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Finishing Tx- Walking across or diving for the goal line
Good morning , I'll apologize now to anyone that would think this is a wasted thread , but I'm quite interested in this and I think others will find this interesting and possibly helpful.
There is an old addage in football about either crossing the goal line standing up , untethered or diving for the line , crawling and scraping your way across. All though it seems somehow more impressive to walk across , the points count no more or less either way .
There is a unlikely parallel in the treatment of HEP C. I dont know if I just remember the posts from people that had to scrape and crawl across , many actually not making it across at all , more than the posts from members that that walked across , did the dance and spiked the ball. I really dont know how I would search the archives for a question like this and I'm really hoping some of you members that have been here a while might have either personal or anecdotal knowledge of the ratio .
When I started treatment , I somehow had the idea that as the treatment progressed , the sx were going to get better. This this was the thing that I ,my family and friends held on to and said when we didn't know what else to say. This is obviously not the case and I am actually trying to prepair myself mentally for that long crawl.
Nothing is fair and there are no guarantees , but so many of you have been soooo strong through the entire ordeal only to struggle so fiercely at the end . Is there anything you can tell us that might help us deal with it.
There is an old addage in football about either crossing the goal line standing up , untethered or diving for the line , crawling and scraping your way across. All though it seems somehow more impressive to walk across , the points count no more or less either way .
There is a unlikely parallel in the treatment of HEP C. I dont know if I just remember the posts from people that had to scrape and crawl across , many actually not making it across at all , more than the posts from members that that walked across , did the dance and spiked the ball. I really dont know how I would search the archives for a question like this and I'm really hoping some of you members that have been here a while might have either personal or anecdotal knowledge of the ratio .
When I started treatment , I somehow had the idea that as the treatment progressed , the sx were going to get better. This this was the thing that I ,my family and friends held on to and said when we didn't know what else to say. This is obviously not the case and I am actually trying to prepair myself mentally for that long crawl.
Nothing is fair and there are no guarantees , but so many of you have been soooo strong through the entire ordeal only to struggle so fiercely at the end . Is there anything you can tell us that might help us deal with it.
I think it is like a diet. Why are those last 10 pounds the hardest to take off? We are just so ready to be done, and so plumb worn out.
I would liken it to a marathon and not a sprint. After a marathon you see runners collapse, fall down, inch their way after they finish. They are depleted. As I got closer to the end I thought I had a little finishing kick to me, but really I was gassed and even though I thought I broke the tape at speed - I just dragged my sorry butt across the line. Getting to the end is the triumph, doing it standing is not a requirement. This is probably one of the toughest things you'll have to do - style doesn't matter.
I was so naive when I began this journey, that I was SHOCKED to find my body and mind and spirit so hard hit. Thanks to the many kind, knowlegable and supportive folks here, I have much more peace of mind and spirit and have come to realize that the body can get help. I'm also so very grateful to have learned that the tx has a cumulative affect on the body and my only suprise later on down the road will to be that I may be lucky enough to walk, rather than crawl across that line. I am not equipped emotionally for too many more suprises regarding this tx. You have been very kind to me and I pray for you and wish the best for you however you make the goal. Love to you, Lori
The hill gets steeper as time closes on this treatment in my case. I to felt that once I adjusted things would be tolerable. The medicines seem to increase in intensity as they fight the virus. I have 10 weeks remaining and while I know I will make it to the goal line it will probably be an ugly crossing and instant replay may be required to see if I were actually in the game. Brain fog is rolling in hard, not like before but where it is now affecting short term and mid-range memory. Daily work load is difficult especially on heavy phone days where a lot of decisions have to be made. I carry note pads everywhere. I have postems everywhere. I write on my hands to help remember to do something. Your analogy is not a bad one. I tend to want to be alone now and in the quietness. I'm not depressed I simply don't have enough brain cells left to cope with much in the evenings. Daughters will ask me what is wrong and I always tell them to look on the top shelf of the refrigerator. Now, fatigue doesn't break at all until Friday and that is shot day. Saturday after shot has become my best one half of a day. I just tell my family that they don't have a clue how I feel and I don't have the energy or mental capability to explain it. I know they love me and want to understand but just leave me under my rock until it is over. Not everyone has these closing affects and I hope you are not one of them. I wouldn't wish this on someone I truly did not like. Good thing I like you right? Best to you on the trail of misery. Dale
We all struggled to cross that finish line, your not going to be alone on this. Some find it easier then others but just know we can all do it and we will help all those who have fallen cross that line.
Please don't worry about asking a question or opening a thread when needed, that's what the forum is for.
Beagle :)
Please don't worry about asking a question or opening a thread when needed, that's what the forum is for.
Beagle :)
As Mister Beagle says," We all struggled to cross that finish line, your not going to be alone on this."
You won't be alone Tele, we can drag each other across, if necessary! This stuff is so hard, that's why it's great we have each other.
You won't be alone Tele, we can drag each other across, if necessary! This stuff is so hard, that's why it's great we have each other.
morning team
so good to read this post first thing in the morning.it was a message sent straight to the soul.i sniffeled pretty good last night to my sponser about how frustrated i am with the sx.he called me this morning to remind me to remember two things.one is to keep it simple i dont have to be superman and two that my experience with this treatment will be able to help others.good luck to all.
so good to read this post first thing in the morning.it was a message sent straight to the soul.i sniffeled pretty good last night to my sponser about how frustrated i am with the sx.he called me this morning to remind me to remember two things.one is to keep it simple i dont have to be superman and two that my experience with this treatment will be able to help others.good luck to all.
