Hep C Treatment

[cajunlady]

Don't have much time to post.  Did want to open the thread though.  

I only had mild sides on Sat. after shot #5.  So, far not light headed or weak.  Still watching my hgb wcb.  My nose stopped bleeding finally.  Have to start getting ready for work and kids to school.

Have a great day all,

cajun

[Lizzieblitz]

Thought I would let you know that yes TexMikel did receive a liver transplant on Sat.  So far so good!  Please keep him and his family in your prayers.

[vegas777]

I honestly don't know what's going on with him...Silvia sent me an email saying he was in surgery having his tx, then I go to the delphi forums and there is all kinds of chatter going on there that he was still waiting and not in the hospital, like I said to cutues up above, who knows what is really going on...I guess I shouldn't listen to things unless I absolutoly know for sure what's going on...

Your grandson is adorable, you are going to have a blast with him and I agree with you, red is sexy  hehehe

hugs *dip*

[cuteus]

that is great! so glad and so sad(someone is mourning the loss of a loved one) that he is getting a second chance.  Keep us posted, I don't do delphi much anymore.

[strator]

Hi, I'm sorry, looks like your post got missed.
There's a lot to say about what to expect. I'm not sure if other's here had any problem sleeping on the first shot. I know it usually makes me tired. but everyone is different. Also do you know what your Dad's genotype, grade, stage, and Viral Load are. You might want to out that in a post. There may only be a few posts left in this thread. I'm going to put paste your post in one with more room. So scroll up til you see your name.
Hang in there's a lot of help here even if specific questions don't always have a straightforward  answer.
Don

[Forseegood]

I know, that's so great about Tex Mike! I chat with him on the phone once in awhile, the absolute nicest guy, I have been hoping and praying for him to get a liver, I'm soooo happy!!!!he's suffered so much...his wife and kids are probably worried but elated at the prospect...another guy there got a liver as well, I don't know if you know Gary, he's doing much, much better...things do work out for the best sometimes....

[vegas777]

regarding Mikel, it appears some rumors are flying and there are 3 different stories going around whether he is in the hospital or not...so, I am not sure if the email info I got is accurate, now I am hearing he is in hotel waiting for a new liver, who knows...more delphi drama maybe  lol  sorry bout that..

[cuteus]

too bad you are so far accross the land, girl, or I would drive over and give you a hug, if it didn't make you itch too much.  3-4 days to go for the negative...do go for pain meds though, maybe accupuncture? DO cold or hot compresses help? If you are close to the Pacific, maybe a ride over, on a nice day, can bring some serenity and distraction? Let me know what name you sign on with at skype, ok? I know! you need to come over and feast on canolis! that would do it!
take care, and be good to you, don't torture Ina with so many negative thoughts...

[Mister beagle bailey]

You can find the lotion in any drug store, even Walmart has it that's where I bought it, cheaper. Try to get the green bottle it's stronger. This works great, NY girl got it at Christmas and before that nothing else worked.

  BB

[anise]

What is GOLD BOND - TRIPLE ACTION LOTION?  Is it available in most places?  I have not seen it?

[vegas777]

for those of you out there that know tex mikel and haven't been to delphi lately I thought you may want to know that I got an email this morning saying he's in surgery, they got him a liver..I haven't heard anything else, when I know more I will post it...

[anise]

Nygirl,  thanks for the warm welcome back and advice about the needle injection!  I haven't posted much lately, but suspect I will be posting more since I will be going on treatment.  By the way, did it hurt when you did your first injectiont?  Did you jab fast or just push it in?  Did you inject in your stomach or thigh?

Friole, I did get a package from my doctor.  They gave me a video, I don't have a video player only a CD player.  I asked the doctor for a CD and she said they don't have them.  That is why I went on the pegasys site.

Thank you both for the comfort regarding the sides.  I am thinking the worst, and by that I mean if I will go blind or get diabetes ( which runs in my family).  Yes, I worry about the most complicated sides :)

[cuteus]

20 and counting.

[Mister beagle bailey]

Please don't say you didn't make it, you might be surprised.  How long have you been done with tx?  Is Dobbs Ferry on the NY and Pa. boarder?  I have family in Milford and thought I remembered seeing Dobbs Ferry.

I hope all goes well for you,

  The Beagle

[friole]

When I started on Pegasys my doctor gave me a Pegasys Starter kit which included the video, an am/pm pill box for the Riba, a little travel kit for carrying doses,a Sharps container and some other things.  You could ask your doctor if he has those.

