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Here is the rest, what's missing:
Bilirubin, Direct: 0.1 (RR: or = 8.0. Samples with high S/CO ratios have been shown to repeat as positive using a different methodology 95% of the time or greater. Therefore, additional testing for verification of the result is not recommended.
And of course, again: Hepatitis C Ab: Reactive
Bilirubin, Direct: 0.1 (RR: < = 0.2 mg/dL)
Alkaline Phosphatase: 68 (RR: 33-115 U/L)
AST (SGOT): 34 H (RR: 10-30 U/L)
ALT (SGPT): 50 H (RR: 6-40 U/L)
Bilirubin, Indirect: 0.5 (RR: 0.2-1.2 mg/dL)
-- Jim
The final parts of my second results just said that I was non-reactive for Hep A Ab, Hep B Surface and Hep B Core.
Hepatitis C Ab Signal to Cut-Off: 30.90
With the note: The patient's sample tests reactive with a high S/CO ratio: > or = 8.0. Samples with high S/CO ratios have been shown to repeat as positive using a different methodology 95% of the time or greater. Therefore, additional testing for verification of the result is not recommended.
I wish I could have deleted or edited the above posts so sorry for having to make 5 or so posts to get all my info out.
-- Jim
"The original test read HCV Ab 43.4 High, compared to the normal S/CO ratio of 0-.9."
Does this pertain to the reading I have for: Hepatitis C Ab Signal to Cut-Off: 30.90..etc. above?
What does this mean? I seem lower that they above person, but my S/CO ratio is different. Instead of 0-.9, mine is > or = 8.0. I totally don't know how to read this or what it means.
The question you want to have answered right now is whether or not you are ‘HCV RNA positive”. Let us know how things go for you—
Bill
My diagnosis says: 070.54 - Chronic Hepatitis C without Mention of Hepatic Coma
I have Genotype 3a.
HCV RNA QT: 61800 H (RR: <50 IU/mL)
HCV RNA QT: 4.79 H (RR: <1.7 LogIU/mL)
Tomorrow first thing in the morning I call the hepatology department for my first appointment. I am still waiting for my appointment for an ultrasound.
Hi Bill, thanks for the advice, though I don't know what this result means. But I posted it above. And thanks for the note on collecting my lab results and forming a file. That was great advice.
Thanks for the supportive encouraging words his3707. Ya, I already feel more comfortable on this forum reading other peoples experiences. I have no problem getting a biopsy. So when it comes time, I will have it done. I am trying to gather all my medical records. I know I had a doctor tell me within the last 5 years I did not have any hepatitis whatsoever. So I am again in denial hoping that since I could not have had it long, the damage cannot be that bad. Ya, I am really anxious to know the amount of liver damage.
7summer7, are you ok? Is everything alright?
So would I know if I am acute or chronic stage? If I am acute (again denial and grasping for straws) I could still fight it off, right?
Sad thing is, I have two girls, 13 and 17. They both have to be tested 'cause we have possibly shared toothbrushes and razors.
Well, if there’s a bright spot in all this, you did catch a break with your genotype; GT-3 is quite a bit more responsive to meds than the more predominant Genotype 1. And, there’s a good chance you will only require six months of treatment, versus the 11 months that Genotype 1 patients need.
Regarding chronic vs. acute; the acute stage lasts for six months after exposure; if caught at that point, and promptly treated, it might be easier to manage. The vast majority of us are diagnosed with chronic HCV; neither of them necessarily comes with symptoms, unfortunately.
A biopsy can tell you how much damage, if any, you have sustained; and ultimately, whether or not treatment is urgent at this juncture. If little to no damage, a case can be made to postpone treatment until you can make time for it.
It’s very doubtful that either of your children have acquired HCV from you; household/causal transmission is extremely rare. I was married for nearly twenty years, and presumably infected the entire time. No effort was made to prevent transmission, including the occasional sex during menses; my ex to date doesn’t have HCV, nor do my adult children. If it makes you feel better to confirm this, by all means, have the kids tested.
If you haven’t already, take a look at the following site:
http://janis7hepc.com/
You might begin by clicking on ‘newly diagnosed’ near the top of the page, or by opening “other HCV information’, in the right-hand margin. This has a lot of info on HCV, including description of genotypes, biopsy info, etc.
Go here for more info on the lingo used here:
http://www.medhelp.org/health_pages/Hepatitis/Common-Hepatitis-C-Acronyms/show/3?cid=64
Take care, and stay in touch—
Bill
While I would generally advise for a biopsy first, given your genotype and very low pre-tx viral load I might just jump on the opportunity to blast this away with only 12-16 weeks. I say "jump on it" because viral load has a tendency to go up and down.
