Hep C and Fibromyalgia together?

[saswalis]

I am wondering if any of you having Hep C and Fibromyalgia both.... have gone through treatment for Hep C, and as a result have noticed feeling fewer fibromyalgia symptoms?

I have been feeling so tired for the last four years.  I am wondering and hoping that maybe  the fibro will go away if I can get treatment.

thanks for your replies.....Alice

[saswalis]

Dear Sovaldi13Newbie - thanks for your reply.  You give me a little hope.  I have been pretty down.  It is difficult to wait for information from blood tests.   I guess I will know something more in about two weeks or so.  thanks. I hope you will be virus free.  My doctor said that  the new treatments that came out recently are truly a medical revolution...he said it was the biggest news of the year.  So for me that is a positive because many people will be healthy!

[saswalis]

thanks for your answer.  I  still don't know if I have the virus in a "chronic" infection.  Waiting for results.   I don't know what to hope for exactly...because who wants hep C.  It is something I can't talk about with people.   But if treatment would make my other symptoms go away I would be happy.  Hope you are well.   alice

[Sovaldi13Newbie]

This is just an opinion from my own hepatologist (though she runs the liver center of a major hospital) but she told me that often women will be more symptomatic with hep c than men, generally speaking. Because of hormonal factors and the liver is the general of the hormone regulating organs. And that these symptoms can result from an immune response our bodies are launching against the virus. Bad news is that we can be more symptomatic (just generally speaking though, there are plenty of guys who manifest symptoms of Hep c, as well...Even if your liver damage isn't that advanced...This is just against the virus itself in the bloodstream. And yes, in all that I have read and read on boards like this, many immune symptoms can resolve once the virus is eradicated. That's my sincere hope as well, as I have one more week to go on S& O.

The good news is that sometimes a gnarly immune response *could* be protecting the liver in some cases. Perhaps why many report no Hep c symptoms, at all...yet they get a more progressive form of the disease, little immune response. This plays out differently on everyone. This is what my doctor told me. There are other opinions, as well. They really don't know everything there is to know about this disease, I'm just so very glad that they are coming out with much better drugs to eradicate it. I wish SVR for all!!!!

[truredhead]

Alice, Yes I have fibro and hep c. I was dx first with fibro and when they was trying to find out what was wrong they did a hep c and sure enough I was postitive, So I have disablility for fibro, arthritis, and hep c. You know  they say sometimes Hep c can trigger fibromyalgia when you start feeling symptoms. I have wondered if it maybe was just hep c, but I have so many of the things associated with fibro. Muscle aches, foggy mind, IBS, and no energy, and flares. I am waiting now to treat. I took the Q80 blood test for olysio but have not heard back yet. I am so hoping I will lose alot of my symptoms that may be fibro. I am hoping it is just the stinking hep c. I have had to have it for a least 20 yrs. So you have not treated, right?