Right now I feel like a test subject for my MD. Seriously thinking about going back to the specialty clinic that treated me. Hope someone else comes forward with the same problem or anyone that has beat the fatigue problem.
I completed treatment 6 yrs. ago same problems, severe fatigue, pain, nausea, just plain feel bad . Quit work, 57 trs. 1B nonresponder 46 weeks trmt. only seeing general M.D. for side effects. I haven;t seen a specialist in years. There is nothing for me. I am so glad to hear from someone almost identical. I thought I might be crazy.Please if there are any other like us out there,which I am sure there is. Please post. Sleep is a must.I am so looking for some answers for the severe fatigue,and side effects this many years post trmt.
Have you talked to your Doctor or Hematologist sounds like you need to.