Aa
Good Wishes
Due to a bad case of ignorance, I wasn't aware of the process and so did not start tx Friday as anticipated. Hope this post is allowed -- just want to say sorry to "Sindog" for breaking our "date" to start together and hope his first shot was uneventful and he's enjoying the beautiful weather (east coast -- a truly glorious November!). All the best to all.
Thank you for clarifying, when I posted my response, it seemed fairly clear to me.
If I have a motive, it is that posting a lot of that stuff can help lift my/others spirits, which is really needed at times. Things and data can change, and with it, so will the analysis.
No matter how careful I have been here, or in emails, etc., communication by words only is incomplete and can lead to misunderstandings. Thank you for clarifying.
If I have a motive, it is that posting a lot of that stuff can help lift my/others spirits, which is really needed at times. Things and data can change, and with it, so will the analysis.
No matter how careful I have been here, or in emails, etc., communication by words only is incomplete and can lead to misunderstandings. Thank you for clarifying.
I'm glad your first shot went relatively well. I had a sonogram yesterday. Tech told me on the qt after I hounded him that it showed just a touch of fatty liver -- reversible. I guess I come from some hardy stock and will probably die with this rather than of it. I will see the dr. on Friday and decide then, based upon his opinion, whether to tx now or wait for something better to come along. As read in the above posts, I feel that I can afford to wait at this time. I just really want to go back to work in any event.
Actually, I'm in New York. The name is a combo of my two best friends -- dogs, to be exact -- both abused rescues. What's up with your "dog"? Stay well.
Actually, I'm in New York. The name is a combo of my two best friends -- dogs, to be exact -- both abused rescues. What's up with your "dog"? Stay well.
My disability is not HCV related -- although the rheumotologist feels that rheumotoid factor may be present as a result of viral infection and is aggravating the situation -- I am out due to herniated lumbar and cervical disks, a bad case of tennis elbow -- which sounds frivolous, but can be really debilitating. All I know is that none of this stuff is being treated, and I'm anxious to get back to work. After a checkup with my hep dr. and seeing my vl quadruple, I thought that since while I'm home anyway, I'd begin treatment.
Apart from my full-time job, I teach cooking classes for cancer prevention and survival for a non-profit organization. Keeping your food choices low fat and unprocessed -- lots of vegetables, fill up on water with a dash of fresh lemon -- may help your stress eating weight issues. Also -- something I got into the habit of -- breakfast. Sliced bananas in hot oatmeal with a splash of soy milk and a healthful sweetner actually tastes like cake. Hope this helps.
Apart from my full-time job, I teach cooking classes for cancer prevention and survival for a non-profit organization. Keeping your food choices low fat and unprocessed -- lots of vegetables, fill up on water with a dash of fresh lemon -- may help your stress eating weight issues. Also -- something I got into the habit of -- breakfast. Sliced bananas in hot oatmeal with a splash of soy milk and a healthful sweetner actually tastes like cake. Hope this helps.
Carefully wording your statement did not in any way alter your message as I saw it. It did provide defense for you, but the questions about my research and my motives seemed disrespectful to me.
You cheerleaded a post from a lady who obviously is not up to speed on current trials and for all I know, sounds like she is anti-stock market-or at least ignorant of its workings. Company's don't issue press releases to raise money. That comment is so far off I won't even address it.
By cheerleading, you twice applauded the post, at the beginning and end. You did that once before on a thread down below. Having said that I have NEVER questioned your motives, even though I could have-but I won't. Let me be clear here.
It was NOT THE DISSENT, it was the apparent joy as indicated by the cheerleading of the dissent. Very different.
Your "hedges" are very much what might happen in a trial, when a lawyer draws his own conclusion to plant a seed, then the judge strikes it from the record. That's nice and all, but it was still a planted seed.
I have provided detailed information to this forum on several subjects and have provided links based on my own extensive research. That much should be obvious, and therefore makes your questioning quite illogical to me.
Should I be more thick-skinned? Maybe. But I don't come in here to be aggravated either. So I choose not to.
I thank everyone else for the kind words, and I am appreciative of your thoughts.
You cheerleaded a post from a lady who obviously is not up to speed on current trials and for all I know, sounds like she is anti-stock market-or at least ignorant of its workings. Company's don't issue press releases to raise money. That comment is so far off I won't even address it.
