Aa
Aa
A
A
A
Close
Avatar universal

I don't understand Treatement

I really do not understand the agony people put themselves through with current treatments except they have hope.  But at the same time, don't you realize you are destroying your immune system.  I have had Hep C for 35 years.  Yes I often feel fatigue, but I am 61 yr. old and still living a normal life.  THERE IS NO CURE HEPATITIS C TODAY only treatment that hides or confines the virus for a while.  Any doctor who is honest, they will tell you they just don't know.  Still too much unknown science. There is no telling what affects the current treatments will have on the body.  I believe that is why we hear so many having other problems after treatment. The immune system simply can not handle all the foreign substances into the body.  Some part of the body is going to be affected and neglected from the immune system. I have lived with building the immune system not destroying it.  Think twice before treatments please.
42 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Okay everyone, Apparently you are not open to hearing about the 30 years of experience I've had with healing the liver. So I will not continue to try and give you hope when I know you feel awful while tx-ing and are not open to other suggestions. Yes, I still have Hep C, but I will not die of hep C, probably I'll fall off a ladder or something.  Anyway, I did not mean to sound negative toward treating, it's just that I have encountered sooooo many uniformed doctors. It was city doctors who almost killed me. It was city doctors who killed my sister with several surgeries and medications she did not need, and then covered it up by saying she died from a heart attack at the age of 52.  Yeah, the surgery and meds gave her a heart attack. I could tell you more stories but I won't. I was never saying do not treat, I was simply saying I did not understand how someone could put themself through such agony.  For me, if Hep C was to kill me, I am not afraid to die.  I believe in the Lord and life after. I put my faith and trust in the Lord. If the lord wishes me ill or if I should die, it is in the plan to something better from this earth. Until such time I will fill the body temple with good things.
  I am sure there are some well intended doctors out there, but I still say there is still too much unknown about Hep C and treatments.   I do wish you all well, and I do think that maybe some will be healed from treatment, but if they are, it is in God's will, not the poison injected. As it is written; Satan rules this earth, it is up to us to resist Santan's temptation causing agony, hurting, and troubles in our life. I am sure if you all pray and have faith in the Lord, your future will be directed by the Lord.  Listen carefully, because often the Lord taps you on the shoulder and whispers. It's up to us to listen.
God Bless and I hope you all get well.  Good-bye
Helpful - 0
Avatar universal
hay would somone fill me in on the abrveations you use tx bx ad ? ?whats new on the market antapheron cocktails ?  new side afects ?  last time i was on treatment it was a clinacal trial to figger out how much to give peapple what was safe plaetlits low rang,  side afects,dna studys, how diferant blood typs react, and how typ 2 diabetics react,  on treat mont, of all kinds, it helpt bring some new drugs to marcket, i have  insherance now,im going to try again 11 months low to no viral count showing;  gave my stage 4 liver some healing time    good luck to all
Helpful - 0
Avatar universal
kelly, found a way to help the graet pain betwean his ribs and wear his  solerplex meets, wial walcking in the zoo loking for diat ideas he found monkys and arangataings eating alot of fruet and grain,  but what cout his ieys the most was the way thay hung up side down, and lifted reachd for objects tires toys. he setup his basement jim with !monky bars thers no joke its trew thats just kelly hay the mind of an artist go figger he spends hours on this apparatis  and wen he gets that pain that alot of us last stage liver peaple get, he slowly streches he just hangs by hiss feet  well i cant evan get on a pullup bar but i found a tie chea class on the tv it seems to have the same afect almost
Helpful - 0
Avatar universal
its good to know that those vitamins are what you suggest. I have been taking all those faithfully for a long time. NU liver I am not familiar with though.

