Avatar universal
Help
My sister has stage 4 liver. She is now on meds. for amoinua levels that are to high. She wants to come live with me as she is all alone I love her but what she I expect from her condition for now on. She also has hep c and still drinks occasionally. Now what?
Cancel
11 Answers
Page 1 of 1
4670047 tn?1375734001
Well some one with experience will respond to you. Start looking it up. Stage 4 with hep c. Her liver will only continue to deteriorate. Ask her if she's up for treatment. There's many people on here who tell you how to get free treatment. That's just the start. It's also possible she may need to start with a hepatologist. I didn't look at your profile so don't know where you live.  Good luck.   Kitty
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
Sorry to hear that about your sister, she has cirrhosis and sounds like she is or has started to become decompensated. She needs to stop drinking like yesterday and find a good Hepatologist... What to expect? Things are going to get a lot worse and if she doesn't make some fast changes in her lifestyle  she won't even be considered for a TP... It might already be to late for any treatment... Best of luck to both of you
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
4973930 tn?1361793338
http://www.liverfoundation.org/


good site for information john
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
766573 tn?1365170066
This is really sweet. Is she moving in with you so you can take care of her? I am ashamed to say I would be uneasy with someone who is stage 4 HCV and still drinks even if it is just occasionally.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
Yes, I am hoping when she moves in with me I can get her to stop drinking as she drinks when she is depressed because she lives alone is a widow and has no children.  She is 61.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
She has been told she is not a candid for transplant.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
4670047 tn?1375734001
Do you know if she's compensated or decompensated? If its decompensated why is she not eligible for transplant?? Please think about the drinking. Your a kind soul to let her live with you if it comes to that. But I'm just going to say this, if her health didn't make her stop drinking there's reason to think your not going to be able to. I hope she wants to get better. Possibly your local alonon (sp) would have some suggestions on that. Maybe remind her she's very young! I wish you both good luck!!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
Not sure what compensated or decompensated is. How can I find that out?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
3211536 tn?1359389169
You can love her and help make things easier for her passing if she won't quit.Some people just don't make it!It makes me cry to know that some have suffered so greatly in this life that they never even gave it a chance.She must be terrified .Bless you and you have my prayers!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
4670047 tn?1375734001
I left you a message in your profile site. I'm sorry for your situation!!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
A compensated liver works well and does all of it's important functions.  Although a person may have Cirrhosis (advanced scarring) and Hep C (which may continue to further damage the liver), if the liver is functioning well, then it is compensated.  
A decompensated liver does not work well and is not able to all of it's important functions.  Some physical side effects begin to appear.  The person may have ascites (fluid on their abdomen) and edema (swelling in their feet and legs).  The person may also have varices (bleeding from the esophagus) or internal bleeding (bleeding in the digestive system).  The person may also have Hepatic Encephalopathy due to high ammonia levels (mental confusion, forgetfulness, changes in moods, disorientation).  These are some of the physical signs of decompensation.  Decompensation is also reflected in the person's labwork.
It is likely that the doctor may have said your sister is not a transplant candidate because of her drinking.  If your sister's ammonia levels are high, her liver is decompensated.  Of course, as can-do said, there are various stages of decompensation and it steadily progresses.  There are medications that a hepatologist can prescribe to help manage your sister's symptoms.  It is important for her to reduce sodium in her diet, drink lots of water, eliminate red meat from her diet, eliminate Tylenol, and eliminate any iron supplements.  She should be seen ASAP by a hepatologist.  Hepatologists are usually found in liver transplant centers in large research university medical centers.  A hepatologist is the only type of doctor that can adequately manage your sister's care at this time.
It is likely that her liver is decompensated, which generally means her liver is too ill to be able to handle Hep C treatment at this time.  She will require care from a hepatologist to stabilize her sypmtoms and help prevent further difficult and life threatening symptoms.
As can-do says, she cannot drink alcohol.  
Advocate1955
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Recent Activity
317787 tn?1465993311
Blank
Dee1956 commented on No Cirrhosis of the L...
10 mins ago
707563 tn?1455827280
Blank
Emily_MHModerator Survey link - https://goo.g... Comment
13 hrs ago
3197167 tn?1348972206
Blank
clean_in_ks commented on No Cirrhosis of the L...
14 hrs ago
Blank
Weight Tracker
Track your weight over time
Start Tracking Now
Top Hepatitis Answerers
163305 tn?1333672171
Blank
Rural Mural, CA
1815939 tn?1377995399
Blank
446474 tn?1446351282
Blank
San Francisco, CA
Avatar universal
Blank
317787 tn?1465993311
Blank
DC
1747881 tn?1358189534
Blank
Greeley, CO
Hepatitis C Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1463449675
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Hepatitis Answerers
163305 tn?1333672171
Blank
Rural Mural, CA
1815939 tn?1377995399
Blank
446474 tn?1446351282
Blank
San Francisco, CA
Avatar universal
Blank
317787 tn?1465993311
Blank
DC
1747881 tn?1358189534
Blank
Greeley, CO