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It seems to be less damaging if ibuprofen or tylenol is out of the picture.
I agree with you that it's not always necessary, but was being overly careful based on some recent criticism. I do think it important, however, to point out to first-time posters that none of here are doctors -- if we have any doubt that they might think otherwise.
Yes, many of our words here hold weight, including yours. We all have our own individual styles of expressing ourselves and that's great.
-- Jim
Sincerely,
Dana
I’m scheduled to be sailing in the Caribbean for a week starting Dec 7. At this point I’m debating whether to go or not for fear of being stuck on a boat sick for a week. Although here in week five I’m actually feeling like my body is beginning to tolerate the cocktail a bit better, the up and down nature of how I feel has me concerned about low troughs. I’m wondering what the heat might do to me coming out of New England weather.
Also there’s the light sensitivity issue. As I understand it the sun can be a big problem while on tx. Does anyone have any experience or suggestions about this?
Being a daring person myself, I would probably do it, as long as I was sure I could always take my meds timely. I know there are some fishermen aboard, so maybe they have some suggestions. Snook, are you out there?
friole
chris; if you are out in the water there should not be too much heat felt with the breeze that always blows from the ocean. enjoy.
watch out for the anemia, it could be the spoiler.
MerrieJane
P.S. Thanks all for your quick responses. You guys are all my saviors!
P.S.S. As an aside, does anyone have words of encouragement of what you can say to people who think you look fine on the outside even when you tell them you are on treatment? I feel like everyone wants the same piece of me they are used to getting and I can't seem to get to a point where they appreciate that I have very little to give during treatment. I have 2 small children and a job, as well as a slob of a husband. I am overwhelmed! Peace
I was taking Norco and it really didn't help with my joint, elbow, wrist, finger, ankle, back pain. I hurt everywhere. My doctor switched me over to oxycotin > which has no tylenol at all. I am told that it very liver friendly.
I take 2 > 40 mg pills per day. It is much stronger than the vicodin or norco, but they were not working for me at all. Without the pain meds I could not keep up with my girls. I am hoping to taper off of it soon. I am not quite 4 months post tx. Hope this helps (((( Sue ))))
There are some books out there on pain management and the undertreatment of pain. Most analgesics do not last 6hrs in the body, but drs still only prescribe in that manner.
chris; if you have the predisposition to sun and motion sickness, it will be enhanced during tx, most likely.
I had to take a special pass in the Summer at Six Flags, due to the anemia and the heat. I felt ready to pass out in line. I went to the Caribbean a few wks after ending tx, and did not find the heat too bad, it is not Summer heat anymore. Use enough
sunscreen so as not too burn but not too much, you want folks to drool over your tan, don't you? I don't know about the sailing part, though.
It can get a little drunk too but I don’t have a lot of interest in alcohol these days. I’m more concerned with the unknowns of how I’m going to feel in the heat. I’m wondering whether I’ll be handling tx better or worse a month from now.
I guess it’s just a wait and see over the next few weeks. Thanks everyone for the input.
Monte
You need to look for a more compassionate dr. Mine has been prescribing Vicoprofen for yrs, he won't go "higher" though, And I feel I have to add extra Ibuprofen to get better results nowadays. Some benefits I found on the med while on tx was that it helped intestinal cramping and that cough that came in the morning. Tylenol is a waste of liver energy for me.
Sincerely,
Dana