By cheerleading, you twice applauded the post, at the beginning and end. You did that once before on a thread down below. Having said that I have NEVER questioned your motives, even though I could have-but I won't. Let me be clear here.
It was NOT THE DISSENT, it was the apparent joy as indicated by the cheerleading of the dissent. Very different.
Your "hedges" are very much what might happen in a trial, when a lawyer draws his own conclusion to plant a seed, then the judge strikes it from the record. That's nice and all, but it was still a planted seed.
I have provided detailed information to this forum on several subjects and have provided links based on my own extensive research. That much should be obvious, and therefore makes your questioning quite illogical to me.
Should I be more thick-skinned? Maybe. But I don't come in here to be aggravated either. So I choose not to.
I thank everyone else for the kind words, and I am appreciative of your thoughts.
Thanks for your pie post. For the last 8 months or so, pre-Tx and during TX, have not had much of an appetite and weight loss continues. Your post reminded me of the pleasures of a healhy appetite and the pleasures of satisfying it. Look forward to that again someday. One more thing to strive for. Thanks for the memory.
I'm glad to hear somebody else made a cherry/peach pie and it was good, I was taking a stab at it and hoping for the best...I can proceed with confidence now! I also like apple/raspberry, apple/pear...
We have a sour cherry, apple, peach and little pear tree that is still pretty small...the cherry tree gave me enough this year for about 5 pies, so juicy too...All self fruitful trees.
Every year I start the day before Thanksgiving and make all the pies, sometimes a carrot cake too...I used to be a baker so that's my first love...I make pumpkin (real pumpkin,not canned), pecan (big fat organic pecans), sweet potato (real), cheesecake, regular apple and then a mixed fruit (apple/cranberry, apple/peach or this time cherry/peach) w/crumbs on top...yum!
Veg you can come on down for the holidays! We got it goin' on! Maybe I'll send you a pie!
Cin
We have a sour cherry, apple, peach and little pear tree that is still pretty small...the cherry tree gave me enough this year for about 5 pies, so juicy too...All self fruitful trees.
Every year I start the day before Thanksgiving and make all the pies, sometimes a carrot cake too...I used to be a baker so that's my first love...I make pumpkin (real pumpkin,not canned), pecan (big fat organic pecans), sweet potato (real), cheesecake, regular apple and then a mixed fruit (apple/cranberry, apple/peach or this time cherry/peach) w/crumbs on top...yum!
Veg you can come on down for the holidays! We got it goin' on! Maybe I'll send you a pie!
Cin
Well, TY Susan, it does take time to understand my way of writing,because I tend to shorten things(see the nicknames?) due to the fear of forgetting my train of thought or because I am hiding at work to post or simply because of laziness. I know what I want to say, I choose the words I think will be effective in conveying it and write. When I read it, it still sounds like what I wanted to say, so it stays.
With you, every time you posted the wait and watch and your regimen, I was scared that some folks who should not wait were choosing to, so I always presented an oppossing comment, I can see how that could be taken as an attack after a while. But you now word things just right that leaves no doubt as to your intentions. And like you, I still don't agree with some of the things you say or how you say them, but you are always consistent.
Couldn't: darn it, I can see how that would look like a cheering post! But rather than reacting, could you have asked what I meant? WE do have to be thick skinned when posting in an open forum and ready for almost anything. You have to have the energy to deal with the feedbacks, that is for sure.
I have no doubt that you are well researched, inquisitive and have reasoned out your choices. The mention of the owning the stock was to go with the fact that the released reports might be all that was accessible to you for reading, not to question your motives. I still don't think that the new drugs can be touted with fanfare as an alternate, with absolutely no ill effects and I will say so. It is not attacking your research and knowledge.
I see how you would think otherwise, though.
There are always people with positive attitudes towards the new drugs and those that tend to be on the cautious side, almost to skepticism. We have to be ready for both.
Yes, you probably have read and research much more than me and most folks, but you know that not every one is going to agree with your conclusions here, just like not everybody in their peer community is going to agree with the researchers you are reading. Knowledge does not make things absolute facts.
