Hep c

Thank you everyone for the support, yes I know these forums can get a bit clicky, and newcomers are sometimes seen as a threat.  I don't answer to difficult people, because I do not feel a need to prove anything, all I know is what works for me and what doesn't.  The war between pharmaceuticals and alternative can get as nasty as differences of religion. There's no reason why people need to be nasty with one another, in dealing with this stuff, it is all just differences of opinions, but I also understand that when you have liver problems, you may also have emotional problems.  Thank you for the referral for Dr. Zhang, I will check him out, I am fighting for my life just like all the rest of you.  
Love to all, Susan

[meki]

Susan - the only problem most folks have is the promotion of alternative care...

Promotion of alternative care can be very dangerous to some of the folks here.... Who are looking for hope...

And when that hope crashes down - all you have left are cinders....

If treatment doesn't work for you --- then by all means try alternative ways to maintain and keep your body healthy for as long as humanly possible.

But currently the only thing that is PROVEN to work --- that has been proven to provide relief from the HCV virus is the current SOC....

Hopefully some day there will be an alternative treatment that actually works.

I sincerely hope so.

Cause there are a lot of folks who are non-responders or just can't take the current SOC.

But promoting or shouting out alternative cures to the forum --- well it can be seen as dangerous --- MEDICALLY --- especially to newbies who are terrified in the first place...

It's only an option to help prolong the life of the liver --- and in some cases - some of the alternative treatments that are available can kill folks...

So we're all very touchy about some products.

This is not to say alternative medicine might not find a cure --- it's just to say --- there hasn't been ONE --- any of them --- to be PROVEN in clinical studies to eradicate and kill the virus and stop it from mutating and continuing to damage the liver.

Much love and hugs to everyone.

Meki

[Trinity4]

On one of my previous posts I spelled it clicky as well but I knew the correct spelling, just trying to get down on the same level with Susan.  JD, no amount of words or advise is going crack that nut.  Too hard.
Trin

[jdwithhcv]

you're so right
jd

[rita863]

Susan,

You have posted three or four times the same question and rec'd the same answers!



This forum is filled with people who want to help anyone in need!  new comers are not seen as a threat, and there are no clicks that i have experienced and i am fairly new here.  with that being said,

i think what the others where trying to tell you is that if there were alternative treatments, dont you think  people who have treated 3, 4 5  and 8 times would have tried them if they offered anything!  

We do not want to spend our life on interferon and riba and whatever other drug may come along, but some of us have no choice but to keep trying treatment with the meds that are available.

I hope that you find a treatment that brings you SVR.

This forum will always be here to answer any questions that you may have, regarding tX, sides etc.  We only want to help those who want help.

If your so bent on getting this alternative treatment then go for it! But stop asking us what we think, you already know!

But dont judge us, because you dont know us!

good luck to you

peace
rita

[Marcia2202]

I am sitting and reflecting about this kind of behavior. Here we are serious, honest and trying to be helpful. Obviously some ppl do not appreciate honesty. Most of us do not have much energy to spare, especially all you people on tx who I deeply admire. Then, trying to be helpful, we end up getting involved in writing the same freakin' sh1t over and over on 5 different posts. Sometimes I wonder, if the people who instigate these kind of threads are sitting in their chairs laughing their heads off after having insulted us.

Maybe these are ghosts coming back in different disguises...

This is the second time in the last two weeks we have something like this happen and calling us a click and not a clique... When I come to think of it, the same spelling was used last time.... Hmmm, could it be the same person????

Even if we were a clique, I would definitely be proud to be part of it! The elite heppers clique, every one feeling hep is welcome to join. Don't need to be hip, just be hep!

Love ya all,

Marcia

[Texas714]

I don't know anything about alternative meds.  I know it will be scary for me too if the meds don't work out for me.   From reading here I think there are some people that do use vitamens, herbs, and diet to help themselves.  You might find some useful info/tips from them.  Good Luck to you...I hope you find something that works for you and I hope there will be new meds for all of us soon.

[jdwithhcv]

I also understand that when you have liver problems, you may also have emotional problems.
-------------------------------------------------------------------------
WHAT???

Your "understanding" is as flawed as your spelling and vocabulary.

[Trinity4]

I understand where you are coming from.  It's like surfing the internet, we have to pick & choose what is legitimate and what is not.  What works for us and what doesn't.  You know the old saying "choose your battles well."  Not to say everytime I express an opinion I think I'll end up in a battle but as the rhetoric plays out it becomes very obvious
that no matter what is said the point will never be given serious consideration so it's a battle that can never be won.  Henceforth, I try to channel my energy towards helping those that truly want information and guidance.  I'm learning just like everyone else, which is why I appreciate the sound advice from those on this forum.  Keep the good work going, you are helping people more than you know.
Trin  

[Marcia2202]

Thank you for sharing your wise words. And thank you for the kind words directed to me. I wasn't aware of what you said and am humbled. It is ppl like you who lead the way for us and I feel profoundly fortunate to have been embraced so graciously by everyone on this forum.

