Aa
I guess I ment it when I said i was losing it...
last week My huaband and doc sant me to the er to be admitted into the psych wing. my emotions are out of control. I dont want to do anything but sleep. there were alot of othet factors besides tx that caused my brake down yet my imaginary gi who did not even talk to me had his nurse call me an said get a different doc He wont treat you anyore....I guess he hasnt seen many hep patients and just freaked out. but how do you just drop a person like they never existed? he should have treated my sx isnt that his job? turned out before a started tx i stopped taking a med I have taken for two years and my husband almost left me the night before and much more. all he had to do was increase my ad and put me back on the right meds. but he didnt even see me is that legal can he just leave me hanging like that? oh well see ya later what the He11 Is that supposed to mean? so I have two inections left and amd trying to see someone before my last inj. so ther will be no doses missed. I am so pissed off. what do all of you think about moving on tx changingdocs, not missing any doses etc. My whole family is in california were I have spent
99% of my life (southern calofornia) you know were there is this thing called sunshine. I need my family and I cant spend anothet winter in oregon its depressing enough without addin tx. need advise guys I am to egsausted to brush my hair or hold my two year old for vety long. .thankis summer
99% of my life (southern calofornia) you know were there is this thing called sunshine. I need my family and I cant spend anothet winter in oregon its depressing enough without addin tx. need advise guys I am to egsausted to brush my hair or hold my two year old for vety long. .thankis summer
Hm...also wondering if they've done any tests at the beginning of your treatment to test your viral load - a PCR, what genotype you are and if they've done tests at any point since you started treatment or were planning to send you for a PCR soon, like at 4 weeks?
Maybe in some way your doctor did you a favour even though that wasn't his intention. Sounds like he got scared and better that he did it when you're only 3 injections in than when you're smack in the middle of treatment with alot invested already and much more to lose.
As for you being tired, were you aware that fatigue is one of the most common side effects of treatment? If they sent you to the pysche ward for wanting to sleep alot...well...maybe that's more normal than your husband and inexperienced doctor realize.
If I were you, I'd simply stop treatment now and look for a hepatologist, a really good one. Treatment is too serious to be going at it in this haphazard way with a doctor that didn't even see you before he treated you. That's just wrong.
On top of that, did you have a biopsy done? You're young...if this doctor told you that you must start treatment now, well....you don't necessarily if you're early stage liver damage. Did you know that??
I'm not convinced your doc or his nurse prepared you very well for what side effects you could expect and that he knew enough to do that. If he didn't, his nurse likely didn't either. If you're early stage liver damage, you DO have some time on your hands to wait for awhile as long as you monitor the progression of your liver damage ongoing. Personally I prefer to see people do that every 2 years if they can. If you have a two year old, perhaps you want to wait some years. As well, there are new drugs that will likely hit the market in a few years, even if it's five years...as long as your liver damage is minimal, you can afford to wait. And...maybe....you can plan to move back to California where your family is where you'd have a much better support system for both you AND your husband. Treatment can be very hard on a husband and a wife and if your family and he get along, they will be a support hopefully for him and you AND your little two year old.
You also want a doctor who is experienced in treating persons with Hep C who understands and plans for the potential psychological impacts this can have and takes into account any depression or mental health issues you've had as part of your treatment and monitors that as you go along.
So...my advice to you, for what it's worth is to STOP treatment now, go find a good hepatologist - the timeworn advice is that they are found in your larger teaching hospitals (and are worth the drive to have a good hepatologist) - get a biopsy done if you haven't had one and take some time to learn more about what your options are. This is far too serious a treatment and treatment drugs to go into it with an unskilled doctor and not enough information and education for yourself.
Good luck.
As for you being tired, were you aware that fatigue is one of the most common side effects of treatment? If they sent you to the pysche ward for wanting to sleep alot...well...maybe that's more normal than your husband and inexperienced doctor realize.
If I were you, I'd simply stop treatment now and look for a hepatologist, a really good one. Treatment is too serious to be going at it in this haphazard way with a doctor that didn't even see you before he treated you. That's just wrong.