With my post, I wanted you to clarify what reports you had accessed to and your points to contradict the message written. At the same time, cheering vegas for presenting an opposing view. That is what this forum used to present, points and counterpoints.
Your input is tremendously appreciated by all, including me. You can question my motives any time. I have been through 2 1/2 yrs of training here and been called many things, like she devil.
This is one of the longest posts I have written, unusual for me, short, to the point, easy to misinterpret is more my style.
I am glad you explained how you saw it, I just wish you would have started there.
With you, every time you posted the wait and watch and your regimen, I was scared that some folks who should not wait were choosing to, so I always presented an oppossing comment, I can see how that could be taken as an attack after a while. But you now word things just right that leaves no doubt as to your intentions. And like you, I still don't agree with some of the things you say or how you say them, but you are always consistent.
Couldn't: darn it, I can see how that would look like a cheering post! But rather than reacting, could you have asked what I meant? WE do have to be thick skinned when posting in an open forum and ready for almost anything. You have to have the energy to deal with the feedbacks, that is for sure.
I have no doubt that you are well researched, inquisitive and have reasoned out your choices. The mention of the owning the stock was to go with the fact that the released reports might be all that was accessible to you for reading, not to question your motives. I still don't think that the new drugs can be touted with fanfare as an alternate, with absolutely no ill effects and I will say so. It is not attacking your research and knowledge.
I see how you would think otherwise, though.
There are always people with positive attitudes towards the new drugs and those that tend to be on the cautious side, almost to skepticism. We have to be ready for both.
Yes, you probably have read and research much more than me and most folks, but you know that not every one is going to agree with your conclusions here, just like not everybody in their peer community is going to agree with the researchers you are reading. Knowledge does not make things absolute facts.
With my post, I wanted you to clarify what reports you had accessed to and your points to contradict the message written. At the same time, cheering vegas for presenting an opposing view. That is what this forum used to present, points and counterpoints.
Your input is tremendously appreciated by all, including me. You can question my motives any time. I have been through 2 1/2 yrs of training here and been called many things, like she devil.
This is one of the longest posts I have written, unusual for me, short, to the point, easy to misinterpret is more my style.
I am glad you explained how you saw it, I just wish you would have started there.
I think you've got the wrong impression about Cuteus. I did, too, when I first began posting here. I was convinced that she was just out to give me a hard time about everything. I've since come to realize that she's geniunely motivated to help folks and provide balance in the wide range of opinions that are disseminated.
I still don't agree with her on a lot of things, but I do value her participation on this board. She's one of the good ones, and so are you. There's room for both of you here. And I know that you'll come to respect and like Cuteus if you just give it time.
Susan
I still don't agree with her on a lot of things, but I do value her participation on this board. She's one of the good ones, and so are you. There's room for both of you here. And I know that you'll come to respect and like Cuteus if you just give it time.
Susan
I am a new member of this web sit and it has been so helpful. I am waiting also and it is killing me I had a sonogram also and got the results. It showed a fatty liver. I am waiting to have my Liver biopsy. I see my MD on the 16th and the biopsy will be scheduled at that time. At what point did you have to go on disability? The other thing is me being overweight. I have read that keeping your weight down is very important. I am trying so hard to loose these 50 extra pounds I am carry around and being stressed out does not help. I am one of those people who will eat when stressed instead of not eating.
Just for a thumbnail - I think you're looking at dosing levels that are being scrapped. They tried 3 levels and two seemed not quite enough to finish the job. I don't think there was a bounce back in the optimally dosed group. More info on the 1 hr webcast available the the Vertex site.
This is a response I just got from the Chair of the Canadian National Hepatitis C Steering Committee regarding this mornings Vertex and others news:
"I know all would love to be able to post that a cure is available tomorrow, but things take time. The Hepatitis C virus is a pretty smart cookie. I'm warmed to see so much research on this virus in many ways. Not only medications directed at killing or controlling the virus, but also quality of life issues. There is so much emphasis on the word treatment that only deals with stopping or controlling the virus. There are so many other issues affecting those impacted with this disease. It ravages many parts of the body, may enhance other autoimmune disorders etc. These also have a place in the "treatment" envelope, but are usually set aside for current interferon combo treatments. Many of the new drugs in development are picked up by readers who often fail to distinguish between a security and exchange release, which is usually enhanced as to seek funding for more research and thus a profit for investors. One has to be careful when reading these releases as they are directed at the security analysts and investors rather than disease group consumers. Hopefully the NS3 inhibitors will show some promise as we have had only interferon in a few different guises, combined with a nuke for the past 10 years or so. There are many working long and often fruitless hours, to seek a cure for this disease. One day soon I hope it will be on our doorstep."
