolerate spicy food too much or food with a lot of seasonings and everything tastes like a giant salt lick.
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Avatar_f_tn
I didnt find anything that helped, it did start to get better after tx though. I am telling you though there for a while I couldn't stand the smell of me lol, I used bleach on everything to get the smell gone. It will get better though like I said before, it did for me.  anne
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190885_tn?1333029491
it took me 6 weeks post to get rid of the smelling stuff...but my taste is still different...i can't take spices at all...how about a ionizer?...i think if i was tx again i would look into one....good luck....billy
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Avatar_m_tn
I get the smell & taste of chemical solvent....usually gone by morning...
It's not as strong for me now.....First few shots were very strong.....I always have that little reminder when I take my shot, which is leading to S-10 this week.

I've also had problems for decades with my sense of smell.
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Avatar_m_tn
My wife had this thing about Clorox, partly because she is severely allergic to molds. All food preparation surfaces, bathrooms, floors and who knows what else gets the treatment. Prior to therapy, this didn't bother me at all and I actually liked the smell. Now, I gag and have to stay outside for an hour or so before I dare return inside.  

We won't even mention the kids' rooms.  I don't go near them.
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1986676_tn?1329866071
Who makes an ionizer?
Where do I start the search and  are they real expensive?
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1986676_tn?1329866071
It sort of sounds like I'm not going to be passing the sniff test for the next year. This tx wears you down with all the little sx. It's just one after another.
I know I'm blessed that I have not had any really awful things happen, but
with even a little piled on day after day it does take a toll.

First, the skin on my hands fell off, now it's my feet, then my ANC  and now
hyper-sensitive to scents....

I sure hope medical science finds a better cure t

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766573_tn?1365170066
"Also, I do believe the meds leach from my skin because my clothes now
smell strange to me. "
___________________________________
I believe this is the case as well. I take a medication called Spironolactone and I can smell it on me and my hair when I take a shower. The smell oozes over my face with the water and I know the smell is me. At first I thought it was my husband because his blood pressure medication makes his hair smell the exact same way.

Still though, I would not tear your house apart until you can get at least one other person to confirm they smell the same thing. You helps to concentrate and really think about the smell and know it on a visceral level. Think about what it reminds you of and how you feel when you smell it. That might enable you to either (a) locate the source or (b) consider the possibility it is indeed a "phantom" smell and perhaps a side effect of one or more of your meds (or whatever).

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1748829_tn?1338040641
I had my boyfriend sear Michael our room several times for what I swore was poop I was like there ha got to be some animal pooping in this room Familia can smell it he did what I asked but swore he couldn't smell it and never found it even though I feel like I can pinpoint where its coming from its never there. And IRS poop smell which s*cks! And he smokes which he does outside now and it used to not really bother me when he came back in but now he is overpowering and sometimes I can't stand to be close to him after he has smoked even if its been a while after his last cigarette I can still smell it and gags me.
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Avatar_f_tn
I can smell better than my dog, still 5 weeks post
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Avatar_m_tn
Too weird! I'm just getting ready to take my 2nd injection on Thursday - haven't even started the Telaprivir yet and am having the same smell aberrations as I'm reading about here ... constantly showering because I think I smell - now I'm smelling something funny in my bathroom/bedroom and thought maybe my toilet was leaking somewhere but can't find anything ... sheesh ... I had heard about the taste changes but not the smell changes ... sooooo glad I happened across this little forum today. I have Stage 3 Liver Disease, lots of scarring but just on edge of cirrhosis, and now am wondering if the aberration comes from the meds or comes from liver function impairment somehow as I remember having the same "smell" issues with pre-cooked meats, etc. over the past year or so.

Anyway - hats off to everyone here for being willing to jump into that unknown to achieve healing - blessings and good labs to all!
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Avatar_m_tn
Too weird! I'm just getting ready to take my 2nd injection on Thursday - haven't even started the Telaprivir yet
---------------------------------------------------------------------

Why have you not started taking the Incivek yet?  Dosing is prsecribed starting all three drugs together?

Will
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Avatar_m_tn
I don't know ... I am just following doctor orders. I had a nurse come out for 2hr training last Thursday when I did the first injection and started the Ribavirin ... but was told I won't be starting the Incivek until week 5. Where did you find out they should all be started together? yikes. :-(
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Avatar_m_tn
Are you sure it is not Victrelis you are starting? This is dosed after the 4 th
week lead-in of Peg /Riba  just before the 5th injection..

Sounds like this might be the case...
Will
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Avatar_m_tn
http://www.accessdata.fda.gov/drugsatfda_docs/label/2011/201917lbl.pdf

http://www.merck.com/product/usa/pi_circulars/v/victrelis/victrelis_pi.pdf
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Avatar_m_tn
Yes, it IS Victrelis! Sorry, got mixed up - hadn't become part of my regime yet so got the name confused. :-)
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Avatar_m_tn
Good to hear and welcome to the group..
Will
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Avatar_m_tn
Sorry.. I didn't mean to hijack the thread.

Best to you.

..Will
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1986676_tn?1329866071
No problem we're all on this journey together.

Reva
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Avatar_f_tn
  Well, you could try some forms of aromatherapy, although perfumes arent recomended on this treatment.
    I use a disinfectant that is 99% natural, it has the ingredient "thymol" in it, and smells like eucalyptus.
   I havent noticed my body smelling different, but I do like to use this soap and lotion that has natural bees wax in it, which I think smells delicious~
   I dont think mildew would be under your platform, if there is hard wood floors, and no source of a leak there.
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Avatar_m_tn
I take Spirolactone also, Idyllic....I always smell an ammonia-ish odor...I'm told it's in my lil screwed up head/nose/whateva........annoying.
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1986676_tn?1329866071
This is the previous thread that was started some weeks ago.
Maybe there will be something in these comments that will help you.
Hang in there!!!

At least you know you don't have to swallow another one of those "little boats."I've had many send me their stories how really soon after ending Incivek they felt much better.

Also, I was advised to wean myself off the fat and allow my body  to adjust.
I was told not to just go cold turkey.

Reva
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2136167_tn?1374732251
I had the same problems during entire time on Incivek.Eg.constant bad smells comming from my body,bad smells of 2 rooms in house which I could not even enter withoutgagging .I felt sick smelling laundry sheets and coffee.I always loved coffee before but hated taste and smell during Incivek.Now 3 days post Incivek I start enjoying coffee again but I still smell Incivek from my body and house still smells bad.
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