Great article from Hep C summit

[Tr1gger]

http://www.gastrojournal.org/article/S0016-5085(15)00014-1/pdf

[AWorriedMom]

You are so right about access to all that information. This is the first generation that can find medical information that used to be available only to medical providers. It's not such a deep, dark secret any more.

[Tr1gger]

Sorry mom!  Still getting used to the forum format and paying attention to whom the comments are addressed to.  

Pooh: I agree it is laid out very clearly here.  Unfortunately medical language is daunting for many, as we have been brought up to think that doctors hold the keys to a mystical language we mere mortals,can't possibly understand.  My husband said it very well the other day, that for many going to,the doctor,is,like,taking the car to the mechanic (if you don't know the first thing about cars and aren't interested to find out).  If he tells you you need this that and the other, you dutifully do as told, no questions asked.  That's all fine and dandy when you have a great doctor.  But not everyone has access to Dr Ira Jacobsen, or anything more than the small town GI who might even be a little bit disgusted by people who have most likely by his estimations caught hep c by some foul business (and yes, I personally have experienced this attitude).  

These days we have amazing access to almost all the journals and papers that doctors do, and are able to educate ourselves about our diseases to make sure that what our doctor is telling us is indeed the best advice.  We can be an active part of our healthcare.  No one cares about you as much as you do!  And really, it's not that hard to read at all.

[AWorriedMom]

I did print it. I was answering the post that asked for the title and the journal. Sorry I confused you.

[pooh55811]

I figured out a way to access it. That is why I said it was an excellent article and summary (in my above post).

Thanks for posting about it.

Hopefully more people on the forum will read it so that they will have the correct information concerning new treatments, which drugs to take for their particular situation, how to take the drugs, and what the realistic SVR rates may be.  

If more people read the article, perhaps there would be less misinformation posted on this forum.  In addition, perhaps there would be fewer treatment failures.

[Tr1gger]

You're welcome!  Glad those that could open it enjoyed it.  Mom, I thought you said earlier that you had printed it?  I assumed you had because you even commented on the commentaries, which is exactly the way it is laid out - data sections and then commentary.  I'm not sure what else I can do, I just posted the link as it is, and it seems it works for some.  It might be a browser issue, but I'm not that technical.  Cheers

[Livelife777]

Fabulous article that's up to date and an easy read.
Thanks so much for sharing.
.....Kim

[AWorriedMom]

This is all I see:

Gastroenterology 2015;148:468–479

Hepatitis C
Treatment: The
Data Flood Goes
on—An Update
From the Liver
Meeting 2014

[Bilrac]

Thanks for posting link.  

[pooh55811]

Excellent article and summary.

Thanks for posting the link.

[Tr1gger]

Glad it was enjoyed as much as I enjoyed it.  I think it is very concise and well put together.  

Candoman, the choices for cirrhotics seemed to be riba or longer treatment times (24 wks), with many doctors likely to go for the riba for cost reasons, but both had high SVR rates.

GT3 is looking much better in the future with the release of Gilead's pangenotypic GS-5816, and the awesome BMS daclatasvir that work exceptionally well on this genotype.  I wish they were out approved already, as daclatasvir has been used in Europe for over a year now.

I do think it would be great if more people would take the time to read these types of papers especially if they are seeking treatment as it can help them build a good case for a doctor that may not be up to date or sure about what to do.  It is written for the medically literate however, so I can see how it might be intimidating for some.  Once you arm yourself with the basic terms we hear repeatedly we receive an HCV diagnosis (SVR, viral load etc), these documents are pretty straightforward though.  You can also skim to the part that is relevant to yourself such as your own genotype or liver status.  Lots of good encouraging info!

[can-do-man]

Yes the article is long and your right most won't bother to even glance through it yet they will get on here and repeat things that are not true. I just wish people would take the time and read this stuff instead of giving out incorrect info.

PS I'm sure not talking about you, wishing the best for everyone.

[can-do-man]

I found the article very good. Some takes I got was yes we are pretty much done with that nasty interferon. Genotype 3 has become the hardest to cure. Riba is going to be here for now at least for the hard to treat people. 1a has slightly lower odds then 1b.

Those of us that is cirrhotic has never had better odds but we still need the Riba and I didn't fid anything saying reducing Riba in our situation was a goof ideal. Plus as we know and they mention real world results and trial results are not the same.

Thanks

[Dee1956]

Hey there! Thanks for sharing this.  I was able to open it.  I think it is good information
Thanks again
Dee

[pooh55811]

PS: Perhaps if you copy the title of the article and list the journal, people would be able to find it.

[pooh55811]

I tried to find the article last night but the link does not work for me. I tired it in two different browsers. Perhaps others are having the same problem.

[AWorriedMom]

It is very long Tr1gger and because Medhelp does not allow linking, some people will not look. I just printed it so I can read it at my leisure. I particularly like the way it is laid out with the commentaries. Believe me, I do NOT know or remember much of the things that are discussed in this article. It's nice to have it put into sections with results under all the subheadings. Makes it easier to look up the specifics. So thank you very much for sharing it.

[Tr1gger]

Yes, I thought it was very good mom.  I know you know most of this stuff already, but I thought It would be great for the many people that come asking questions that don't seem to know the first thing.  But, perhaps the reading is too dry for some.

[AWorriedMom]

I just skimmed this article. It looks terrific. Thanks for sharing the link.

[Tr1gger]

No interesting discussion to be had?  This is packed full of good info on all the latest and upcoming treatment protocols for your genotypes from the journal read by your doctors.

[Tr1gger]

No interesting discussion to be had?  This is packed full of good info on all the latest and upcoming treatment protocols for your genotypes.