"I know all would love to be able to post that a cure is available tomorrow, but things take time. The Hepatitis C virus is a pretty smart cookie. I'm warmed to see so much research on this virus in many ways. Not only medications directed at killing or controlling the virus, but also quality of life issues. There is so much emphasis on the word treatment that only deals with stopping or controlling the virus. There are so many other issues affecting those impacted with this disease. It ravages many parts of the body, may enhance other autoimmune disorders etc. These also have a place in the "treatment" envelope, but are usually set aside for current interferon combo treatments. Many of the new drugs in development are picked up by readers who often fail to distinguish between a security and exchange release, which is usually enhanced as to seek funding for more research and thus a profit for investors. One has to be careful when reading these releases as they are directed at the security analysts and investors rather than disease group consumers. Hopefully the NS3 inhibitors will show some promise as we have had only interferon in a few different guises, combined with a nuke for the past 10 years or so. There are many working long and often fruitless hours, to seek a cure for this disease. One day soon I hope it will be on our doorstep."
good post! I have a feeling that couldn't think of a nickname is reading the releases for the investors only, I might be wrong. let's wait and see if he comes in to clarify. I know he owns stock in their market. I think that the reality might be different than the promotional articles.
good one!
good one!
I would differ with the author of that statement in this respect: Yes, news releases are for investors and analysts, but these companies are very well aware of the fact that those with HCV are reading them, and that includes SEC filings. SEC filings are not really an opportunity to ask for cash, per se, they are about telling investors about their current business AND THEIR RISKS. Not disclosing those risks subjects publicly traded companies to lawsuits, and Dewey Cheatam and Howe have offices set up around the world.
Yes, PR firms do try to spin things, but some things can't be spun. For example, 4.4 logs in 2 weeks (VRTX), 2.06 logs in 2 weeks (SGP), 1.4 logs in 2 weeks (VPHM). Looking at stock reactions to these numbers contained in releases, VRTX has tripled since April, SGP is going sideways, and VPHM fell on the news. We know what VRTX is doing, SGP has said little, and VPHM is advancing it to the next stage, based on what they consider to be data good enough to do so. I don't know that I agree, and maybe the market didn't either.
I think that many with this virus do much research, and are aware of things that the average investor is not. If that is the case, as it is with me, then press releases are more useful to me than an average investor who doesn't understand the significance of a 4.4 log drop in 2 weeks. Putting out a PR is a good way of making it easier for us to learn more, and do more research.
Yes, PR firms do try to spin things, but some things can't be spun. For example, 4.4 logs in 2 weeks (VRTX), 2.06 logs in 2 weeks (SGP), 1.4 logs in 2 weeks (VPHM). Looking at stock reactions to these numbers contained in releases, VRTX has tripled since April, SGP is going sideways, and VPHM fell on the news. We know what VRTX is doing, SGP has said little, and VPHM is advancing it to the next stage, based on what they consider to be data good enough to do so. I don't know that I agree, and maybe the market didn't either.
I think that many with this virus do much research, and are aware of things that the average investor is not. If that is the case, as it is with me, then press releases are more useful to me than an average investor who doesn't understand the significance of a 4.4 log drop in 2 weeks. Putting out a PR is a good way of making it easier for us to learn more, and do more research.
If my memory serves me (and it's not doing a very good job these days :) ) wasn't this the same person who projected 7-10 years for protease inhibitors to hit the ground running while most doctors here -- not investors -- are projecting half that time?
I think with new drugs that show great promise like Vertex, it's important not to overract either way. On one hand, there are no guarantees the drug will pan out. But on the other hand, not to factor in the current trials in today's treatment decisions also doesn't make sense. We'll all know more by the 2nd quarter of 2006 when SVR data starts rolling in.
