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Avatar universal

Health dept. registration and use of the info

I was just curious if anyone knows if all states require that doctors report all cases of hep c to the health dept? If so, do you know what they report, how much info, how it is maintained, utilized, etc.? If you move does it follow you? If so we might need a cure letter like SherriTaylor12 got. (I'm not sure why but seems like a good idea).
Thanks,
G
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979080 tn?1323433639
and on top of that we are living in the information age........
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179856 tn?1333547362
I can only remember one person who said they were able to get life insurance, it was a few years after SVR I believe and they did a LOT of work and paid a hefty premium.  I wish I could remember who it was but someone of the oldies might (Candoman you dont forget anything?).

I think when it comes to pre-existing and life insurance we are still in the same boat. Like Pooh said you know they are going to err on the side of caution and since we always will carry the antibodies.........there is their great excuse.
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1815939 tn?1377991799
Insurance is a problem. They do not get the information from the CDC or health dept. but they ask you what diseases you have or have had. If you lie and they find out, the insurance is no good. Sometimes/often they require certain blood tests, including a Hep panel, in order to qualify for the insurance.

That is the main reason that if you already have insurance, do not let it lapse.

I do not know exactly how vigilant the insurance companies were before the AIDS epidemic, but they became very vigilant afterward. At the very beginning of the AIDS epidemic it was pretty easy to get life ins. and long term care ins. Many people with AIDS took out insurance when they suspected they had AIDS but had not yet been diagnosed. The insurance companies eventually drew up much stricter criteria for qualifying and required more tests to rule out diseases before insuring people.

Whether the insurance companies will believe that one is no longer infected even if one has reached SVR, I do not know, but my guess is, they are going to err on the side of caution and treat us as if we are still infected (for insurance purposes).
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Avatar universal
Excellent answer. Thank you.
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979080 tn?1323433639
The first question that comes to my mind is SVR still a pre-existing condition when signing up for a new health insurance policy ?

b
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1815939 tn?1377991799
Here is a link to a list of reportable diseases. All states have a list and the CDC also had a list. Most diseases that are reportable to the state are also reportable to the CDC.

http://www.nlm.nih.gov/medlineplus/ency/article/001929.htm

You can see Hep C is only one of the many, many reportable diseases reportable to both the state and the CDC (mandatory reporting).

"Reporting allows for the collection of statistics that show how often the disease occurs. This helps researchers identify disease trends and track disease outbreaks."

Here is a PDF that gives quite a bit of information:

what http://www.in.gov/isdh/files/hepatitis-c.pdf

Scroll down to page 6 for the reporting aspect of it.

"Does the report follow you?"
The CDC and/or health dept. has the information but the information does not "follow" you like, for instance, if one was a sex offender (in which case there is even a public notification). If you move, no one and no government agency in your new state or county or town is notified that you had or have  Hep C. (This is not the case for active TB, in which case those patients are followed and if they move the new county health dept. is notified so that treatment can be continued and monitored. Active TB cases are closely monitored to be sure the patient is taking the meds until the person is cured.)

A letter is nice but we don't need one in terms of being able to live someplace. No one is going to come to our doors and tell us to move, quarantine us, or lock us up. Our names won't be in the paper and no agency will know about it except the agencies that already know. The CDC is not going to contact the local health dept. and tell them you are in their jurisdiction. The police won't know either.

Hope that helps.




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Avatar universal
Wow. I had no idea about the life insurance. Do you know if the antibodies are clearly show that you are not actively infected or do you have to point it out?
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179856 tn?1333547362
I know they reported me in NY.  I dont think they care much about followup and many people do not view SVR as a cure since it is only guaranteed as a 99% at best 'cure'.  The letter is nice but I dont think that the health department is going to put that in your 'file' or 'update your status'.

Especially after only six months.  I'm not sure but I believe even getting life insurance is still quite a struggle after many years of being SVR since you do always carry the antibodies.

Maybe things have changed but I doubt it.
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