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Long term side effects of interferon
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Long term side effects of interferon

I will just jump in and ask if anyone has the long term side effects that I might be having. I was Genotype 3B but Stage 4 HepC as shown from a  Biopsy.  I was not a good candidate for transplant because I had no family or support system. The doctors fearing for my life gave me doses for someone twice my weight and much more often. They felt it would either kill me or cure me and my life expectancy was 2 1/2 years if I had no treatment.  I was on Interferon/Riboviran(?) from Dec. 99 to May 2000. It cleared the virus but not long after I had irregular heartbeats and It was determined that I had Macular Degeneration in my right eye. Since 2000, I have had trouble with my memory, kidneys, earaches, eyesight (very close to blind in my right eye now) and the irregular heartbeat. Okay so I am 58 years old and it could be the Hep C virus that did the damage in the first place and old age is kicking my ***. It's not like I took real good care of myself before I found out I had Hep C. I am eternally grateful for the Interferon treatment. Not being a good transplant candidate I would be dead now. What I really want to know is if others have eye problems that have been related back to Interferon. A couple of friends of mine who went through the treatment have severe eye problems also.
Thanks-
Susi
5 Comments Post a Comment
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Hi Susi, I had some sight problems during tx but now 6 weeks post tx I have not noticed much on that front. You should see an eye doc and tell your hep c doc.
Greg
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Greetings and Welcome. Your story is really amazing! I was wondering how your labs look and if you have had a biopsy or any other type of assessment of your fibrosis since being diagnosed with Cirrhosis stage 4 and subsequent treatment.

Congratulations on beating the odds and clearing the virus.

I am not sure about Interferon. Or Cirrhosis for that matter. So someone else might have insight to offer. I guess back then you might have taken PegIntron (???)  It says right on the label of the Pegylated Interferon something to the effect that it can trigger or worsen underlying conditions so who knows for sure. There are a few threads on related to this topic and someone else might post.

My husband developed age-related, dry (non-neovascular) Macular degeneration (AMD) a few years ago. He sees an ophthalmologist every year wears UV protected sunglasses and takes Beta Carotene (vitamin A) and vitamins C & E. I wish there were better treatments to halt or slow the progression and recover the vision that he has lost.

http://www.willseye.org/health-library/age-related-macular-degeneration-amd
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I am so sorry for what you are going through.   There are some people who had long term problems after treating, they may be on here later.
I had problems with my eyes both times I treated.  The doctor said it was related to the Inf.  I had very dry scratchy eyes.   My eyes did improve though I still have to use eye drops weekly, I can't wear contacts any more.
I also had ear pain during tx though that is gone now.  Have you tried looking up the medications you were on to see what the side effects were?

I hope you can find some answers.
Dee
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Hi, I forgot to mention that if you go back to where you posted your question there is a place that say "search this community" you can type in long term side effects and many threads will pop up
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me again :) here is one I found there are many of these threads, if I were better at the PC I could send but here is one to get you started

http://www.medhelp.org/posts/Hepatitis-C/long-term-side-effects/show/1585180
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