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135456 tn?1301437624

Haven't visited the board in quite some time but....

was wondering if people here have begun to add Alinia to standard treatment? I did a few years back and it worked. I had treated 3 times before to no avail but the  4th time with Alinia added it worked. just wanted to pass this info along. Ask your docs about it. I was a guinea pig when i tried it and probably one of the first in this country to use it.
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Avatar universal
Thank you!
Several years ago, when Joe was taking Alinia, I asked the Pharmacy Dr. at Romark if he thought  using a probiotic would help the gastro trouble, he didn't think so then.  The Hepatology Researcher that use to frequent Medhelp thought it would be important, and I  went with his recommendation to use probiotics.  He was recommending the Culturelle brand at that time, because it had undergone a lot of research showing it  to make it all the way through your body.  I guess many aren't effective because the digestive juices destroy it.  I'm not a good scientist and only can get the overall outlook but my terminology isn't the best.  
I will be reading over the information you pointed out.  Even if we never use Alinia again, probiotics are important in their own right.
I appreciate your help,
Ev
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Avatar universal
http://clinicaltrials.gov/ct2/show/NCT01135628

i have started from here, then searched all studies on lactobacillus reuteri which looked one of the most potent on gut/immune function and then tried it, it is very expensive here 15euro per box but it worked

i also tried
http://www.galenotech.org/erborist/Enterogermina.pdf
worked too but a little less than reuteri

i tried couple of others that didn t work at all, don t remember the names

i guess that every combo with interferon can benefit from alinia since it henances interferon response.interference with antivirals should be very very unlikly, there are in vitro studies on it, i guess contacting romark directly can help on this


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Avatar universal
I'm relieved for your sake that the financial cost regardless of what they'll be appear to be manageable. Lord knows the challenges are sufficient aside from that. When you have time, on the Alinia costs.  I could look it up at the online pharmacies also, it just occurred to me.  Cost and availability of PI's and DAA's is the big question mark, isn't it.  And we shall see.  
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419309 tn?1326503291
Fortunately if that option were to present, PI added to Alinia and SOC, my husband's current rx coverage is great: as long as the doc writes the script, no cap on cost, just a reasonable co-pay.  I know everyone will not be as lucky, but at least cost is not a deterrent.  

I'll have to dig for the out-of-pocket cost of Alinia tomorrow (buried somewhere in the monstrous pile of rx papers) if no one else pipes up with good info.  What the cost of PIs and DAAs is anyone's guess...
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Avatar universal
You put me in a position where I felt I needed to defend myself by stating I jumped in and inititated the dissusion of mixing Alinia with the use of a DAA and you further commented that no one was suggesting that.  If you interpret me asking why you made that statement and expressing to you that I don't have to seek approval as personal and arguementative then you're right, no further discussion is necessary.
In no way did I see it as a case of right or wrong, agreeing or disagreeing, just a question based on my observation which I felt merited an explanation. Because of your last response I feel exactly the same way, any discussion regarding this matter would be pointless.
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Avatar universal
The bonus that Alinia has over the PI's is perhaps cost.  The PI's will not be cheap and may not be accessible to everyone.  I know when I was getting ready to do SOC, I was starting to look into bringing Alinia in from Mexico as it's an OTC there - ending up in a clinical drug trial instead brought any further efforts to a halt.  If you can get it as an OTC in Mexico, then I'm thinking it's not very expensive here?  If someone could post how much it does cost, I'd appreciate knowing.  Thanks.
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