Aa
Hepatitis C and Fatigue
I am doing research into Fatigue and Hepatitis C, I need your input:
1. Is fatigue yoru worst symptom.
2. What do you use or take to help with the fatigue.
3. What is your experience with fatigue.
4. As you know there arent many studies done that supply us with a remedy for fatigue, except the study done on Ondansatron by Piche et al in 2005. Have any of you tried Ondansatron??
I appreciate all your help in this, thanks. The findings will be written up in a report I am writing with a psychologist on the symptoms of hepatitis C. A link will be provided once it is written and published.
Linda
1. Is fatigue yoru worst symptom.
2. What do you use or take to help with the fatigue.
3. What is your experience with fatigue.
4. As you know there arent many studies done that supply us with a remedy for fatigue, except the study done on Ondansatron by Piche et al in 2005. Have any of you tried Ondansatron??
I appreciate all your help in this, thanks. The findings will be written up in a report I am writing with a psychologist on the symptoms of hepatitis C. A link will be provided once it is written and published.
Linda
Thanks for the comments, hopefully more from this forum will add their experience as well.
I have a link for the Ondansetron study by Piche et al, here it is.
Effect of ondansetron, a 5-HT3 receptor antagonist, on fatigue in chronic hepatitis C: a randomised, double blind, placebo controlled study.
http://www.ncbi.nlm.nih.gov/sites/entrez?Db=pubmed&Cmd=
ShowDetailView&TermToSearch=16009690&ordinalpos=39&itool=
EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum
Sorry about the link being so long.
Cheers.
I have a link for the Ondansetron study by Piche et al, here it is.
Effect of ondansetron, a 5-HT3 receptor antagonist, on fatigue in chronic hepatitis C: a randomised, double blind, placebo controlled study.
http://www.ncbi.nlm.nih.gov/sites/entrez?Db=pubmed&Cmd=
ShowDetailView&TermToSearch=16009690&ordinalpos=39&itool=
EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum
Sorry about the link being so long.
Cheers.
I'm post tx now, so things may be different for now on, but here's how I felt as an actively infected person.
1. Yes
2. Lot's of vigorous aerobic exercise at least 3-4 week does absolute wonders, moreso than any pill, herb or supplement hands down (and I've tried a lot of them). Quitting smoking and drinking also makes an incredible improvement. Eating plenty of fresh fruits and vegetables, lean meats, whole grains and drinking plenty of fresh pure water also helps tremendously.
3. Fatigue comes and goes, but it's always there in some capacity. At its worst it would make me fall asleep in the middle of the day (in my 20's and 30's) if I was sitting down somewhere. Or it would just turn me into a walking, meandering zombie with a clouded mind, no sense of purpose or vigor whatsoever (usually just wanted to get home so I could lay down). At its mildest it was barely noticeable, and after intensive exercise it wasn't noticeable at all. But overall, it was a constant wet blanket in my life. Always taking me down a notch, or two or three. Always there, and if it disappeared for any length in time, you knew it would be back soon enough.
4. Never tried Ondansatron (nor do I know what it is).
1. Yes
2. Lot's of vigorous aerobic exercise at least 3-4 week does absolute wonders, moreso than any pill, herb or supplement hands down (and I've tried a lot of them). Quitting smoking and drinking also makes an incredible improvement. Eating plenty of fresh fruits and vegetables, lean meats, whole grains and drinking plenty of fresh pure water also helps tremendously.
3. Fatigue comes and goes, but it's always there in some capacity. At its worst it would make me fall asleep in the middle of the day (in my 20's and 30's) if I was sitting down somewhere. Or it would just turn me into a walking, meandering zombie with a clouded mind, no sense of purpose or vigor whatsoever (usually just wanted to get home so I could lay down). At its mildest it was barely noticeable, and after intensive exercise it wasn't noticeable at all. But overall, it was a constant wet blanket in my life. Always taking me down a notch, or two or three. Always there, and if it disappeared for any length in time, you knew it would be back soon enough.
4. Never tried Ondansatron (nor do I know what it is).
I have had hep c for 30 years, stage 1, never treated. Fatigue is my worst symptom. Recent increase in fatigue is accompanied by anemia (hemoglobin just below 14). Eating lots of meat, avoiding stress and mild activity seem to help a little at times. Never heard of the treatment you mention.
Question for other fatigued heppers not on treatment: are you/have you been anemic?
Question for other fatigued heppers not on treatment: are you/have you been anemic?
1.yes, fatigue was the worst symptom.
2. I have found that exercising on a regular basis, was by far the best way for me to fight fatigue.
(except on treatment)
In my case jogging (endurance training) worked especially well, but of course everybody is different.
3. Fatigue have worsen in the last few years, that's what led me to finally discover Hep infection
Had it stayed at the same level, I would have probably not suspected it.
It's hard to tell something is not "normal" when you are used to being tired for many many years!
4. No
2. I have found that exercising on a regular basis, was by far the best way for me to fight fatigue.
(except on treatment)
In my case jogging (endurance training) worked especially well, but of course everybody is different.
3. Fatigue have worsen in the last few years, that's what led me to finally discover Hep infection
Had it stayed at the same level, I would have probably not suspected it.
It's hard to tell something is not "normal" when you are used to being tired for many many years!
4. No
1. Is fatigue yoru worst symptom.
Yes.
2. What do you use or take to help with the fatigue.
I had some good results with a supplement called Ashwagandha and added Provigil 100mg from my psychiatrist. I have pretty good energy levels for about five hours but then need to rest. A week ago discovered my carnitine levels were low so add acetyl l-carnitine and that too has boosted my energy level a bit.
3. What is your experience with fatigue. During treatment I had about 6 or 7 hours of energy then needed to sleep 2 hours. My worse was this past winter. It would have been a year and a half after treatment and I was sleeping 15 hours straight. I wasnt waking up, eating breakfast then sleeping NO. 15 hours straight for about 2.5 months. Currently, without Provigil, I might have 3 hours of energy after waking up. With Provigil I have the 5 hours of good energy and no brain fog. I am napping about an hour now.
4. As you know there arent many studies done that supply us with a remedy for fatigue, except the study done on Ondansatron by Piche et al in 2005. Have any of you tried Ondansatron?? Nope.
good luck with your paper.
frank
Yes.
2. What do you use or take to help with the fatigue.
I had some good results with a supplement called Ashwagandha and added Provigil 100mg from my psychiatrist. I have pretty good energy levels for about five hours but then need to rest. A week ago discovered my carnitine levels were low so add acetyl l-carnitine and that too has boosted my energy level a bit.
3. What is your experience with fatigue. During treatment I had about 6 or 7 hours of energy then needed to sleep 2 hours. My worse was this past winter. It would have been a year and a half after treatment and I was sleeping 15 hours straight. I wasnt waking up, eating breakfast then sleeping NO. 15 hours straight for about 2.5 months. Currently, without Provigil, I might have 3 hours of energy after waking up. With Provigil I have the 5 hours of good energy and no brain fog. I am napping about an hour now.
4. As you know there arent many studies done that supply us with a remedy for fatigue, except the study done on Ondansatron by Piche et al in 2005. Have any of you tried Ondansatron?? Nope.
good luck with your paper.
frank
Have an Answer?
You are reading content posted in the Hepatitis C Community
Learn about this treatable virus.
Getting tested for this viral infection.
3 key steps to getting on treatment.
4 steps to getting on therapy.
What you need to know about Hep C drugs.
How the drugs might affect you.
These tips may up your chances of a cure.
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