The best (and only IMO) person to discuss a shorter treatment course with would be a hepatologist (liver specialist). They can usually be found at your larger teaching hospitals. Your average gastro is just not up on the current studies enough nor on the nuances of treatment and newer protocols. I would also get tested for Insulin Resistance at this point as it's somewhat more common in geno 3's and can be an impediment to being cured. As to the other stuff, no harm in stopping alcohol especially if you're planning on treating although the amount you mention would not alarm my liver specialist. Best prep for treatment in terms of lifestyle would be to get down to your ideal BMI (body mass index). Being overweight is also a negative predictor of SVR.
-- Jim
I'm not telling you to no listen to your doc regarding iron supplementation but personally I would run your iron numbers by a liver specialist (hepatologist) before possibly building up my iron to a level which would end up working to my disadvantage, Did he do an iron store test (ferritin and transferrin sat (TSAT) ) or only serum iron? You really need an iron stores test on this.
Again, you may be one of the very lucky few who can kill this thing in as little as 12 weeks if you act fairly fast and with the right kind of doctor.
-- Jim
best of luck, one foot at a time, one foot in front of the other,, it's easy to get overwhelmed at first..
Pro
jmjm530, I am making an appointment tomorrow with a hepatologist. I am going in on the 28th for my ultrasound. They will be doing the abdomen and liver I guess, two different ultrasounds. Ya, thanks for the reinforcement to get treatment now rather than later. I will work on getting down to my ideal BMI. I am at 179 right now and my ideal BMI is 135. So got a ways to go. But I have become very highly active in the last few months, so hopefully I can make a dent in my overweightness. I will talk to the hepatologist about the iron. I will refrain from taking the iron supplements until I get his/her word.
Summer, I hope you get your answers soon. Please keep letting me know how you are doing. I finally had a breakdown tonight. I am going to have a good cry one night and just get it out. I think tonight would have been the night but after I got home from my walk tonight from the store I sat down and was ready to let it out, but George Lopez was on TV and it was hard to feel bad. :)
Proactive, boy am I glad I found this place. I posted on Facebook looking for support and found out who my true friends were. I had to take all the info down. Not a good place to go looking for support from ignorant fearful people.
How are the side effects from the treatments? Are they really that bad? Is it low dose radiation? Will I lose my hair? I am not sure what to expect. Mostly being tired and depressed is what I am imagining. :(
jmjm530
It sounds like you’re taking the right steps to confront your disease. That d@mn George Lopez sure has bad timing huh? Didn’t he know you had a good cry planned last night :o)?
Treatment side effects vary from person to person; there’s really no way to predict how you’re going to react to the medication in advance. I gather from the folks in this forum that the majority of patients continue to work while on treatment, albeit at a reduced work schedule sometimes. Think working with a hangover, maybe? Sometimes it isn’t too bad, other times, you might want to pull the covers over yourself and sleep. My personal experience was fatigue; It wasn’t that I got really ill; but I could sleep like Rip Van Winkle :o).
Try not to worry too much in advance about your new relationship. Knowing men as well as I do, most of them won’t let a little thing like Hep C get in the way of intimacy. To put it bluntly, we’re a horny lot :o). If it concerns either one of you, a condom might be a good idea; HCV is seldom transmitted sexually, but it apparently *can* happen in rare instances. Other than that, try to enjoy life. I believe we do have a responsibility to make certain that our disease stops with us; you’re doing the right thing by disclosing this to him.
Good luck with the ultra sound scan; they’re pain free and I find them relaxing; kind of like a massage. Do keep in touch, and let us know how things go—
Bill
Also, I will prob have to do a biopsy, right? Even though I hate doctors and am terrified of treatment, I am willing to do what ever it takes to get over this as soon as possible. In the forefront of my mind I am still in denial and just want to run away from it and hope it will just go away on it's own or maybe eating right/exercising/boosting immune system will make my body strong to fight it off on its own. I know, irrational thoughts. And that is why I am trying to fight emotion with logic. Even though I am living in fantasy world with my brain, I am forcing my body/actions to conform to the logical side of this - treatments/tests etc. It is hard thinking one thing and forcing myself to do the opposite. Mind over matter, only this time, I have to put matter over mind! So, as I was saying, even though I am terrified and do not want to do it, I will take the biopsy against all fears. I read here it is not a big deal, but the lady down the street said she had to be put under, and when she woke up someone had to drive her home. She was groggy and out of it, and she was sore for days. I am a single mother, so am worried about how I will get home if that is the case! So many things people take for granted when they have family or a significant others or close friends/church. I have none of the above! Just my 13 and 17 year old.