Marcia

[nygirl7]

Who wants to be in my clicky click clique?  
Jesus I thought I was out of high school many many years ago.

I have a feeling this poster really isn't all that new whatsoever and I'm really sick and tired of being called names after trying repeatedly to be nice and give good advice.

I wonder -

If you don't like the answer then why do you keep asking the same question and promoting the same vehement response all the while insulting those being kind enough to try and give you good sane advice at the same time?  Troll?  Either way I completely cease to care.  

Take all the oxymatrine and herbs you want to.  When you hit stage 4 and cirrhosis maybe then it will all sink in that you are burning bridges with the people who would have tried to help you.

Like you're the only one who ever had hep? I do not give special consideration to those with emotional issues and who promote hostility as you are.

Please.........we've all had this disease and NONE of us have ever been as insulting, rude, self righteous and full of condemnation as you are. Hey wait.....you DO sound really familiar to me after all!

[Marcia2202]

I love the way you wrote that.

Marcia

[Trinity4]

I'll be your Huckleberry!!   Doc Holliday (Val Kilmer) to Wyatt Earp (Kurt Russell) in  Tomestone

[rita863]

lets start a Soroity!!! Phi bet heppers!

[Trinity4]

As long as we don't get hazed.  That was rough 35 years ago!!  Besides, I stay in a haze most of the time anyway!!

NYGirl,

Quoted that scene from Tombsone incorrectly -   Doc Holliday said "I'm your huckleberry to Ringo" just before he was ready to kill him.  LOL

[rita863]

no hazing thats why we have riba!!!!

[gauf]

"Doc, why are you doing this?"

"Wyatt Earp is my friend."

"Hell I got lots of friends."

"........I don't.."

[Trinity4]

I love that movie, absolutely one of the best performances ever by Val.  

[nygirl7]

OH MY GOD WE HAVE A BUNCH OF TOMBSTONE LOVERS? THAT IS LITERALLY ONE OF MY ALL TIME FAVORITE MOVIES IN THE WORLD!

In fact we watched it so many times that my son and I would just sit and recite the dialog as the movie went on because it was so much fun!  hahahahaha I can't believe it!

Johnny Ringo....................ah Michael Biehn when he still had a career and was really cool.  Man the cast in that movie tops just about ANY other one I have EVER seen!  Too many hot men in that movie to even start listing or I'll forget completely everything else that is going on!

"You tell them I'm coming - and Hell's coming with me! " Wyatt Earp to everybody with a red scarf. :)

"Go ahead and skin it! Skin that smoke wagon and see what happens" Wyatt to a very fat Billy Bob Thorton pre Angelina days..... ;)

[rita863]

ok i feel left out i have not seen that so i will have to rent it this weekend, or maybe i did see and i just forgot

[Marcia2202]

Sounds just like me. Might have seen it might have not... I never remember any movie I see, it is really terrible. It has been like this for years now. I am totally clueless.

Marcia

[nygirl7]

Oh Rita you can't have forgotten it because the cast is like: Kurt Russell, Val Kilmer (when he was still young and hot), Bill Paxton, Sam Elliot, Charleton Heston, Jason Priestly, the dark haired guy from Titanic (can't remember his name but the star under Leo), billy Bob Thornton, Terry O'Quinn (from Lost), Powers Boothe - jez and even more I can't think of off the top of my head........................

some kind of serious man candy movie for real!

The only casting person I did NOT like was the woman that they had star in it who's name escapes me...she was just ack to me..............

(or maybe I was just jealous!)

Definitely a rentable watch a ton of times movie classic western!

[jdwithhcv]

Tombstone party at Rita's this weekend.  See ya there!

[rita863]

ok party at my house!!!  Tombstone Man Candy is ok with me...love  Kurt Russell  and Sam Elliott like the others too!!!

[nygirl7]

I used to have SUCH a crush on Michael Biehn (can't believe I didn't list him!) He was so cool as Johnny Ringo - then he went and lost his career somehow and last I saw he was reduced to being in some movie on the Sci-Fi channel.....I couldn't believe it!

And I must have watched Bill Paxton in every movie he's ever been - I used to sort my DVD collection by 'actor' not by title or genre.

And Kurt Russell? Dear Lord that Goldie Hawn did something right in a previous life!

Sam Elliott is one for the AGES - he's been "the" hot cowboy for as long back as I can remember watching cowboy movies!

Need I go on or can I be invited too??????????????????????

[rita863]

deb... you dont ever need an invite!!!!

[Fl_Gator]

throwin a party..

" you're a daisy if you do"

[Isobella]

Whoa...where have I been all day to have missed this post about my favorite movie!  May I please join the party of elite clickin clique huckleberry heppers.  