But with herbs, I won't be taking while on treatment. after tx. I will, so maybe on treatment I will be able to study the book you mentioned

Thank you!
Helpful - 0
Avatar universal
They can say there is a cure all they want. Fact is.. there is No proven cure, primarily because it is too early in research to state such a claim, and there are too many relapses after the fact. Show me one article that says beyond doubt there is a cure for Hep C and it will not reappear.  Alot of doctors say there is a cure because they want you to treat.  It's a money thing.  Others are just misinformed.
Quite honestly I believe there are too many doctors simply in it for the money.  Secondly, just because they pass exams to become a doctor does not mean they know all.  Look at all lousy lawyers who pass an exam or internship and they still lack in their profession.  Same with doctors.  Personally I wil not totally put my life in their hands.  Dr. David trinh (Orange County CA, Dr. David A Mathison(Scripps, San Diego)..search their research on Hep C.
  I am not here to argue with anyone, I am sinply stating facts that so many doctors do not reveal.  If you want to believe there is a cure, so be it.  I am not here to lessen your belief or whom you want to believe.  Write back in 2 years.  I pray you do well,god Bless
Helpful - 0
Avatar universal
torry, reputable doctors and hepatologists do state that hep c can be cured. research Dr Dieterich and Dr Bernstein. I belive dr Palmer says the same also.  I am sorry, but you sound sort of programmed by the Scripps group.  Do you research things on your own, or you accept everything they say?
Helpful - 0
Avatar universal
thanks,,, you rock, Rock.
don't worry about the spelling, my spelling is the pits. hey conservative traditional doctors might consider us as a study or clinical trial and say "eating organically causes people to be bad at spelling."

Helpful - 0
Avatar universal
Stage 0....because I had a fibrosure blood test. I was told that they are only accurate on the low end and high. if you are in between somewhere, they don't count it,,,,sorta like a middle child,,,lol You're not the 2nd of 3 children your mother had I hope?,,,just kidding,,don't want you to tailspin into depression, have to start takin AD's and then no longer be a member of you're all exclusive NO SX CLUB. I'd feel sooo terrible, being the responsible party of having you kicked out of your own club.

I'm glad your concerned about me and my "Sad Ad" situation, very moving to me,lol No but really, thanks for the concern. I have to try to keep myself light by telling stupid jokes and acting silly, because this wait is NUTS, TOO LONG.

Okay, beets,,yes the subject of beets,,hmmm. Well this is what I do, I go to Whole Foods and buy them and cook them, Pain in the neck, they take forever to cook, but magnifico, wa-lah delicious. I would like to ask you where you get your organic beet powder from,,if I may, MR. Rocker. I have always wanted to know, and I have waited patiently for you to mention it, to no avail. But today, the subject has risen and not by me but you,,,so do ya have a reputable place and do you consume daily? What is your method of taking this beet root powder?

the other question was cummin and no I haven't indulged and do you think I should??

I haven't done too much with the herb thing except milk thistle,  I get in the GNC Maximum Greens, also take capsules.  If you look on the side it says "organically grown barley" and so forth,don't know why its not on the front of it. I think its a good product, but because of the milk thistle I wonder if I should stay away from it on tx. Do you take milk thistle on tx? This greenie powder with all the veggies and fruit blend is a good drink, don't taste bad, but actually, I don't care if something tastes awful, if its good for me, I will drink it. Of course with a queezy stomach on tx, I would pass on it. Queezie stomachs on tx disqualify a person for your club? Maybe I won't tell you if I'm pueky. How will you know? Looking for more recruits into your club, huh? lonely at the top, poor guy.But then again if I'm on Ad's I automatically disqualify. Bummer.

