The nurse just called me and said I'm Genotype 1 (wouldn't tell me a or b). she just said to follow up with my GI again and he'd give me further details.
Is there any difference in a/b when it comes to treatment or the severity/aggressiveness of the virus?
My viral load in January was 371,000 - how quick can this change? I got another VL test done but havn't got the results back. I'm just wondering if it can multiply or decrease drastically in just one month (not being on tx).
I guess the next step is the biopsy - I have really bad health anxiety, so hopefully they give me some drugs or I may have a panic attack.. lol - The thought of them tugging on my liver... uggghhh... makes me want to puke.
Question about tx: Is it possible to work out (heavy weights) while on tx? I work out of my house so I always need to work out to stay in shape / keep muscle. I heard it makes you really fatigued so if it's healthy - i'll just do what I can handle.
I also have really bad heart palpitations - I was wondering if tx can make this worse? Has anyone ever experienced frequent heart palpitations while on the meds?
Hey my friend,,, don't worry, don't worry, don't worry....don't panic..
Just relax and slow down. It is not as bad as your mind may want you to think. Your VL can bounce all over the place and i guess he wants another test just to verify your VL. I only had VL test every 12 weeks. You have very low VL.
Only your DR can tell you if he wants you to get a Biopsy. Which is very easy. They put you to sleep and just take a small peice. Dont let your mind get over run with anxiety. They have many meds they will give you to help.
The treatment was very hard for me i was not even able to work. But everyone is different. One thing you will just have to wait and see. But expect not to hav ethe strength to workout.
Any prior medical problems you have to tell your DR so he knows. It is very important that you follow thorugh with the treatment.
I am a Genotype 1a and was a non-reponder to treatment. Kirk
I forgot with Genotype 1 is the hardest to treat. Most of the people in the USA are Genotype 1 like you and I. But less then 50% of treatment for us is a success.
Remember it is not always as bad as your mind thinks. Once you are a non-respoder like me then you will have some more worry. But right now you just go full steam ahead....HANG IN THERE<<<<<<<<<<<<<<<,,,,,,,,,,Kirk
Great advice Kirk, I am also geno type 1a. relasperser and looking like a non respponder this time.
Normally when you are diagnosed they take a base line, should you treat they will take another one. Kirk is right it can bounce a lot. Then they will do contiued PCRs (viral loads)
Depending on your blood work they may also have you do something called CBCs which count your blood cells, hemo and platelets. The drugs for HCV can really mess with them. They know that though, so that's the good news.
Don't panic, breath and best wishes to you, just take each s tep as it comes to you
Genotype 1 is a 48 week treatment. There has been talk and people have done only 24 weeks . That is if you have a quick response and minimal liver damage. Meaning if you have no detectable virus at four weeks of treatment. I was genotype 1b and i cleared the virus at four weeks of treatment. I made the decision to do all 48 weeks. Before you do treatment ask your doctor for a biopsy. If you have minimal damage you could wait for new drugs to come out in a few years. You have alot of options. The drugs used now can be harsh on the body and mind. Its not always bad either some people have little if any side effects from them. You just don't really know what your going to get. Its a personal choice.
The biopsy isn't nearly as bad as it sounds..........they don't normally put you to sleep but it's the anxiety and being sure it's going to hurt (even though it really doesn't) that made me crazy.
I had both Geno 1 A and also 1 B. Made no difference to me, I treated for 72 weeks and killed them all anyway :)
I don't know if you will feel like doing heavy working out on treatment - most of us find that we are highly lethargic, especially if our hemoglobin drops and we get the hemolytic anemia. Then it's hard to get up just to make it to the bathroom sometimes.
Nobody can tell you though how it will go for you. Every body is different. You could have absolutely no major problems the entire time. Remember what you read in here is a very small select group of people most of who DO have problems and that is why they are here.
Good luck to you. Hang in there and just take one step at a time. It's all you can do and this disease is a big game of hurry up and wait for one thing or another.
By the way - your viral load fluctuates wildly sometimes so it is a good idea to have another test right before you start treatment if you do. By the way - viral load doesn't really mean all that much in regard to your liver = what you need to find out is how your liver enzymes are doing (ALT and AST) and then the biopsy - that will be a good indicator of how quickly you need to treat.
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