I love that part where Val Kilmer does that gun slinging thing with the shot glasses.

[Deb_c430]

Wow! glad SOMEONE noticed how elite we are!  I never seen it either Rita
We will need refreshments, Cake, popcycles, all the good stuff.  

Suprchicks always like a good movie and snacks!

Deb

[Deb_c430]

One other thing, all of us were new commers and some point,  we all wanted to be accepted or heard.   Most of realize that the world didn't stop when we entered the picture,  Most of us don't buy the alternative route.    because statistics show us they do not work,  OR ALL OF US WOULD BE ON THEM.

I have always found the best way to make friends is to be a friend.

Most of us are treating now, a few that have svred have stayed to help us, even the us who have treated before, you said you tried inteferon,  this is time three for me and lots of others.

So please Susan,    what you see as a clique, many of us see as a support system.  
which is a 100% NOT selfish based.

Best wishes on your journey

[rita863]

Deb definetely cake and pops, i like ice cream floats, it helps with the sores in my mouth!!!

Ny Deb  Sam elliotti in Mask as Cher's  biker bf ~ love him in that!

[jdwithhcv]

OOOOH, Sam Elliot - good one.

[susan400]

Just to clarify something, this IS a different Susan and NOT Susan400....,  I just don't want there to be any mistake about that!   I'm all for usually M.D. recommended treatments and have found no success with my long history of trying to clear, w/any of the alternatives.   Believe me, once when I was off of treatment, a girl I knew swore up and down, right and left that if I drank this herbal tea that it would 'cure' me of Hep C and that I HAD to drink it fasting to start and then, 3 times a day.  It tasted horrible the first time I ever put it to my lips and I said thanks but no thanks, not interested.  She was mad at me and stopped having anything to do with me.  Another friend told me off on-line because she said that I was wasting my time on doctors and that she had the cure with the Chinese methods.    She quit being a friend, too (her choice) and stopped contacting me on line.  Milk thistle makes me have a flare-up of my otherwise 'mild' asthma, so it's a NO on milk thistle as well.  

Always,

SUSAN400

[charm27]

Sam Elliott now were talkin!!!!!!!! woooooooohoooooooooooo One of my favorites!

[Marcia2202]

Don't worry... We know who you are. You are one of the bravest ppl here on the forum.

Wishing you all the best with your current tx!

God bless,

Marcia

[Fl_Gator]

My dear sister is an alternative meds/treatment guru. She became one because she didn't have health insurance and couldn't afford doctors. She has cured herself of everything from the flu to gallbladder stones and swears by her methods and she looks young (she looks younger than me and she isn't). She is a bit distressed with me about doing this treatment. She believes I can maintain good health with good diet and suppliments and herbs. I also believe that there are many herbal and nutritional products and remedies on the market that can help our bodies heal...but this disease is nothing to mess with. I will use the drugs to kill the virus then after it is gone, I will use the the alternative treatments to bring my body back to good health...Anyone reading these posts should carefully consider what this virus can do and rid yourself of it quickly with methods that work.

Isobella - that is my favorite part of the movie too.

[Deb_c430]

i am saying! Sam E  is wayyyyyyyy nice and that voice, helllooooooooooo!  In road House also, meeeooow!

[Deb_c430]

No worries!  We know who you are, our Susan,   and who the other susan is!  

[mikesimon]

I know who Susan400 is but the other one is a mystery to me. She is rather engaging though. Mike

[Marcia2202]

I totally agree with you. I've always been into herbal, alternative, health food etc. But with this one... I am going the conventional way. As you are, i will will use alternative treatments once I have reached SVR, which I hope fully will.

Marcia

[jdwithhcv]

Yes, we know who Susan252 is.  She has been here before using another name.  The names have changed but the song remains the same.

[Marcia2202]

is she the same as the MT one, who was giving us probs?

[jdwithhcv]

That's the one

[Marcia2202]

I'm sitting here cracking up... I've got tears in my eyes.  So we fell for it again...


It makes me think of this woman I know here in DK. She used to call me almost every day and tell me the same **** over and over again. Always stirring around the same subjects and pointing out the same injustices her family and some ppl had done to her. After a while I realized that she was mentally and emotionally unbalanced. I had to ask her to stay away from me and my family. You want to help them, and then they slowly creep up into your life and your family, if you know what I mean... I couldn't help her, she needed a psychiatrist, but was in denial.

Marcia

[rita863]

Susan 400 we know it wasnt you.....btw hope all is going well for you!

Mike i agree the other susan was rather engaging, i was very slow at work! she etertained me!

and why  do i completely forgot the other one MT?  braingof

now back to sam elliott  ROADHOUSE LOVE IT!!!!!  he is so hot in that!

ok party's on!!!  movie weekend, junk food   come one and come all!!!