On top of that, did you have a biopsy done? You're young...if this doctor told you that you must start treatment now, well....you don't necessarily if you're early stage liver damage. Did you know that??
I'm not convinced your doc or his nurse prepared you very well for what side effects you could expect and that he knew enough to do that. If he didn't, his nurse likely didn't either. If you're early stage liver damage, you DO have some time on your hands to wait for awhile as long as you monitor the progression of your liver damage ongoing. Personally I prefer to see people do that every 2 years if they can. If you have a two year old, perhaps you want to wait some years. As well, there are new drugs that will likely hit the market in a few years, even if it's five years...as long as your liver damage is minimal, you can afford to wait. And...maybe....you can plan to move back to California where your family is where you'd have a much better support system for both you AND your husband. Treatment can be very hard on a husband and a wife and if your family and he get along, they will be a support hopefully for him and you AND your little two year old.
You also want a doctor who is experienced in treating persons with Hep C who understands and plans for the potential psychological impacts this can have and takes into account any depression or mental health issues you've had as part of your treatment and monitors that as you go along.
So...my advice to you, for what it's worth is to STOP treatment now, go find a good hepatologist - the timeworn advice is that they are found in your larger teaching hospitals (and are worth the drive to have a good hepatologist) - get a biopsy done if you haven't had one and take some time to learn more about what your options are. This is far too serious a treatment and treatment drugs to go into it with an unskilled doctor and not enough information and education for yourself.
Good luck.
yet my imaginary gi who did not even talk to me had his nurse call me an said get a different doc He wont treat you anyore....
I don't know if you are understanding perhaps where they are coming from. If you've already had a breakdown and ended up in the ER to go to the psych wing, well after only a couple of shots of interferon - it could be extremely extremely dangerous to you later on. Interferon can cause severe depression to the point of suicide and usually those who show any signs of having had depression before ARE excluded from doing treatment at all costs.
They are probably looking out for your best interests. Are you already on antidepressents?
>>>>all he had to do was increase my ad and put me back on the right meds.
Perhaps he's worried that it's just not enough, this early on interferon perhaps he is insinuating you need a psychologist to do a redo on THAT med?
Have you had a biopsy? I don't recall what stage you are but perhaps you are a minimal stage fibrosis and the threat of the 'breakdowns' is much worse than the threat of the hepC doing anything to you?
In that case it would make sense to stop - not the get another doctor part (I don't know how literal that was) but the let's not cause you any mental/physical harm part.
I don't know if you are understanding perhaps where they are coming from. If you've already had a breakdown and ended up in the ER to go to the psych wing, well after only a couple of shots of interferon - it could be extremely extremely dangerous to you later on. Interferon can cause severe depression to the point of suicide and usually those who show any signs of having had depression before ARE excluded from doing treatment at all costs.
They are probably looking out for your best interests. Are you already on antidepressents?
>>>>all he had to do was increase my ad and put me back on the right meds.
Perhaps he's worried that it's just not enough, this early on interferon perhaps he is insinuating you need a psychologist to do a redo on THAT med?
Have you had a biopsy? I don't recall what stage you are but perhaps you are a minimal stage fibrosis and the threat of the 'breakdowns' is much worse than the threat of the hepC doing anything to you?
In that case it would make sense to stop - not the get another doctor part (I don't know how literal that was) but the let's not cause you any mental/physical harm part.
I would be pretty darned ticked off at that kind of inconsideration of being dropped myself.
The doctor changing may foul up a move to Calif. I think you could pull it off once but to find a doc in another state long-distance would be hard for me. Try not to miss any doses. Going unmonitored can be a unsafe, too, but is a little less risky in very early TX. Any relationship with another doctor that could get you squeezed in for an emergency consult with a new doc? I think it's an emergency if you don't want to waste the first month, but really a month is not such a terrible investment to toss if it takes you a little while to find the new doc. I doubt it will make a difference in your response when you start back up. You would, however, be back to square 1 and couldn't count the earlier time towards TX period.
