How do single working individuals maage tx?

[printze]

Waiting to start tx.

[scratchinghead]

I'm single too. Loner and happy to be. Damn the torpedoes.
There are also other websites to get social feeling from.
That is what I hate most about medhelp, they're constantly striving to out-do facebook. you are friends with this and that is friends with you and so and so said and

[printze]

I hit the post button too fast . There are some really helpful people here and I respect their opinions , seeing my question got taken over by another comment which started this off course rollercoaster, the bottom line I definetly will be doing tx this year when not sure My fibroscan will determine where I am at in this disease until then I have to wait , that I cannot change. I asked the doctor in January 2 weeks ago when I went for  rmy labs when I will be starting and he said because the fibroscan machine in October was working too good , I think the girl doing it did not do it properly, therefore he also mentioned something about our Gov't maybe picking up the cost this year something like that. So he does not see serious damage , what can I say , I hope he is right, in July I will for sure have fibroscan and biopsy,up until now I think he planned on treating me sooner but is waiting , what am I to say no? Do biopsy now ? This is where I am at  .in the meantime I am learning as much as I can. And with the ultrasound and lab tests, yes, he can tell if there is nodules from US and by platelets etc if there is cirrossis , I freaked out with him and was positive I had cirrossis he flatly came out an said I do  not. What am I to say , I cannot question a specialist when I need him to take care of me , he is a very well known liver specialist and has been specializing in hepc and liver transplants for 15yrs. .  

[printze]

My post is about single people managing on tx , not about me not starting treatment yet . Most of the above has nothing to do about my question.  

[suezeeque]

It's the first line of a quotation but I thought I might go over my quotation limit if I posted two in one thread. I didn't say 'its not all about you' although I believe that is sound advice for all of us at some point in our lives.

Look, I'm 23 weeks into treatment so that's my excuse for getting a wee bit cranky now. Yet here I am in a cold barn soaking wet from the rain after slogging through the mud to bring my horse in.

When I get home I'm making supper. No help, nowhere.

What was the question?

Nevermind, ill be in the corner sitting on my hands. They're really cold anyway and locking up on this teeny keyboard.

;)

[hrsepwrguy]

"Just out of curiosity, and for anyone else on Vic how many pills a day are there actually ? I heard it is more than Inc , and what is the routine for the meds?"

You have been talking about vic for months, this link has been posted to you more than once, and yet you still ask this ?

http://www.merck.com/product/usa/pi_circulars/v/victrelis/victrelis_pi.pdf

The link will answer all the questions you have about victrelis protocol.

[nygirl7]

You think he does not know what he is doing ? What if my biopsy shows f0-or f1.fibrossis, then its ok? And you are wrong by the way he can tell by lab results if cirrossis is present. ?"

bing bing bing and you win the prize. If you have zero fibrosis why would he tell you you have to treat right away? You do NOT have cirrhosis and apparently from your fibro you dont have vast fibrosis either.

How come none of this really makes sense to me?

Prinze you got good, qualifed, life experience and knowledable advice. If you don't want to listen to it and prepare yourself for the next 20 years to someday do treatment if it becomes necessary and obsess about it until then - none of us can stop you from doing that.

[printze]

Nor about you , unfortunaly I did post remember, so it is about me . I will do a biopsy when my doc tells, I will treat when he tells me. I will educate myself in the meantime and prepare myself for when the time comes .  

[suezeeque]

I am not 'jumping on your back' nor is anyone else that I've seen.  Look, your response is pretty universal when you don't get the answers you want.  You asked a question, you got responses.  Perhaps the responses you got don't fit with what you wanted to hear.  That's fine.  The advise you get here is worth what you paid for it maybe?

If you feel crappy it's not anyone else's responsibility.  You choose how you will react to information.

Life isn't about what happens to you......................

[printze]

Buy the way , you guys really know how to make people feel really crappy. Thanks a lot .

[printze]

That is not what I said , I said if the fibroscan does shows anything and based on  what my results look like then he will do a biopsy . What is your problem , because he is no tdoing a biopsy now? You think he does not know what he is doing ? What if my biopsy shows f0-or f1.fibrossis, then its ok? And you are wrong by the way he can tell by lab results if cirrossis is present. , Every time I post it is the same 3 people that jump on my back . Find someone else for a change.

[fretboard]

"I am not scared of the tx, it is will I be able to do it alone and work. Plus laundry, groceries , yikes, a bit overwhelming."

If you have any doubts at all just wait until something changes for you or for the tx.  If you are healthy and nothing ever takes you down then go for it.  It's all up to you, nobody else.  It's not up to your doctor either because very few of them have ever gone through tx and all they see is the outside of their patients and that's simply not good enough.  The tx can be grueling for some of us so think it over and then think it over some more.  The bottom line is sometimes people can not make it through tx for all kinds of reasons.  good luck with your decision.

[jules2551]

Rut Rooo

[willbb]

I hear you Sue....

