Lovin life

Question

I've been on triple therapy since Oct 30, 2011.....I have to do the 48 weeks....I was und since week 4...I experienced every side effect listed, it seems, horrible..I wrote a post a while back about my experiences. Nobody (except us) understands what were going through. Family say the right things, sometimes. They expect you to do everything for them you nornally did. I went back to work right after I finished Inciveck. The Dr was skeptical and predicited people will soon forget your restrictions and it could hurt. The Dr was right it wasn't 1 week before I was assigned a complex project with an impossible deadline. I completed the project when I said I would. soon there were 9 hour days. My rash, fatigue, brain fog, itchinng all worsened. I was out for another week. Oh, did I mention my wife of 10 years filed for divorce at week 24, claims it has nothing with me being sick. you do the math. All I asked was to be left alone and an occasional bottle of water. I have custody of two children from a previous marriage, one almost ready for college. She asked for alimony, pendente lite....Aint life grand....Needed to vent.....thanks for listening

2mlbb · Answer

I believe there is a silver lining to be revealed at another time. I hope that you will post about it when it happens. Be strong and please continue to share here. We get it.

Best wishes....

marivirginia · Answer

sometimes our gifts come diguised as pain...hang in there and this will eventually not be the same...it will change....

slideman · Answer

I had a similar thing happen as far as the marriage went. I got divorced with  a 3yr old daughter after a 15 year marriage. Mine was shortly after a very drawn out soc tx in 2001. Tx is very hard on a relationship. I look back now and I realize that my marriage was not real stable to begin with. When I was diagnosed with hep, I had a radical change in life style, it probably saved my life to find out about the hep. I am even grateful for the hep now, because it really forced me to take a look inside myself and bring out the man I knew I could be, and the man my daughter needed me to be. When I grew up, my x and I really didn't get along. I am remarried now to a wonderful woman, and I am a very functioning absent parent. My little girl and I are very close and life is good. Hang in there!! Those kids need you to be there for them and put them at the top your list. There is lots of life after tx.

belle19 · Answer

we're here for you anytime.  belle

ready1600 · Answer

Thanks for the compassion, there seems to be little of it elsewhere. One day at a time, one breath at a time. I will survive.

ann61 · Answer

This is a great place to vent.  We understand the effects of treatment and how horrific the side effects can be.  It is truly sad that you also taken a hit in practically every other area of your life.  Take one day at a time and you will make it through this.  Good luck.

libzo2 · Answer

Now the Choir is singing -AHHHHHHHH


hahaha  I commiserate with all of you.  So nice to know someone knows what this is like and all the ramififcations that ripple into every facet of our lives.  "Ain't life grande?"  Yes

libzo2 · Answer

Now the Choir is singing -AHHHHHHHH


hahaha  I commiserate with all of you.  So nice to know someone knows what this is like and all the ramififcations that ripple into every facet of our lives.  "Ain't life grande?"  Yes

belle19 · Answer

i'm so sorry to hear of your problems.  you will get thru this though.  and you'll be in a better frame of mind after eot.  i wish you lots of luck to work everything out.  people just don't understand how sick we are even though we don't look it.  and shame on your wife for filing now in the middle of your tx.  doesn't have much compassion does she?  karma will prevail.  best wishes.  belle

BoceprevirGal · Answer

Oh no,  and I thought I had it bad :.(...
      I am thinking that quite a few marriages dont out-last this Triple Tx.
 Because we still look "fairly normal", people expect us to work just as hard as we used to...but it's just not possible sometimes (lots of the time)
    Thank goodness for your Und at 4 weeks, the main thing is, you've survived to gripe about all this crap life dishes out to us. 
                                            Take care, and dont forget to pamper yourself

pooh55811 · Answer

I am very sorry to hear of your problems and setbacks. Sometimes it seem like everything is falling apart. Hang in there ,and come to the forum often. Soon treatment will be finished and SVR will be right around the corner. Best of luck.

marivirginia · Answer

sometimes life is extra difficult...hang in there!!!

willbb · Answer

Thx pooh .
ready1600: best of luck to you..
Will

pooh55811 · Answer

I believe he is Stage 4.

http://www.medhelp.org/posts/Hepatitis-C/TREATMENT-UPDATES/show/1656986#post_7595126

willbb · Answer

Aint life grand
---------------
I.I was wondering why as a treatment naive and with an RVR you are doing 48 weeks.??
Thanks...

Will

Ironpony · Answer

I'm sorry:( 
 I wish I could take your pain away.

I can't wait for life after treatment...
One day at a time until then. We cant count on how we will feel or how others may treat us.
 We CAN count on the medicine kicking some virus as*...congratulations on that beautiful UND at 4 weeks. You are so far in...I am so proud of all you have accomplished.
people like you are my hero....I look up to you when I feel like I can't do this anymore. You're making it...so can I. Thank you for that.
Best wishes,
Laura

skiyaltr · Answer

you are venting to a pretty compassionate group.  the walking wounded.  even people that know you are doing treatment, forget that you are not 100%.

I have become alot more focused on many parts of my life and some people, like my wife, still don't under stand and this is the second time for tx.

I like your attitude though.  Hang in there, you are winning at the killing the virus.

1oftheclub222 · Answer

yeah, my kids are the same way, I told them i would be tired, i would need help, etc...i told them I may get grumpy...I think I have been pretty good with my temper during treatment considering my son got caught smoking pot and had 2 f's on his progress report, my partner got laid off and my mom is in anursing home with pretty bad hullicinationsand getting worse...I didn't even yell at my son, ha...but he threw the medicine card at me and told me i was not acting right...can you say "avoidance of the situation?"  

Ah well, we will be done soon and live a long life to torture them, ha

JasmineT · Answer

I think almost everyone who has been through tx can relate to the work and relationship difficulties.  If you are not on ADs, you should probably talk to your doc.  That would likely help a little.

As difficult as things are now, your outlook will begin to get much better post tx as you recover.  And then yes, life will be very grand.  Hang in there.