so let me know about the where to get the beet powder and if you can let me know what vitamins and stuff you are taking on tx. I know ya do the almond thing,,,saw that. I eat them too.
You said....
Tell her I'm taking the ad's and not take them, I thought of that, but now she has me so freaked out, I feel like I should take them and thats ashame, because I felt confident about entering tx, I was pumpimg myself up mentally and ready and now its like..making me feel worried..ticks me off that my whole way of looking at tx has gone back almost to the inital "oh no interferon,,,ahhhh.
Oh well so thats the story. so let me know about the beets and stuff,,,also the ginger for quezzy,,,how do you take that? thats potent stuff.
Helpful - 0
Avatar universal
I can not see why herbs can not be taken while treating. After all they are natural food. Perhaps taking immune helpful herbs could lessen the affects of treatment. But also, herbs may fight agaist the treatment. Still if it were me , I would try to keep my immune system strong.
Helpful - 0
Avatar universal
my point! kelly is kelly nitramog is nitramog  kelly did the treatmont had to quit but he found his own way for the best !he could do  hes strong ass a bull to day thank god!  ps he saves sick anamals then sets them free the crow will fly some day we hope ps kellys AMERICAN,   old monks  wacht nater and trial and error,have you ever asked your herb docter wats in all thoes bottles! modern sciance wachis natcher and trial and errower, my body doesnt seam to deal weth some things the way healthy livers+spleans do lots of herbs are negative to me some of natcher workes ok  the peg antyferon  cleard me in 4 months but came back after treatment about four monthes latter but the time helped me alot  now im losing waight trying to get stronger to go again i think it has a good chans  ps sorry about my spelling   ps no disrespect to herb docters ment,
Helpful - 0
Avatar universal
i missed that the one post you made was to Torry, so he's not Kelly, that clears that up, but please tell me if kelly eats rats and also what country do you live in. Pet crow is quite unusual in the US, so just wondering,,,,,does kelly visit the states? Tell him to brush his teeth before he gets here. Rat breath has been known to keep a person from acquiring friends in the US. Just making joke. tee hee hope you enjoyed my joke.Help!
Helpful - 0
Avatar universal
It is best to get a formular for your personal medical situation.  A good natural herb doctor will want to see your biopsy report and all blood work report before formulating a formula. Some herbs are not good for Hep C and other are known through decades of healing to be beneificial. But the dosage amount is different for different people. You have to know which one to take.  I can give a list of what has been formulated for me, but it may not be right for you and you must learn the right dosage for you. But some that may be okay and will help the immune system... Certainly a herbal multi Vitamin, Milk thistle, Folic Acid, Alpha Lopic, Nu-liver(a chinese herb formula) B-12 (the liver does not store B-12 for energy) Selenium, vitamin E, Vitimin C, Coenzyme Q-10(a good one)and there are more. A good herb book may help.  There is a book called: "The Herb Bible" and others that will tell you what herbs are good for what.
    I'd like to tell you a very true story...My girlfriend age 44 was diagnosed 3 times with the worst cancer spreading though her female organs.  Doctors wanted to do surgery immediately. Said she could die. She said NO way to the surgery. She flew to Los angeles where she saw a chinees Herbal doctor from Chine unlicensed in the states. He operated in a small corner building hidden in Los Angeles. He gave her several Herbs, one being some sort of Red Root Herb.  After taking these awful tasting herbs for nearly 3 weeks, she went back to her doctor who could find No trace of the cancer.  Today she is 64 years old without cancer and all her parts.  Now, was she mis-diagnosed by 3 doctors, or was it the herbs?  You be the judge.
I wish you the best.
Helpful - 0
Avatar universal
hi,
i must have missed something...who is kelly? your friend is kelly you are saying? are you saying torry is kelly? I'm very confused.

kellys crow catches rats and eats the guts and kelly copies and does this too? he considers this Alternative medicine? I really don't know what you mean,,,I'm very curious and would like to know, I think.



Helpful - 0
Avatar universal
You are absolutely right that this tx weakens the immune system. We don't know the effect interferon will have down the road on our system, but this virus has caused other problems, unbeknownst to me until I had tests. My body is having a hard time absorbing some nutrients. I feel great, but tests show low level of Vitamin D, also hair analysis showed excess calcium loss and commentary stated that this is seen in people who have hep and cirrohsis. Blew me away that the H.A. can determine this, but proof is in the puddding, I do have hep. The person that did the analysis didn't know it, nor did I or my doctor at the time. So as far as some thinking hoistic tests are quackery, this is one test that proves them wrong.

I understand that this virus can come back even with tx, but I am hoping the virus is erradicated. I am reading about too many extra heptatic symptoms that hep causes and see changes in my own body, absorption problem, is an example, that I feel I want to give this a shot.

I would be very interested if you would kindly list herbs that you take also each herbs function if you can post that. After tx, I will be trying to build my immune system up as much as possible and would appreciate your wisdom.

thank you and I wish you the best on your journey. Hope you stick around and continue to share helpful information, just keep in mind that everyone here has chosen the conventional method and during tx it can be difficult to listen to someone say they chose the wrong path. Though your intent is to help, this is not good for the mind of people who may be fighting side effects such as depression. Maybe info more on the lines of what to take after tx to build up the immune system would be best at this time. thank you again for your opinion.
Helpful - 0
Avatar universal
Ya know what though,,,,I can't deal with having to find another doctor and sing that same old "getting to know you, getting to know all about you", song. I am tired, been waiting too long. I could have hid indoors all summer if she was  afraid of the sun and I would almost be done with tx. But she wanted to wait. She seems a little over cautious, but I feel she is a good doctor.

