I talked to a Nurse yesterday that works at one of the hospitals in my
area. She told me many come to the hospital who have hep c. Also, that
many have died and are dying of Hep C. What was surprising is that I was the first person she ever met who had been treated for hep c. She didn't
know there was cure.
I remember all to well!! :)
Well, scratch the 1992 angle. I received a transfusion in Mar 12. Their first test with the donation revealed no problem; however, the second one showed it was reactive for HCV PCR. Problem is that between the first and second test, I was transfused. As luck would have it, I am out of the country and won't be home till Oct to be tested. Two big issues here, first don't transfuse till after second test and secondly this is only the beginning with all these kids getting tatt's.
Leave Steven alone please. He does alot of good but it's not his job. He was very vocal about this disease when he finished treating but for some reason he just stopped, dead in the tracks about it.
It's not my place to wonder why but I wouldn't bug him about it.
And no I dont see Joe F'ing Perry sitting there thinking wow gotta check my facebook pages to see what people are saying about me LOL. Nope.
Maybe we should flood Aerosmith's Facebook page about Hep C. I don't know if these guys actually read it or not. They are probably too busy. But it might work
Have to agree with you about the stars. Steven Tyler was just on Jimmy Kimmel Live last night talking about how he helped raise $30K for AIDS Awareness and research. Although I applaud him for that, I really wish he would talk more about his HCV and the fight (treatment) he underwent for that.
Thank you so much for posting this, not that it's going to make any difference in the urgency with which this disease is treated as far as finding a real CURE. It's more like a guess. Saying there now is a cure is misleading. I'm a 3-time non-responder genotype 1b infected in '76, diagnosed in '92. Since there are no symptoms, people (like me) don't know they have it. Luckily I managed to keep from giving it to anyone else, including my three children.
I wish Steven Tyler, Steve Jobs, David Crosby, Greg Allman, etc. had chosen to share their diagnoses of Hepatitis C instead of keeping it hush-hush. Many people think the rock stars just drank too much or that it's just a junkie disease anyway. What we need is money to fund research for a cure and educate people with the CORRECT information. Oh, well.
just use your own cup if you are concerned.
Have a great day!
jules
When I brushed my teeth,sometimes they bleed.And if I rinse with a cup of water,doesn't that leave the cup contaminated for the next person using that cup?
Blood to blood transmission~doesn't make the bath room cup likely.
Add the bathroom cup to the list of transmissions.I gargled last night and it hit me that this cup is also a transmission.
Okay, I'm on West Coast time and moving slow but I sent it:)
Ok, sent my letter too, hoping we'll get some replies!
Sent my letter out this morning to NBC.
You do have to sign up for the site in order to comment on any article. Already was signed up so it was piece a of cake.
I saw the online form and was not sure that was the best way to send it.i am going to send mind directly to the Nightly News address located o. The co facts page and address it to BriN Williams.
On an off note, I just got an iPhone today and think I may end up regretting it. I love my iPad but the phone is just so tiny and I can't set up multiple emails o. It. Gotta do some research.
Just checking in with everyone about our letters. I noticed that Nancy Snyderman has a Facebook page but she doesn't seem to answer many comments there so not sure it's the best place. Should we just write them on the Nightly News comments page that I posted previously?
http://www.msnbc.msn.com/id/41625923
Maybe make them attn: Brian Williams and Dr. Nancy Snyderman. Other thoughts on this, fellow letter-writers? Do we want to try to all send within a certain time frame, as lookingforward suggested? Just want to make sure we're all sending letters to the same address for maximum impact.
Hope all in tx are doing okay this weekend...and everyone else too of course!
Thank you for this information.I will have to continue with prevention as I have been doing for years.I have my wife tested every year.Now she has custody of her 5 year old grandson.I will protect him and anyone I come into contact with.
Follow the link it will explain proper HCV testing procedure and lenght of time needed to wait depending on which test are taken.
http://www.aafp.org/afp/1999/0101/p79.html
Llapis and OH thanks for the clarification.
I will write something today. I will tell the girls to get tested just in case but I think by now they would have known. They both have great doctors - they get tested all the time but I will specifically if they have been tested for hcv - I can't imagine they have missed it over 10 years when we first found out about their other virus.
I feel better about it today (after reading both your post) it was just the tiny drop thing invisible to the eye and the duration that freaked me out. lol.
Will keep you posted - need to think of the letter now.......
That is one of the questions I was going to ask my dr.Thanks for the answer.I have another question.How long does it take for the virus to show up on a blood test after a person gets infected?
Forgot to say, do write a letter if you will. We'll send them all on Monday morning so the station will suddenly get a handful of letters all about HCV. Glad to have you aboard.
I was married for 20 years to the same man and we had two children. I even remember one of my children using my toothbrush a time or two. I patched up their boo-boos, dealt with their bloody noses,also cut myself while preparing meals, etc. Both children and my ex-husband tested negative.
Try not to worry so much. We have been dancing around these questions about Hep C transmission. It is blood to blood. Doesn't spread by kissing or by normal monogamous sex. I don't think drinking after each other is supposed to be contagious. So the razor borrowing may be the only possible vector. Just encourage them to get tested to give you all peace of mind.
If you need a resource for a "free" anonymous test for antibodies (they ask for a donation of 10 and send everything to you in the mail...you ***** your finger, let the sample dry, and then call in to get your results)...write back to me and I'll send the info to you.
Good luck moving through all this. Lapis
Have the girls ever been tested for hcv? The co-infection of hiv and hcv is quite common.
As far as writing to Brian goes, there's no need to say how you got hep c. That isn't relevant to your situation or to our reason for writing.
Good evening~
OH