Hearing Loss Tinnitus

[caseymack]

Has anyone else experienced sudden hearing loss and tinnitus (ringing in the ears while on tx. I got it in week 43 of treatment.

Thanks,
Caseymack

[goolia75]

I have tinnitus and I DO recommend using ear plugs for tinnitus when it loud areas. Loud sounds will make your tinnitus get even louder for a few days after exposure. If you're around loud music, TV, movies, a concert, etc, put the ear plugs in. You don't need ear plugs when you're around quiet to medium sounds, but anything that is somewhat loud... wear the plugs. I promise it will help keep your tinnitus to a minimum.

I don't do white noise or anything like that. I just protect my hearing and ignore the tinnitus. Trying to train your brain to ignore it is better than always using maskers. And water noises, like a bath running, shower, or loud rain just makes my tinnitus worse when after the I turn the water off.

I recently had brain surgery for Superior Canal Dehiscence Syndrome. I have chronic high pitched tinnitus, low humming tinnitus, and pulsatile tinnitus. It's aggravating sometimes but it can be managed. You have to protect your hearing or your ears will make you pay a dear price!

[sandspit]

I am a non-responder, and I have had tinnitis for many years prior to being diagnosed.  It goes up and down in volume and was the same all the way thru tx.  I went to many doctors for the T.  It's kinda sad that none of them put Hep C and T together!   In fact I just found this correlation recently on line.

Best treatment for T...... Primordial Sounds!!!.... Rain is GREAT!...  Wind blowing hard!! The one I use daily is listening to surf.   (it doesn't have to be big to make the right sound)  Fountains and noise makers don't do it for me.  When you get into the habit of letting these sounds return you to calm state of well being, you can start getting there without having to sit on the beach, but I do as often as possible just to keep the memory fresh.

Don't let it get you down!!

[Nomadpixie]

Hi Casymack.....I also get this noise in my case its my heartbeat I can hear.....Its constant and appeared around the 24 week point of tx...I was told it was due to my bloods going so low....But 9 months post tx its still there....My bloods might still be low and I might get them checked soon again...BTW its my Hb I`m talking about.....

I think I also reconise you from another forum....hope you doing ok other than this prob..Chrissyx

[wyntre9]

I had similar noise meltdowns before I moved to the country, 5 months into TX.  Now, there are days when my parrots can practically drive me to parrotcide though I adore the heck out of the,.  Still, the grating high pitched shreik of the quaker is enough to  inspire fantasies of parrot stew.

i spent 20 years as a music teacher (think 100's of kids screaming) without batting an eyelash but the sound of 'human' conversation on certain days at certain hours while on TX makes me feel like ripping the offender's head off.  Explains why I spend a lot of time alone.

The noise thing can drive ya nuts.

wyntre

[albany]

Hi All - I do not think what I am experiencing is tinnitus- but it IS ear realted- and i am in wk 15 of 48 fro genotype 1a- so who knows...maybe someone here can shed some light on WHY noise aggravtes the &*^% outta me, especially 'basey' noise or BIG noise (think wal-mart shopping at xmas)
I have had an off again on again problematic ‘thing’ that happens since July 2007.  This is what it is like, and sorry for the long drawn out explanation.
It happens when I am in a loud area, like driving (traffic sounds) club (music / voices) in car with friend (talking / music or house (dishes water etc)
It happened only if I talk / talk loudly / shout / strain to be heard – I get light-headed, and it affects my eyes too- slightly ‘wonky’ ‘and they vibe’
Again, for example, I cannot hear and talk at same time, or else my vision is affected negatively and or I get light-headed.
Had hearing test, and other then some high low range difficulty, it is ok.  
Is Sept I started Tx for HEP C called Pegatron.  As this “ear nose / eye” thing is prior to TX, I can only assume it is a pre-existing n something.
ALSO have high BP- and when it is high I HEAR the whoosh whoosh in my left ear predominantly.  With all the other unrelated (?)  Things about my left side / I am starting to trip a little.
I have told my family doc about the ear / throat / eyes thing, but he is lost about what it could be and I am waiting for ENT referral.  
One more thing … another unusually things that has happened since my stating Pegetron (Sx or not)( is having unevenly dilated pupils at random times, with no other factors that appear correlated?
Any and all help / direction to further research / reading is appreciated.

Thanks much
Albany

[wyntre9]

What?????

He deliberately punctured your eardrum?

