frequently the full effect of '"THE SHOT" occurs the day after or the day after....do not worry,yu will feel like sh!t soon!!!!!!!!!!!! GOODLUCK
Wk 7, you're getting there. It seems like just yesterday I was around Wk 7. I can't believe I'm saying this, but for some reason, tx is going faster than I thought it would. I just keep checking off weeks & looking for milestones. Like when I got the first month down, then 1/3 third of the way, then halfway. Now this Friday I'm coming up on #30 which seems to be a milestone. It's strange thinking, but that's how I get thru it. It also helps that I'm always so busy & have so much going on in my life with my kids & jobs. That's probably the biggest reason it's going so fast -- too busy to think about it. I'm just so very blessed to get thru this ordeal without many probs. (I wish my hair would stop falling out, but I'm glad it's thick). Well, Mkeela, best of luck in your journey as well. I hope it's only 24 for you. (Speaking of 24, I met Kiefer Sutherland last month, cool Dude!) Hope you continue to do ok!
As anyone's advice here is valuable - we will heed your advice, I don't believe anyone is trying to put their treatment under a microscope but I do believe they are searching for others going through the same feelings, both mentally and physically, and it is a way to converse and bond. This forum since I've been watching for the past 3 weeks, has provided both helpful feedback on sx so you do not have to put them under a microscope and can move on past them, as well as the compassion and kindness you do not always get outside the people who are going through the same situation. I hope you've been able to take this from the forum and let it help you with your treatment, it has certainly guided and helped me.
Kyle
Hi everyone. I just did my second shot Friday and went to bed waiting for the aches and pains. Nothing! Slept through the night. But the next day and today, I feel pretty draggy and achey.
I am so glad everyone shares their experiences on this board. It helps a great deal. Even the most minute details...because you never know when one of those experiences are similar to yours and you don't feel alone.
I am on shot 19/48. I try to control this tx try to find that combo of things to do to control my sx. This tx. is having a good laugh on me. Just when I thing I am in the groove bamm right hook followed by a uppercut and down I go. So far I have been getting back up going to my corner and begin thinking agian of what I need to do to avoid that barage of punches agian.
Hi Ejoli, shot 2 was a non-event for me as well and I was a bit concerned, but then the next one on week 3 was very similar to the first. Throughout the 48 there were a even a few times where I felt great the next day, but it wasn't normally like that. I could never really predict side effects, they seemed to go in cycles, I had slight nausea for a couple of weeks, think that was the riba, my vision went blurry for a few weeks too, was probably the peg. I thought in the first couple of months that interferon wasn't too bad, the ribavirin was the one that made me feel worse, but figured out after a while that (for me) the pegasys was a bit more subtle, it slowly wore me down, was able to figure out which drug was to blame for the various hassles that went with treatment. Good luck with the rest of your weeks, they'll pass really quickly. Second half dragged on for me, stick with it and it'll just be a bad memory soon.
Hi enjoli. Same thing happened to me with my 2nd shot. I swore I must have done something wrong because I didn't have any sides either. Just keep in mind that the first shot is the worst for most people. Everybody is different. It does get a little easier each week, but I always have 2 days after it where I am very fatigued & chilly, so I just take it slow on those days. When I get ambitious and try to do something physical like laundry or cleaning, my body reminds me that I took the tx, & I just don't have the energy, so I have to rest. Im at week 11/48 right now. My old Dr. had taken me off the shot for 2 weeks due to low platelets (around week 6), but I insisted I wanted to get back on. So my next shot (after losing the 2 weeks) was very much like week 1 again. Ugh!
I'm sure you're little round red rash will appear in 4-5 days proving that you did it correctly. Good luck with your treatments!!
Hi - I did shot 3 this week - Shot 1 was the chills, fever, aches, diahrea etc - Shot 2 - was fatigue and cranky - Shot 3 so far has taken the most out of me - have all of the sx and generally exhausted. Seems everyones posts here about expect anything anytime totally fits - I hope it goes smoothly and it's great to have the people here to help. Kyle
It is so easy to get confused here about what is and what isn't. I am pretty sure most people treating stop feeling the side effects from the shot it self after the second or third shot. The side effects I believe that is be reffered to as signs the treatment is working has to do with white and red cell blood count which by the way is ONLY a therory.
For all of you knew to treatment I have one piece of advice stop watching every second of your treatment under a microscope. 48 weeks is a long long time and a lot will happen in your life in that 48 weeks some of it have to do with treatment and some of it is just life. It is important to do your treatment correctly to ask you Doctors the right questions to seek help here or other places when you need it. But that is about all you can do.
