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Long term side effects of interferon
Dear all,
My wife was treated for her HCV in 2001 with interferon plus ribavirin. She was like a guinea pig and now, 8 years after, she is living with side effects that have never gone : hypotension (around 8), fainding every day, unbearable headaches, kidney pyelonephritis every months, and an exhausting fatigue that keep her in her bed sometimes several days, where she can hardly eat alone. Before that, she was so full of life, making car races, flying planes, being a model for photographes, and photographer herself. All the physicians and experts that she met told her that it was impossible to be due to the Interferon treatment, but before the treatment, all went well. She is so exhausted that she can't fight no more against medical community in order to admit the origin of her symptoms and to push them to try to find a beginnning of solution.
Is there any progress in the comprehension of the cause of these symptoms ? Are there some new treatments that appeared recently to counteract exhaustion and pains ? Do people group themselves in associations to better fight against this disaster ? Would you have some testimonies, books or adresses to advice us in order to be updated in the comprehension of these sides effects and their potential treatments ?
Any information will really be of great help,
With my best regards.
My wife was treated for her HCV in 2001 with interferon plus ribavirin. She was like a guinea pig and now, 8 years after, she is living with side effects that have never gone : hypotension (around 8), fainding every day, unbearable headaches, kidney pyelonephritis every months, and an exhausting fatigue that keep her in her bed sometimes several days, where she can hardly eat alone. Before that, she was so full of life, making car races, flying planes, being a model for photographes, and photographer herself. All the physicians and experts that she met told her that it was impossible to be due to the Interferon treatment, but before the treatment, all went well. She is so exhausted that she can't fight no more against medical community in order to admit the origin of her symptoms and to push them to try to find a beginnning of solution.
Is there any progress in the comprehension of the cause of these symptoms ? Are there some new treatments that appeared recently to counteract exhaustion and pains ? Do people group themselves in associations to better fight against this disaster ? Would you have some testimonies, books or adresses to advice us in order to be updated in the comprehension of these sides effects and their potential treatments ?
Any information will really be of great help,
With my best regards.
Are your posts that of a pharmaceutical rep?
My posts are of a person who suffers arthritis, disfiguring psoriasis, 3 years+ brain fog, gradually decreasing, and a disturbing deal of suicidal ideation never experienced prior to treatment.
None of these symptoms (with the exception of some degree of brain fog) began until one to two months AFTER cessation of thereapy,m which in my mind mnakes teh studies about side effects during therapy somewhat irrelevant and misleading.
Perhaps I am in the minority. Perhaps I am very unlucky.
On the other hand, perhaps there are enough like me that the 2 or 3 out of 100 saved are not worth the [who knows how many?] badly injured by the drugs.
We do not know the answer. We do know that there are a "significant" number of long term injuries, though.
Why has there been no long term study? Why no study of people 12 months afterwards, except from Australia with a national Health Service? (a study which called for more research and cited a number of patients, some with SVR, who questioned the benefit of treatment)
My posts are of a person who suffers arthritis, disfiguring psoriasis, 3 years+ brain fog, gradually decreasing, and a disturbing deal of suicidal ideation never experienced prior to treatment.
None of these symptoms (with the exception of some degree of brain fog) began until one to two months AFTER cessation of thereapy,m which in my mind mnakes teh studies about side effects during therapy somewhat irrelevant and misleading.
Perhaps I am in the minority. Perhaps I am very unlucky.
On the other hand, perhaps there are enough like me that the 2 or 3 out of 100 saved are not worth the [who knows how many?] badly injured by the drugs.
We do not know the answer. We do know that there are a "significant" number of long term injuries, though.
Why has there been no long term study? Why no study of people 12 months afterwards, except from Australia with a national Health Service? (a study which called for more research and cited a number of patients, some with SVR, who questioned the benefit of treatment)
LOL someone questioning the validity of MIkeSimon's articles and studies....if that dont beat all I'll eat that fried green thyroid.
Dear Big Pharma, please stop trying to make new drugs to cure hepatitis C. We dont need them nor want them because we will live forever, we all have beautiful shiny healthy livers and can't risk The Davil Intafaron.
Dear Big Pharma, please stop trying to make new drugs to cure hepatitis C. We dont need them nor want them because we will live forever, we all have beautiful shiny healthy livers and can't risk The Davil Intafaron.
"It is interesting to note that the younger you are when you get it, the less likelihood of serious consequences."
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Ramble.....Your above quote may be true but the bottom line is when you actually find out you have Hep C. If I knew 30 yrs ago, I probably wouldn't be on this forum today.
Jules
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Ramble.....Your above quote may be true but the bottom line is when you actually find out you have Hep C. If I knew 30 yrs ago, I probably wouldn't be on this forum today.
Jules
Amen to that!
It's a free country.
Thank you, Mr. Simon, member since 2002. I see you have today posted two recently articles published articles that peripherally counter the assertion that interferon treatment causes cognitive deficit.
Do you know who funded the studies?
As to the study above, what "significant" cognitive functions were improved?
Do you know who funded the studies?
As to the study above, what "significant" cognitive functions were improved?
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