Oh, jeeeeez.

wyn

[MYS]

...well, I wasn't going to mention the time the first ear doctor punctured my ear drum to drip cortisone in it, to clear up the lingering infection, then left me lying on his procedure table and told me to not move for 20 minutes.  When the stuff he used to partially numb the eardrum before he punched a hole in it wore off, it hurt so much I started crying, but was afraid to move - at that point I still thought I'd get all of my hearing back and the tinnitus hadn't started - so I reached into my pocket and got my cell phone and called the front desk of the doctor's office and they had to send a nurse in to sit with me and hold my hand.  If they hadn't sent someone in to be with me, I probably would have called 9-1-1.
Madame Yu See
P.S. - I've had female procedures that were worse than the ear procedure, but I won't go there here.

[wyntre9]

I had almost complete hearing loss in one ear after taking out half the drum with a q-tip about ten years ago.  It was very difficult!  I'm lucky the drum finally grew back 2 years after the initial injury.

While on TX, I've had a couple of whopper ear infections that required scoping and drainage by an ENT.

Knock wood, haven't had that sx for  a couple of months coz it really is miserable.

wyntre

[MYS]

Hi, I think I know you from various Hep C forums.  Well, it is now 11 months since I woke up completely deaf in the left ear, about 4 months into HCV treatment.  I got in to see my doctor the day I woke up with the deafness, and he discovered I had pneumonia, so he put me on antibiotics for that.  I needed 2 courses of antibiotics to get rid of the pneumonia.  
I saw 2 ear doctors to try to get rid of the tinnitus, which started as my hearing gradually came back in that ear.  I regained most of my hearing, just have problems with higher frequencies, can't put the phone on the left, etc.  The second ear doctor said the partial deafness is 'nerve deafness' - nothing can be done about it (no hearing aid) and it will never improve any more than it already has.
The tinnitus is an ongoing problem/annoyance.  It never stops.  Sometimes I get busy doing things and don't think about it for a while, but it never goes away.  
Quite frankly, if I had known that this was going to happen, I wouldn't have done the hepatitis treatment - I think the interferon made me more suceptible to getting the pneumonia and the ear thing - and I would have just taken my chances with liver disease.  The tinnitus really is that much of a problem!!  
I did clear the virus, passed the 6 month post treatment test in September.  And, that was the goal at the time.  But, I don't know if it was worth it.
Madame Yu See

[heardok]

Of course, always protect your hearing when exposed to loud equipment, music or machinery, especially while taking your tx.  Your ears may be more susceptible to noise induced hearing loss while on and for several months after your treatment.  Of course exposure to noise causes exacerbation or initiation of tinnitus in just about everyone.  

[gauf]

Had throughout treatment and it drove me nuts!  1 year post and it is gone.

[jmjm530]

"Heardok" has a good point. And while not to minimize tinnitus -- you should be seen by an ENT -- a large part of management is ones attitude. I've had tinnitus for many years but haven't thought about it at  all for months,  until I read this post. Then, all of a sudden, I became aware of the ringing. What ear plugs may be good for is to protect your ears from loud sounds as you might experience for example at a rock concert, hunting, or riding a snowmobile, etc. Those kind of sounds can cause damage and make the tinnitus worse.

[heardok]

As a doctor of audiology, I don't recommend using earplugs for tinnitus, as they will only magnify the ringing in your head.  The best recommendation to help your brain ignore or reduce the sound of the tinnitus is to avoid silence.  Use a natural sound maker like Homedics (see Bed Bath and Beyond website).  Sounds of babbling brooks, waterfalls, etc, help to avoid the silence with relaxing sounds of nature.  Or you can use your favorite music playing pleasantly in your home or office.  

[purplecat]

here is a link to a thread I posted about my tinnitus. look for purplecat
http://www.medhelp.org/forums/hepatitis/messages/46111.html

I'm on week 41/48 now and still going to the audiologist monthly.  I've had the bad tinnitus throughout treatment.  total hearing loss is rare and most recover after treatment.  I hoping the ringing will subside after treatment ends.  

[caseymack]

Purplecat sounds like you have the same symtoms as I do. Sure hope this
**** clears up. I'll try the earplugs.

Thanks Caseymack

[caseymack]

Thanks for the info. I sure hope it goes away also. Good luck on your treatment.

[GrandmaA]

I get a little tinnitis after every shot on Fri. then it goes away by the following Wed. or Thurs. My hearing is worse now since I'm on 39 weeks tx. I have a 30% hearing loss. I sure hope it goes away after Sept. 7th. I hope your tinnitis isn't very bad. Hearing loss does run in my mother's family and I am 65.