I just got off the phone w/the Gastroenterology/Hepatology department. The soonest appointment they have for me is July 22nd at 9:30am. That's two months from now!! Geez. I guess that gives me time to work on my health/weight before talking about treatments. I just want to get all the tests in and start talking about treatment so I can get on w/my life! D:
Ya, about the guy...I am scared to even kiss him! I feel so tainted! I just feel dirty and even if the chances are rare to pass it to him I am terrified that we may be one of those rare instances, then how would I feel? We'll see how he reacts. We only met two weeks ago, so I don't expect that he should be obligated to wait it out or stick around to help me. It all happened so fast with him. It's funny cause he told me I reminded him of a movie character that was so bubbly and outgoing! And this girl loved him so much! But he gently declined her love and pursuaded her to love someone else. Even though he himself loved her in return so deeply, but never told anyone! Turned out that this bubbly guy was just protecting the girl he loved from the pain of falling in love with him cause he had a terminal illness! The girl married the other guy, and the bubbly guy died! But the couple had fallen deeply in love and were grateful for their friends sacrifice. God this breaks my heart!! He just thought I reminded him of the bubbly guy because of my energetic enthusiasm, he has no idea that I'm sick. What a funny coincedence. Not that I'm gonna die, but that we like each other a lot and I feel like I really shouldn't be involved with him in light of this ****. I just feel bad about myself. Like I have poison for blood. :(
The nerve of that guy!
It's very sad but a lesson unfortunately most of us did learn too. But you found the right place and are asking all the right questions and things - you should feel great about that! :)
Most of us were pretty dazed too...it's step one in a pretty long step of steps. Everything seems to go pretty slowly after the initial positive diagnosis. I wanted to start immediately and was really annoyed by all of the waiting involved. It's one of the things that we learn in here big time. Always waiting on some test result even after we are cured........still waiting.
This WAS my support group. 100%. My parents love me but they coudln't really understand what I was going through. Same as my kids and friends. I mean they WANT to but they just can't.
In here you'll find people who have been through exactly everything you're probably going to go through. When you want to cry you come in and cry and even the GUYS understand and will support you - I never EVER knew how wonderful men could really be until I joinned this forum (my husband wasn't so much and now he's dead).
keep asking every question you have and learning all you can. THAT is the best thing you can do for yourself to help you improve the odds - lots of doctors haven't yet learned all the new study data that is out there but you can believe the "team" in here has!
Good luck with everything!
Thats all 4 now. Now to wait...
Thanks so much for your supportive words!! I think more than anything I am angry and mad about this too. I tested two years ago n when they told me I didn't have hep C (or anything else) I remember saying wow, i'm so lucky! (i'm sure i tested before cause of my history during my pregnancies). but just that relief that I had a few years of wreckless behavior and was just luckier than anything that I never got anything. I have been living such a clean life for 18 years. Everything fell apart last year. N now this on top of it! N sad thing is, I don't do anything that would put me in risk factor!! What r the chances!! N now I met such a wonderful man! The bad luck just never seems to end! I decided not to tell him at this point. We are new in our relationship and still enjoying the fireworks. I am going to wait until our relationship matures and we grow closer so that when I tell him, it is coming from someone he cares deeply for and will have more understanding and compassion. Right now, I don't want to put any drama or bad news out there. It might be too much too early. we are DEF using protection!! But at some point, I would like to not have to use barrier methods so when the guy administering my ultrasound said that if it's not that bad, they might not even worry about treating it, i told him first of all, i don't care how good or bad it is, i want it gone, and secondly, i would like to enjoy an intimate relationship with my partner and not have to worry about passing it. I don't know where i will be in a year, or two, or ten. But when I first got diagnosed, i didn't want to jump right into treatment. I wanted to wait n put it off. But now, after meeting someone, and being in this state, i now believe that it is best to get it over with and out of the way so I can have a normal life cause u never know where life will take u n if u don't take care of urself now and put it off for later, it might be more of a problem then cause u never know what life is gonna throw at u. I didn't plan on meeting anyone. So that's an example. I wasn't taking care of myself as a priority. just put it off. I don't know what I want 2 say, just mumbling I guess. but just want to take the bull by the horns and take care of it n get it over with so I don't have to worry about it and let it be an obstacle in any area of my life..I shouldn't be typing so early in the morning. I guess in a way i'm just pouring my heart out cause all day i push it down n deal w/everything else going on, n sometimes i dwell on this but have no one to talk to cause no one understands...except u guys/gals of course. I just keep feeling like "why me"? Just always nothing but really bad luck follows me, n not like simple things like misplacing my keys, but usually big unbelievable stuff...They say what doesn't kill you makes u stronger, but i'm tired of having to be strong all the time...but have no choice. Thanks u guys/gals 4 listening..
But can u tell from my test levels n ultrasound results if it is possible that this is something that I just fairly recently acquired? Still trying to piece it together, n I will admit, still having false hopes that if it is recently acquired, maybe I will fall into that small percentile that fights it off by itself...N when I am done w/treatments, am I cured? or is there risk of it coming back?
to Riba and interferon than Gt 1. Also, women usually have an easier time with
treatment than men. Estrogen is a natural defense. If I were you, I would go through
treatment. I would want to slay this dragon. But that is my opinion only.
Good luck to you. I wish you well.