Just as you, I am not a medicine taker. Someone can rob my house, not at gunpoint, but threaten to force feed me white bread and I will point him to my jewels. lol So with that said,taking AD's is really like telling me your going to poison me, but I have to get the ball rolling can't take the waiting anymore and getting a new doctor is too draining for me.

Maybe I can stroke the shrinks ego (if male) and ask him if it would be better to wait until tx starts so that he can use his expertise in deceiding which Ad to take. I'll ask all this in the tone of a Marylyn Monroe voice.lol You men are so easy to get over on, so I'll start practicing.hardy har har If he lets me wait, maybe he'll see I don't need them.

FYI never bx, 2b geno 0 damage, cat scan and fibrosure, ultra sound are the test I had. 5million vl last time we looked

Helpful - 0
Avatar universal
hep c and its stages hits every one defferant!!!!              no joke i have a frend  he waches what anamals eat and copys them dandielions from his yard his pet crow kills rats and eats ther guts so kelly does to the list goes on very long,  the list goes oun his viral count is 3 times mine heas strong strong ass a bull im luky to walk my dog every couppal of days no  real point about kelly  heas just another appinion  ladys and gental man please do not copy kelly but if you want i can tell more storys of THE ADVENTURES OF KELLY
Helpful - 0
Avatar universal
accupresher helps eas treatmont  im glad i used meds to calm me down  if not for your selfs for the welfair of others around you  dont wiggal your teath till way after your treatmant the peaple around you care the same as all ways take your drugs trust your peaple more then your oun mind 12 to 18 months isant much time ps get as thin as you can so the hep cant hide in your systam  and pop out 2 our 3 months latter  im a respondar but relapst4 monthsa latter  thay took me off to soon!  i was a lab rat then but insured now  i think i have a good chance to clear the hep im still a stage 4 liver
Helpful - 0
Avatar universal
I see Scripps Doctors every two years.  No biopsy necessary but I do get ultra sounds now.  I am not with the numbers on this but I can tell you my enzyme count was 35 the last time I went.  When I was younger they always said it was 200+ or so.  Apparently it is way down from when I was young and ill.  All I do is go for the ultra sound and blood work.  They come back and do not feel a biopsy is necessary.  Doctors just say: Whatever you are doing, keep doing it because it works.
Helpful - 0
132578 tn?1189755837
My life was waaaay to tame and I had been working soooo hard that I decided that this year , instead of going to one of those stupid islands in the Caribbean I would give myself something dangerous and expensive that most people wouldn't even think of: That's right.. I went all the way this time PEG and RIBA !!!

Torry , that sounds pretty ridiculous doesn't it . Not near as ridiculous as you coming to this forum full of people on treatment and insulting their intelligence by reminding all of us ,IN CAPITAL LETTERS ,no less , that there is no cure for
HEP C.

It sounds to me like that for whatever reason , you have chosen not to treat and your trying to convince your self the your decision was the right one and everyone else is an idiot for trying not necessarily to add years to their life , but trying not to loose any.
Helpful - 0
Avatar universal
Hi Torry,
Welcome to the forum. I'm glad to hear you are doing well with natural treatment. I, myself have been eating organic food for many years and taking supplements in mega doses and drinkng only distilled water and all that other wholesome living. Haven't had a cigarette in 25 or so years, was a 3 packer, haven't had a drink for about the same length of time and haven't touched a drug since my teens,,,BUT, with that said, I have chosen to tx using the conventional treatment.

Why, you may ask,,,I feel that the longer this virus stays in my system, the stronger it may become, plus all this talk about mutation, I just want it out.

I feel healthy as a horse, so I CAN live what seems like a normal life on the outside, but not knowing what this virus is doing inside is my concern.

On this forum there are many who don't believe as strongly as you or I in the alternative med and that is their choice, I do believe in A.M. and still chose to use the Interferon...... not only that,, but today I received some good news, thank the Lord and that is that I have 0 damage, test result from Fibrosure.

Now here's the interesting point I want to make, alot of my buddies here would advise to wait because I have time, so to speak, for newer drugs on the horizon.