The doctor changing may foul up a move to Calif. I think you could pull it off once but to find a doc in another state long-distance would be hard for me. Try not to miss any doses. Going unmonitored can be a unsafe, too, but is a little less risky in very early TX. Any relationship with another doctor that could get you squeezed in for an emergency consult with a new doc? I think it's an emergency if you don't want to waste the first month, but really a month is not such a terrible investment to toss if it takes you a little while to find the new doc. I doubt it will make a difference in your response when you start back up. You would, however, be back to square 1 and couldn't count the earlier time towards TX period.
Sorry I confused you with the other summer that was on here but glad that I did.
You need to find a new doctor right away you are too early in treatment to miss a week of the meds. You have to. Do whatever you can to stay on the interferon and ribavirin you do NOT want to miss any time on it at all.
You need to find a new doctor right away you are too early in treatment to miss a week of the meds. You have to. Do whatever you can to stay on the interferon and ribavirin you do NOT want to miss any time on it at all.
I dont think I was very clear I have am only on my 3rd injection and what I meant by i only have 2 left is thats it my doc wont prascribe it any more no warning of anything so I am trying to find a doc who will treat me someone who specializes in hep c. and before I run out of the injections How bad is it if I miss a week of 2 trying to find a doc. I am now taking every precaution my husban hides an distributes all my meds, i will be seein a regular psyc doc starting next week also a therapist . I just feel like he could have atleast talked to me or explored the possabilities and then make a decision if after talking to me he still was not comfortable than I would understand and respect his decision but the way he did things was pretty chicken $#!% if you ask me. his nurse was more sorry than he was she made sure another referal was done emmediatly hoping I could be seen in time to not miss my shot. so i want to move claser to my family but not sure how that will work out finding a new doctor changing insurance all that stuff you all were not kidding when you said it meses with your mind, i just didnt realize how much.
Well as sad as this is for some reason I thought the other day your post said something which was much much worse than this does.............but I must have imagined that your family wrote it and am glad for that.
So sorry to hear about your sx. Its almost over! I've being seeing a Psyc. since the beginning. I'm thinking you you should look for a new Doc., one who understands the emotional aspects of Tx. I would be lost without my Psyc. I only see him once a month, but he has a lot of patients who are txing.
I was assigned a Psyc. right at the beginning. He has really helped me.
Remember the end is in sight.
Good Luck & Take care - Lynne
That's pretty bad, all right. The treatment is exhausting at first. That will get better.
Starting TX is extremely stressful and anxiety provoking. I think that may be what's getting you right now. That will get better but other emotional disturbance will likely enter the picture at some point. Interferon is well known for making psych issues worse, even little ones. It's just an SX of interferon. Few get out unscathed. I think your doctor was just terrified that you'd melt down on his watch. It's very cruel, but I guess they can choose who they treat. GI's are not necessarily good at treating the emotional issues that come along and I assume your doc knew that about himself. You will likely want to have a psych consult to present to a new doctor and offer assurances that he will always know every med you are on and that you WILL NOT change anything without informing him. If you need to line up counseling or psychiatry on the side to reassure him, better do it.
When interferon treatment was new, they required both a psych consult before starting and a thorough eye exam. Studies will not accept patients with prior psych problems, that's how common a bad interferon emotional reaction is. Hang in there and good luck on the new doctor search.
Starting TX is extremely stressful and anxiety provoking. I think that may be what's getting you right now. That will get better but other emotional disturbance will likely enter the picture at some point. Interferon is well known for making psych issues worse, even little ones. It's just an SX of interferon. Few get out unscathed. I think your doctor was just terrified that you'd melt down on his watch. It's very cruel, but I guess they can choose who they treat. GI's are not necessarily good at treating the emotional issues that come along and I assume your doc knew that about himself. You will likely want to have a psych consult to present to a new doctor and offer assurances that he will always know every med you are on and that you WILL NOT change anything without informing him. If you need to line up counseling or psychiatry on the side to reassure him, better do it.
When interferon treatment was new, they required both a psych consult before starting and a thorough eye exam. Studies will not accept patients with prior psych problems, that's how common a bad interferon emotional reaction is. Hang in there and good luck on the new doctor search.
just to say, good luck, am thinking of you and pulling for you. Sometimes the last mile of a trip is the hardest.
God bless
God bless
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