I'm afraid i'm gonna have to be beaten across that line. In my case, like you, it's gotten harder and not easier. Week 25/48 and i swear i don't know how i'm going to do it. so much further to go. hmg is down to 9.8 w/ no rescue drugs. doc reduced my riba by 200mg yesterday and there was a time i would have protested. not now.
the things that keep me going instead of quitting and waiting for something better are my family and storied from brave souls who finished.
the things that keep me going instead of quitting and waiting for something better are my family and storied from brave souls who finished.
Today is a milestone, I will be crawling across the finish line. No certain style, no spiking the ball, just happy it's over with. I came to the conclusion also that as time went on that I would adjust to the poison I was putting in my body to which I did for over 1/2 my tx. Now I feel as if there as been a build up of these meds over time that has me "crawling across the finish line". I would say week 33/48 was when the sides really started taking it's toll on me. Do you think thats when the meds were really attacking this virus?
For all who are fighting to get accross that finish line, do it anyway you have to, grace or spiking the ball, itdoes not mattter, just "git her done"!
My heartfelt luv to all,
Fisheress
For all who are fighting to get accross that finish line, do it anyway you have to, grace or spiking the ball, itdoes not mattter, just "git her done"!
My heartfelt luv to all,
Fisheress
I crawled over the finish line but I had help from all the fine people here. I alway kept the thought in my head that if the others here can go the distance, well, I can also.
<B>Thank you all</b>
Dale. Joke on the way.
<B>Thank you all</b>
Dale. Joke on the way.
To my feeble mind a great post/question. As I am in the middle of week 22 I have really been noticing the acumlative effects of these drugs. mostly memory related/brain fog. Days of clarity are few and far between even writing this is hard.
I wonder though even it gets harder as we get closer to the finish line the same way the closer you get to the bathroom the more you have to pee.
I wonder though even it gets harder as we get closer to the finish line the same way the closer you get to the bathroom the more you have to pee.
I can relate with your post.I have been in tx for 14weeks and was hoping to keep my exercise program going but I just dont have the energy for it and when I force the exercise program in during tx it seeems I pay for it the next day with no energy.I am now trying to work what exercise I can into my daily routine at work.All my best to you and your recovery.
Regarding exercise, it does help. Some days I was feeling so poorly that it was such an effort to drag my butt up off the couch to either walk on my treadmill, or ride my stationary bike. But, I told myself, if I can just do 5 min...., and then once I got started doing it, I'd go, just 5 more min. and so on and so forth. Usually, if I could make it to 1/2 hr., I'd be so exhausted, feeling like I walked to drop. But, it did help with the stiffness and achiness in my joints and muscles. Also, it helps with depression feelings. Since I had a herniated disc last year and my doctor told me to WALK, WALK, WALK, I got a treadmill. Oh yea, and I had a microdiscetomy back surgery, outpatient, last year. I don't want to get back into the bad back pain again. I still have some lingering lower back pain but with the walks, it helps.
Susan
Susan
Dale,
I'm learning that not every post that I come across requires a response from me. Sometimes its more respectful to the person posting to not try and make them feel better and to somehow try and tie ourselves to their misery. This is one of those times.
Good luck crossing the line.
I'm learning that not every post that I come across requires a response from me. Sometimes its more respectful to the person posting to not try and make them feel better and to somehow try and tie ourselves to their misery. This is one of those times.
Good luck crossing the line.
Tracy, why are you not on the rscue drugs? Is there a reason for not taking it or a DR's choice? Procrit had helped me make the trip, without it I never would have been able to do it.
Fisheress, have been looking for you. So glad you are done and trust me my friend, you will start to feel better in a few weeks as I did. My 3 month post tx PCR is 9/12 and at 2 months post I'm feeling alot better. Soon you'll be able to take me for my long awaited walk and maybe a pool party. :) Ruff Ruff
Beagle
Fisheress, have been looking for you. So glad you are done and trust me my friend, you will start to feel better in a few weeks as I did. My 3 month post tx PCR is 9/12 and at 2 months post I'm feeling alot better. Soon you'll be able to take me for my long awaited walk and maybe a pool party. :) Ruff Ruff
Beagle
Finished last Thursday and I agree with you - NOT easy & as I finished I felt like I crossed that line flat on the ground with my fingertips barely touching it.....its over & everyday I feel a little better - that part is GREAT!!
We walk through it as brothers and sisters. Like most families it isn't all roses but we are always bound by blood. We can talk about our siblings but no one else better. Please keep pulling me along my friend. The days are long now. D
That is great how long you have been done with tx. For me it will be 2 months on Sat. :)
Beagle
Beagle
I really believe we can rally together and help you cross the line...I am so early into my treatment, my sx, Thank God have been tolerable, sure I whine now and then but than I read some of your posts and those of others, and just feel grateful that I can do this. Heck, I haven't even lost one hair....which is funny cause before I started treatment I got my haircut REAL short... my husband hates it...We are here to carry you whenever needed.
Love,
Diana
Love,
Diana
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