I want this out of me, I don't want to wait for new drugs. All meds have sx, so I may as well take my shot with these.

The anxiety of waiting is probably the hardest. Found out in April, Got an appointment in May, this doctor, though he does do the tx (interferon) with his patients, not an alternative doc by any means, told me the tx is hell and depending on the shape of my liver, he advises not to tx, that I would die from something else and live probably until 80.
I don't think anyone can say that and not call it guessing. Even with my strong "natural alternative med belief system," I knew he was the wrong doctor for me.Most people who take as many vitamins as me, would have ran home, jumping for joy and would never have tx. Not me, deep down feeling inside, telling me this was not good advice. Got into another doc in June and told I have to wait until Oct, for tx, doesn't start anyone in summer.

Hit another speed bump today, I don't what anti depressants, hate drugs,don't want to add another, but she puts everyone on them so that she does not have to stop or reduce meds. But I have to see a shrink, so that he can be the one who adjusts the meds if needed along the way. Oui Vey.

So here I am getting ready to pump in toxic meds, anti depressants and see a shrink. Three things I would not choose to do, but I really feel its my only choice at this time. I thank you for all your info. I will check it all out. haven't yet, just walked in the door....but ...I wanted you to see another side, someone with YOUR beliefs, but taking a gamble on the other side.

Remember this virus can cause low grade lymphoma and thats another reason to get it out.
Wish you the best! I hope you continue to share Altenative information, its good to know all sides.

Thanks!



Helpful - 0
Avatar universal
That's great, wish that was the case with my doctor. My "primary doc", Americano, used to fiesty US females,doesn't think I need ADD's when I told him last visit that the doc was pushing me for it. I don't know him long, this doctor visit thing is all new to me, been very fortuante over years, well took good care of myself also.
I'm afraid if I don't take ADD's,I might feel like I'm back in the old LSD days and I'll call her crying with a confession,,,,"i'm loosing it, i didn't take my lexapro."  Probably wouldn't happen(?) but if it did and I mess up this tx because of DISOBEYING my doctor, I would definitely become the SUPER DUPER NEUROTIC CHICK that she sees me as.

The shrink thing will be interesting, to say the least. I don't believe in telling some stranger about yourself, but I'll have to pretend to enjoy the experience. I could make a joke right now, but I'll pass.
I have to figure out if its best to see a male or female shrink. The place I called are all male, but the receptionist never called back. Thats par for the course.

Forgot to say I had cat scan and all looked well.(hopefully)
see ya later
Helpful - 0
Avatar universal
willow u said it bro :)
Helpful - 0
Avatar universal
Call any research Foundation like Scripps or UCLA or an honest liver specialist.  There is No cure for Hepatitis C at this time.  If a doctor is honest with you they will tell you there is no proven cure. In fact, they do not even have a test to identify the Hep C virus, only a series of test to indicate high liver enzyme etc. which many things can causr these tests to be inaccurrate There is still too much unknown Science.  Too many doctors simply do not have all the facts from research.
Helpful - 0
Avatar universal
You mention you are afraid the virus may become stronger.  That's the whole point in building the immune system as I have.  The virus in me has actually lessened with years of herbs and living right. But with herbs it does take a few years to be normal again. It does not happen over night. Healing the liver is a VERY slow process.  The liver heals as you sleep.  Bet when you sleep until the body awakes on its own, you don't have that fatigue feeling as bad through the day as you do when woken before the body is ready to wake up. With treatment, many are saying they are healed.  I don't believe it, but that is my opinion.  If the virus comes back as doctors say it can, seems to me it may come back stronger with a weakened immune system along with other affects as I have heard some say they have other issues after treating.  Hepatitis C is not actually a killer.  Those that have died is normally due to other issues like consuming alcohole or other no,no's and it is a slow progression of things.  But Hep C can be controlled.  I doubt I will die of Hep C.  In fact, most doctors are amazed ar how helthy I appear in tests and over all.  I am 5'2 weigh 137 and still muscular.  I ride hores, and do alot of activity working on my house.  God can heal with the herbs given us on earth if we believe and pray.  God Bless and get well.
Helpful - 0
2
Have an Answer?

You are reading content posted in the Hepatitis C Community

Top Hepatitis Answerers
317787 tn?1473358451
DC
683231 tn?1467323017
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.