Lymphoma

Hi Everyone;  Anniejo here and I've been away for awhile.  I got off the meds for Hep C in october went back to work and am trying to get my life back.  I'm doing pretty good except my memory is shot to ****!  I'm still having trouble at work remembering my processes, but I have a wonderful co worker that helps me and each day is better.  I get anxious and nervous more than I ever did.

OK, I need to know if any of you have ever known of anyone treated for Hep C, got to be negative for the virus, but then discovered that they have Lymphoma?  I'm going to the internal medicine doctor after work to discuss doing a biopsy.  I'm really shook up by this latest problem.  Any feed back would be appreciated.  Thanks

[xracer1]

One week before I was to begin treatment for HCV G1 VL4,5Million, I found  that I also have Chronic Lymphocytic Leukemia/ Small Cell Lymphoma. I had to do many blood tests, x rays, ultra sound, ct scan, MRI, Bone marrow bx. Finally started treatment in Nov. for the hep c. (week 15) 12wk VL better than a 4log drop. Yahoo! the CLL/SCL are on hold but in addition to My GI Doc I see an oncologist/Hematologist about every two weeks and he handles my blood chemistry. So far I have had to have 5 Neupogen shots.  am thrilled with the tx results so far and the sx have been tolerable. Bottom line for me is the CLL/SCL is another dragon.

While I am sure that my case is not unique no one I have talked to in two year has ever hear of co infection like this.

[copyman]

Anniejo, what makes you think you have Lymphoma, have you been diagnosed already ? What kind of symptoms are you having?

xracer1, How did you find out about the Lynphoma right before you were going to start? did something show up on a test? Does the interferon / riba meds help with the lynphoma? I have heard that some cancers are treated with interferon and was curious if it was helping your lynphoma?

I have read that there seems to be a connection between HCV & lynphoma. Just one more thing to worry about. This is not just a liver disease.

Best of luck to both of you.

[xracer1]

My GI doc noticed WBC 30,000 and told me to go to my PCP to find out why after guessing about what it might be for about an hr, I told her refer me to an Onc./Hematologist and he ordered all the tests and Bone Marrow BX. That confirmed the dx. The Onc/Hem doc told me to deal with the Hep C and that he will watch me and treat the others when and if appropriate. The interferon does lower my white cell count and I am neutropenic from it but it does not really work on the CLL.

[anniejo]

Hi;
I'm sorry to have not answered and I do appreciate both of giving your input and information.  I just haven't been on the site for awhile.
I loved finding this site whenever I was facing starting treatment and I learned an awfully lot of helpful necessary information during the treatment time by reading posts from others, but I never really got into the loop whenever I posted.  So when I finally got thro my treatment, altho I fully intended to stay on to offer help to other newbies, I just wavered and slowly stopped logging on.   So, that said, here is the latest on me.
My doctor says the tests have shown no signs of Lymp, but I still have swollen glands.  I even went to a specialist and he said one of the swollen places I have in my groin area is a fatty tumor, but the other ones, we need to watch or we can take them out.  I opted to wait because my MD kept saying, "they will go away".  They haven't, but I don't believe they are growing either.
I just lost my job the first of May, so that is my newest crisis.  Thankfully I am testing negative for Hep C, I believe it is gone for good, but I believe my doctor wants to have another test after I've been off the meds for 1 year and that will be this fall.  I feel pretty good, then I don't really feel like I used to......I'm not bouncing back from the hep C and the meds. sigh