Is this the only place to go for info On Cryoglobulenemia?

I am new here just today, and I am on an Interferon and Ribivirin therapy and at the same time was diagnosed with Cryoglobulenemia. Is this the only info out there for this?
I am being treated through Barnes Hospital in St.Louis for the hepititis (hepatitis) C.
I was diagnosed over a year ago, and was put Anti-depressants for the side effects of the cemo' and have just finished my fourth week of it. I am awaiting results for a blood test just yesturday.
I had been having EXTREME pain in my joints and thought I may have Lyme's Disease, but they did tests and found Hep C and then they were concerned with my pain in my joints and so tested and sure enough, Cryo! I have NOT had to take any Vicoden (SP?), since my therapy started and they said that the cryo, would go away while on therapy, and I have had no pain since cemo, so they must be correct. I had been taking a pill or two a day for the pain and now NONE! It is a mixed blessing! It will returm though, they said as soon as my cemo stops.?
Why is there not more on this disease! No one seems to know much and I believe I am getting treated at one of the best places for my disease. The hospital there is very modern and up to date, yet they seem not to be worried much about this Cryo, "stuff".
I hear there is No cure?

[Kalio1]

I do not have cryo but a few here do. I hope they respond. What little I do know of it is that there are different types, do you know which type you have? Here is some info. about it. It's my understanding that Hep C tx is also effective on cryo.

http://arthritis-symptom.com/a-c/cryoglobulinemia.htm

[Cryo in Missouri]

Thank you so very kindly for your reply. I will go and search and see what else I can find about my disease. I sure appreciate the feedback as this one sure leaves me in the dark about what the future holds for me.
The unknown can be rather nerve racking and this sure doesn't do anything for it either, I know!
This is a very good place for people to share and I am proud to have found it, under the circumstances of my fate.
Again, thank YOU, and hope your day is good.
Philip.

[hippygem]

Here is some studies done on cryo and hepatitis c http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search&DB=pubmed

[giddyup]

Hi I have cryo. I have terrible joint aches in my hips and knees and to a lesser extent in my ankles and hands . It's interesting that you would bring up the idea of a cryo site because I was just thinking of that as I sat down to look at this sight.I think cryo is a little obscure for that but maybe its day will come.Hep c research has been expanding as hep c research is not an old field of science I think cryo research is evan newer. It also takes a back seat to hep c as the currunt thinking is that curing hep c will cure the cryo.I would be interested in info you can find about  cryo. However I don't think there's too much out there. Docs can't tell you what they don't know. Mean time best of luck on your tx. I'm functioning well as I take narcotic pain relievers daily through a pain managment center.I've been through 2 rounds of tx, but still have hep c.

[crazycanuck]

hi guys. i was dx with reumatoid arthritis about 7 years ago. then dx with hep c this past summer. now they say i was misdiagnosed for the ra and think it is cryo due to other symptoms.  will be getting tested by a hep doctor in june. so more info on cryo would be interesting. go figure! spent 7 years taking the wrong meds!!!