I watched that video and felt so confident that I told the doctor's nurse I thought I could skip her lesson on injecting.  Lo and behold, I had a green pharmacist who couldn't read the prescription and gave me the vials instead of the prefills.  Now that was a true learning nightmare.  Now I can do it during a commercial (week 29).

We all worry about the sx and which ones we will have.  I cannot believe the range and difference in how this tx affects each person.  Truth is, you just won't know until you start.  You gearup for the worst, then perhaps you will find out it is not so bad.

[can-do-man]

I got a five spot betting on 21.

[cuteus]

no bet, you have a sure win.

[jmjm530]

Sorry about your feeling miserable.

I think it's human nature to feel "you didn't make it" when stopping tx, especially given your long tx history plus the fact you're not feeling well. However, I don't believe I've ever heard of a correlation between viral load and end of treatment symtomology.

Everyone reacts differently to drug withdrawal -- physically and mentally -- and hopefully that's all it is. Some report feeling miserable for a year or even longer after stopping.

We may have different opinions as to the correct treatment length, but given your extension, I have really no doubt you made it.

Here's to your SVR! You certainly deserve it.

-- Jim

[NYgirl]

Hey where have you guys been lately too!  Unless I'm whacked out (which is probable) I haven't seen either of you around~!

this is great so many people posting again!

Anise - I was PETRIFIED about having to do the shots myself.  I came on here begging for advice and comfort I really didn't think I could do it.  Now, 20 weeks later it's just no big deal and I'm actually PROUD that I can do it in some sick way!

After the first shot you will see that it's really not that hard to do.  The best advice I can give you is close your eyes, count to three and jab! Once it's in it's no big deal...it's getting over that initial paranoia!


And don't waste time thinking about the sides - don't plan on your life being any different EXCEPT make sure now you pamper yourself MUCH MORE Than you ever did before...you DESERVE IT.  Ask anybody...I've declared day after shot day "rest day" and I sit on the bed with the remote and eat ice cream and take care of MYSELF (of course while taking care of the kids) but I make a point to REST REST REST as much as I can. It makes such a huge difference!

[jaroman]

You have made it, you have. Now you just have to get thru the drug withdrawals. Not quite fair, is it? Stay with us and give us the great news.

[Tselere]

Hi Everyone,
My Dad start his first tx this friday. I don't know if this is common or not after his first shot he didn't sleep at all. I am worried could you please give me some advice. also what to expect.please

Thank you

[jaroman]

Do you have a rheumatologist/immunologist? How are the docs monitoring your autoimmune problems?
I wish you werent suffering so terribly much.

[Forseegood]

Gee Ina, all I can do is hope and pray that you begin to feel relief soon...I have talked to so many that felt terrible post tx, and they were convinced that it would not go away, pain has a way of convincing you more than anything else can...and after a time, the sides did go away and they were relieved...even if you don't clear, and it's not clear to me exactly what is going on there, I know you have helped your liver...do you have access to a pain clinic? or stronger meds? please let us know what is going on with you, wish you the best....

I know a guy from Janis who had a rather severe case of mental impairment from tx...he didn't come on the boards because he could hardly think to type...this went on for 3 years, he said the only way he got through it is going to the woods and meditating among the trees, etc. He went on disability...he was pretty much convinced that he had incurred permanent brain damage...then after 3 years he started getting clearer and clearer and now he is fine...I just think that every one is different and people can get some bad post sides, but they usually clear up mostly sooner than later...I wish this for you.....

[anise]

Oh boy....that doesn't sound like fun having residual side effects last that long!  I have one friend who said not to go on the treatment because he still feels bad after a year.  Hopefully, this will not happen to me, as that is one of my fears.  

Eisbein, I am so sorry you are going through that much pain.  Like Forseegood said, can you contact a doctor to have them help you out.  It isn't fair that anyone should go through that much torture.  You deserve much better than that.

[Mister beagle bailey]

Ina,

I'm so sorry your going through this, like anise and forseegood said is there a Dr. you can call that will help you, or another Dr. that you can see.

About the rash-- here's something that has helped many here with their riba rash and myself, it's GOLD BOND - TRIPLE ACTION LOTION--the yellow bottle is regular strength and then there's the green bottle which is extra strenght, that's the one I use.  Put it on after you shower, when you go to bed, when ever you need it, in a few days you'll see a big differents in the rash.  I hope this helps.  

Let us know how you are doing,

  BB