[suezeeque]

Will, it looks like the problem may lie in comprehension of the information rather than the qualifications of the physician?  Just sayin.

[suezeeque]

FYI FibroScan is not the standard in Canada.  Biopsy is.  There are only 4 machines in the province of Ontario, 5 in the province of Quebec, lesser numbers in other provinces, some provinces don't have one at all.  It's an expensive machine and not available in smaller communities, across the country.

I had a FibroScan last summer.  I would not want to rely on blood work for the status of my liver...  Hopefully you won't have to wait much longer.  :/

[willbb]

I have minimal fibrosis, no cirrhosis, blood work good , no danger, I had a fibroscan , it did not take ,
--------------------------------------------------------------------------------------------------

If the fibroscan "did not take" and you have not had a biopsy  then your doctor  could have "no " real indication of damage,as  "fibrosure and fibrospect" are not used in Canada as a means to definitively diagnose.

Other blood levels(LFT) are very often  in normal range right up until  one reaches  cirrhosis.sometimes even until decompensated.

Then you say: here in Canada we use the fibroscan and as my lab results show no cirrosis and a second specialist confrimed the same fo-f1 he will use the fibroscan and lab results and if they match no need for a biopsy . If not then biopsy is used to confirm if there are discrepancies.

Confirmed by what???  You have not had a FS or biopsy and fibrosure is not used here??
I know exactly what tests are used in Canada..I am from here and have had them ALLl numerous times over the last 12 years to gauge damage...

No reputable liver doctor in Canada or anywhere else as far as I know predicts liver fibrosis without either a FS or a biopsy or possibly the "fibrosure"

Personally ..it matters not to me whether you treat now or ever ,..my post was asking how a doctor could possibly make a recommendation?

If my Hepatologist had of suggested I just keep putting off tx. based only on LFT and having  no indication of damage I would have found another doctor immediately.
If   a doctor recommends treating  right away that is an entirely different story as knowledge of damage may not be necessary
,however making recommendations to wait not knowing can be a huge gamble...

If you read and understood my post ..it was a suggestion to possibly focus on finding out what your condition is .rather than worrying right now and asking folks here what it is like to treat while alone.

[printze]

I must tell you something ok, my hep specialist as i have stated over and over again knows I have minimal fibrosis, no cirrossis, blood work good , no danger, I had a fibroscan , it did not take , he wants me to wait till the summer , here in Montreal I am seeing one of the top hec and liver specialists, as a matter of fact there is another member here on this forum who started tx yesterday and was very luck to have been referred to  him. What is it , you want me to treat right now because you say so. If my hep specialist is waiting I think he knows what he is doing , I go to see him every few months for tests, here in Canada we use the fibroscan and as my lab results show no cirrosis and a second specialist confrimed the same fo-f1 he will use the fibroscan and lab results and if they match no need for a biopsy . If not then biopsy is used to confirm if there are discrepancies. I will listen to my specailist and have complete confirdence in him , who knows maybe I can even wait for the new oral meds to come out . Have a nice day .

[1oftheclub222]

I wish I  could hurry up and start treatment already so I can stop thinking about starting treatment!  I think this is the worst part.... I plan to start this Friday, the pharm called last night and said they needs some info from my doctor before they can send my meds, so we will see if I get the meds in time to start on Friday...I hope I can, I am mentally prepared to go forward and may just throw a hissy fit if they mess with my plans, ha....

[suezeeque]

cando, you aren't alone either. We're here for ya, man!  (((HUGS)))

printze, you've asked this question at least a couple of times before.  The answers are still the same.  Hoping the answers will be different won't make it so.

http://www.medhelp.org/posts/Hepatitis-C/Will-be-starting-treatment-soon-will-I-be-able-to-continue-working--/show/1598735#post_7264003

http://www.medhelp.org/posts/Hepatitis-C/I-am-aingle-53yr-old-woman-who-will-start-treatment-will-I-be-qable-togo-through-this-alone-I-hqve-no-one-and-need-to-work--/show/1590321#post_7224397

[bbj2856]

Hi Summer I found That God is my strength and my confort ask him to help you and to heal u of this dreaded desease he will do it. My faith is is my strength . So far no sx and just little tiredness but other wise I am doing ok . God bless you and all of us in this treatment

[summer7799]

It's nice to have a place to vent. Where people understand and might feel the same way you do. This forum is a huge help to me!

[pooh55811]

Will has a great point (or great points). First things first.

However, if and when you treat, another suggestion I have is to stay ahead of or get on top of the side effects immediately. They snowball and if not treated immediately, it takes a lot longer to get them corrected and under control.

[can-do-man]

I want Attention too!!!

[summer7799]

Hello!! Your not alone! I also am single. No husband or boyfriend. And I'm a single mom! I have a 12 yr old and 7 yr old. I also don't have any family in this state! I have only told a few close friends from my church so they can pray for me. I can't tell anyone at work, including my boss. I am now deciding on which treatment to do, which one is best for my situation. I am so grateful for this forum. I feel like I have learned so much here and have gotten much support!!