-- Jim
I think with new drugs that show great promise like Vertex, it's important not to overract either way. On one hand, there are no guarantees the drug will pan out. But on the other hand, not to factor in the current trials in today's treatment decisions also doesn't make sense. We'll all know more by the 2nd quarter of 2006 when SVR data starts rolling in.
-- Jim
I have taken offense to some of your comments to me before, and I take great offense to this one. You have no idea how much research I have done, and how many I have talked to.
I have read abstracts. I have PAID MONEY to buy research reports that I guarantee no one in here has read, written by hepatologists. I have read all PR's and even SEC filings, I have listened to conference calls, where questions are quite detailed. I have asked them to company's myself, and talked to doctors. I have followed this area for 5 years, especially VRTX and VX-950.
When you like to throw cold water on my posts, I don't come back at you, realizing that you have not had any need to research as much as I have as you are clear. You doubt me, fine, but verify things for yourself. I don't need to come in here and defend myself.
Oh, yeah, I own the stock, and it based on research I have done, not press releases. I believe in full disclosure, not realizing it would open me up to criticism.
I have read abstracts. I have PAID MONEY to buy research reports that I guarantee no one in here has read, written by hepatologists. I have read all PR's and even SEC filings, I have listened to conference calls, where questions are quite detailed. I have asked them to company's myself, and talked to doctors. I have followed this area for 5 years, especially VRTX and VX-950.
When you like to throw cold water on my posts, I don't come back at you, realizing that you have not had any need to research as much as I have as you are clear. You doubt me, fine, but verify things for yourself. I don't need to come in here and defend myself.
Oh, yeah, I own the stock, and it based on research I have done, not press releases. I believe in full disclosure, not realizing it would open me up to criticism.
I am done here.
I wish those who are suffering well, and that a cure may soon be at hand. I thank everyone for support that has been given to me as well.
I wish those who are suffering well, and that a cure may soon be at hand. I thank everyone for support that has been given to me as well.
If you choose to leave the board, it will be a huge loss for many here. Your posts are always well researched, balanced, looked forward to and appreciated by nearly all, even if there is a chronic dissenter or two with alternate agendas. Having said that, should you choose to discontinue posting, that's obviously your priviledge.
There are some here who's behavior is unexplainable. When I realized that simple truth, it made some issues much easier for me to deal with. Maybe you'll find that helpful as well - or maybe it's just not worth it.
In any event, I hope we will continue to see you around here - today and in the future. If not, I want to thank you for the effort you have put in to educating and sharing with us. It has really been helpful and a pleasure to have made your acquaintance. Thanks!
There are some here who's behavior is unexplainable. When I realized that simple truth, it made some issues much easier for me to deal with. Maybe you'll find that helpful as well - or maybe it's just not worth it.
In any event, I hope we will continue to see you around here - today and in the future. If not, I want to thank you for the effort you have put in to educating and sharing with us. It has really been helpful and a pleasure to have made your acquaintance. Thanks!
yeah I forgot that you like to "lay low"...I'll go check out the bottom feeders and see if your footsteps are there *smile*
*dip's going snooping*
*dip's going snooping*
http://hivandhepatitis.org/
the latest news from the conference in San Francisco are already out. Please check it out.
the latest news from the conference in San Francisco are already out. Please check it out.
THis forum used to have members post dissenting opinions and comments, and there used to be correction of misinformation without people feeling attacked. This is not a uniform forum and hep c data is not "uniformly" agreed upon in the community. Having to walk on eggshells with every post makes for an unhealthy atmosphere.
I do wish people did not feel like they are being attacked every time someone dissagrees with them. Members that have amassed a wealth of knowledge through years of research are great assets to support forums.
All some folks did, was voiced their opinions that it is too soon to judge the new meds, if that can't be done anymore without it being considered an attack...
to whom it might concern:
there ARE some behaviors that are unexplainable or maybe easily explained as immature and distasteful. making snide comments at every turn definetely qualifies.
I do wish people did not feel like they are being attacked every time someone dissagrees with them. Members that have amassed a wealth of knowledge through years of research are great assets to support forums.
All some folks did, was voiced their opinions that it is too soon to judge the new meds, if that can't be done anymore without it being considered an attack...
to whom it might concern:
there ARE some behaviors that are unexplainable or maybe easily explained as immature and distasteful. making snide comments at every turn definetely qualifies.
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