I understand what you are trying to say and perhapes I did not make myself clear enough. I have been around the site for a while my own ups and downs with treatment. you may have seen my post last week about a viral breakthough after 26 weeks of treatment.
having been around a little while sometimes I read some post that make believe the poster is having a bit on anxiety about their treatment early on and what I was trying to say is that this is a long journey with many twist in the road. Just when you thinks are going great something rough happens and just when you think you can't take one more shot or another ribba pill your side effects clear up.
Some times I feel like some people are looking for problems like the first poster on this thread who was afraid the treatment wasn't working because he or she wasn't suffering from side effects that night. God I wish it was that easy to predict if the treatment was going to to work then a lot of us like myself would haven't to go maybe 30 plus weeks suffer through all the various sides to find out they may have to start again.
My only advice was relax a little one day at a time and don't loose sight of your life as a whole. If this offends you I don't know what to say
Just wait, after another 18 or so and you'll be swearing that you gave yourself an injection while you were sleeping.
I know you said you were relieved when you finally got the fever, etc, but taking the shots doesn't necessarily mean you will alway get chills, flulike symptoms every time. I've read here that some people only had alot of those major flu-like symptoms during the first several shots, but seem to do ok as time went on. But I'm sure you know everyone has different experience. I only had mild chills, aches after very first shot. After that, I've never had any fever or major aches/pains since & I'm on #29/48. Hope you're next one's better!
I was just curious and wondering what week of tx you're in. I know I've seen you on the Forum recently & wasn't sure how far into tx you are. I've been on forum about 1/2 yr but don't get to check it much on a regular basis cuz I get so busy and there are so many threads posted anymore. Can't check them all so I feel a little out of the loop sometimes.
It's funny you describe this so appropriately, thanks. Kyle
LOL...welcome to the tx roller coaster!!!!! If Forrest was on tx he'd say,"tx is like a box of **?**, ya never know whatcha gonna get" LOLOL. And thats the truth. Every week somethins been different on my ride...it's never the same exept a few sx that never change. And I do want to say that there are alot of folks that have cleared, even when they didn't have bad sx. I think someone just wants you to know that when the sx hit you, to stay in the right mind set, by remembering that it just means that the meds are doing thier job. Not to mean that if you don't have sx they are not working or something...LOL.
No, I was not offended or anything. I know that you are right about worrying unnecessarly. That's why I said that I was a little wacko...and it supprises me that I was being that way. I know life is about what you do between shots and 48 weeks is a long time. I'm sure I'm not the only one who stressed a little at first. I hope that you are doing alright. Take care...
Its alright...don't worry about asking questions, thats what we are all here for, SUPPORT! If you look back at some of the things some of us folks..(ahem...me) have asked you'd be laughing hysterically! I am one of the worst at panicking...then I post...then I feel so dumb sometimes...LOLOL...but we should never feel that way. One thing that I have learned on this forum, is to try and search the archives first to see if there are similar questions asked before mine...which 9 times out of 10 there is...but yet still I have my "wacko episodes" where I panic and am freakin out so bad that I just can't seem to search, not to mention that I am probably in need of some type of support just for myself at that time. There are alot of people here that are able to be of "unconditional support". Pay special attention to those special cyber angels, and as with any forum I guess, ignore the ones that aren't about that. You're fine. Blessings to ya!!!
I have yet to see someone here that wasn't about that (unconditional support)...well maybe once or twice, but all was meant in good faith. :)
Still a newbie I guess...lol...just here ALL the time. I just finished 7/24-48 Thursday. I only have to do 24 if I am clear at 12.
WOW, you're bookin right along at 29/48!! I love to hear about others journeys when they have came that far in tx...especially when it seems they have handled it so well!! Very nice to meet you! Blessings to you. Mkeela.
It REALLY does help so much to know that we are not alone. There aren't really many people we can share these things with in our regular lives. I used to sit down and be excited about reading my email, and now this forum is taking a close second to that. I think that sharing ideas, symptoms & feelings is a great form of spiritual therapy for us.
No you are not an idiot, shot number 2 was last night for me too and I also wondered what happened. My hubby gave me the injection and I swear I didn't even feel the needle go in, so I went to lay down and waited for the terrible sides and ... nothing! I did have a little bit of bady ache but nothing compared to the first shot. #3 will be a breeze right?