I am a newly diagnosed hep c geno 1 with a viral load of 700,000
i am going to get a liver biopsy soon. i am a newbie so my main concern is the mortality rate for hep c ? i have read anywhere from 5% tp 30%. also what is tx
It's natural to automatically assume the worst when you first get the news that you have hepatitis C. I did the the same thing when I was diagnosed two years ago (I was positive at that time that I wouldn't be alive a year later!).
Don't start making funeral plans. Even if your biopsy is "bad" (i.e. Stage 4, Grade 4), you would still have a very good chance of beating this thing with conventional treatment ("tx") and living a long happy life.
Yes, some people die from this diease, but that's definitely not the norm.
please do not get all worried yet. medicine is making leaps and bounds in the treatment of hep c as 4 million have it now and that figuere is expected to increase drastically as more people are tested. the success rate for treatment was 7% 5 years ago and is now closer to 50%. the above link should give you some hope and insite into improved treatments. at any rate it takes many years to get severe so do not give up hope.
I am only 33 and have stage 4 out of 4 and grade 3 out of 4. I did drink a couple times a week (give or take some weeks) and did go through TB tx 14 years ago. The meds for TB are very bad for the liver. Not sure how long I have had this but I can roughly guess for about 16 years.
I know now that with the hep c meds, I could live a long life still. I worry sometimes about "what if the meds don't work?" but God and I will deal with that once and if it occurs. Just live for today and do whatever is necessary to get rid of the hep c (in my opinion). Because, nobody really knows how fast they will progress.
No seriously, the "average" length of time to go from no damage to cirrhosis (not death) is about 20-25 years. But certainly there are folks like you who defy those averages.
The thing that scares me is that I may actually be someone who progresses super fast. I have no idea when I contracted this. For all I know, it could have been a year before I was diagnosed in 2003. If that's the case, I'm progressing rapidly (Stage 0-1). I would feel a lot better if I could pinpoint when this happened.
hey i dont think still using is going to increase your damage, heroin does not really do anything to your body except get ya hooked...it does not damage the liver, but while you are using you are more likely not to take care of yourself in other ways so...but if you are still using, hope you are not sharing works you can get re-infected ... hope ya can quit for good soon, have you tried methadone program, maybe maintenance or something??
Everybody freaks out at first but don't worry about dying just yet...I don't know about the rest of you but I had to go thru a sort of 'grieving' process when I first found out I had this...like I had to say goodbye to life as I once knew it and it was sad...I have to look at things differently now, be more careful and I don't like it...It's definatly life changing no matter what you end up doing, tx or not, clearing or not, it will effect me for the rest of my life I know that...
If this stuff is linear I should be okay. But I'm not so sure that's true. I have been relatively unsymptomatic all this time, but recently my wrists and ankles have been getting achy. I don't know for sure it's the HCV. It could be a combination of that and how I'm dealing with the Fosamax I'm taking for my bones. And the osteoporosis could be HCV related too.
To be honest, I'm paying attention to that study about 1's with a low viral load being able to treat for 24 weeks. I'm not getting any younger. I know, nobody is. But I'm in my early fifties now and I can only think TX will get more difficult as I get older. And I do intend to live another 40 years or so.
Hate to burst any bubbles, or any posted articles about younger persons progressing slower, but I'm 28 years old.. I was born with HCV, and I am a stage 3out of 4, and grade 2 inflamation. Age is not a determing factor at all as far as disease progression, as I remember a girl younger than myself,also infected at birth, and she was already chirrotic at age 16.
Age, lifestyles, diet, all might take a part, but I think genetics play the major role in determing who will progress, and who will not.
Mortality rate? What is the mortality rate for driving an automobile? What is the rate for obesity, heart disease, or fatty diets?
It will be interesting to see what my progression is...I know I have had this for 37 years, contracted HCV from a blood transfusion...I never shot dope, went to a nail salon, no tatto's, never been sexually permiscuous (SP)never shared a razor or toothbrush (ewww that's gross!)that transfusion is the only way I could of got it...I hope and pray that I am one of the few that did not progress quick and can wait another couple years to treat it...
Although the blood transfusion is the most likely culprit, don't rule out the nalon salon or even your dentist's office as possibilities. All it takes is an improperly sterilized instrument with an active virus on it making contact with your blood -- one time.
I don't fit into any of the catagories that you listed either. But in my case, I never had a blood transfusion, so that pretty much leaves me with the nail salon or the dentist....or aliens from another planet kidnapping me in my sleep and injecting the virus into me in some sore of weird experiment :)
Actually, your stats fit perfect into the 20-30 years to cirrhosis numbers that I cited. If you were a Stage 3 at age 27, you probably would have been at Stage 4 by age 30, if you hadn't treated. Of course, by now you're probably a Stage 1, on the way to a Stage 0. At least that's what I'm hoping for.
I think I've had it 40+ years (needlestick from a nurse when I was a kid). It has been at least 30 years because when I was in college they were confused by some test results and were wondering if I had non-A non-B hep. Then they decided that I had <i>had</i> hep B, but later said no, I never had. It was at that point that I decided doctors were nuts and vowed to stay away from them and their drugs as much as possible and leave my body be.
When I had a biopsy in 2003 that was stage 1 grade 2. So, you never know.
Tallblonde, this is only statistical evidence in some realms, but I've read that lower biopsy grade people like 0 and 1 tend to progress more slowly, sometimes much more slowly than higher biopsy grades. I happen to know more than few people in their 60's who still have grade 0 or 1 biopsies, I guess taking care of oneself and the genetic factor is working for these people, who can calibrate how much to attribute to one thing or the other.
As far as heroin use not being bad for the liver, that's an interesting observation, I for one don't agree with it. Heroin rots out the teeth among other things, like leaving you more susceptible to infection. If it does this stuff it doesn't wash to me that it could be completely benign to the liver. Just the constipation factor alone that comes with heroin use is pretty bad for the old system, not to mention your point about heroin users not being the most "health conscious" of individuals. If youre constantly introducing a substance that shouldnt be there to your blood stream, the liver is the main organ that filters it out - not a good idea to make it work overtime when it has so many other duties, unless you have some super constitution, and there are those out there.
I just want to make sure that anyone reading your post above doesn't get the impression that you were addressing me in the second paragraph. It was someone else (definitely not me!) who made those comments about heroin not being harmful on the liver. I have no experience with heroin, but my common sense tells me that it's probably not a liver-friendly substance.
I know.....I sometimes have these tempting thoughts of throwing caution to the wind and giving the 24-week plan a try. Certainly someone like me with a VL of only 714 IU/mL would achieve SVR in that amount of time. Or would I? Or would I? Or would I?
Argh!!! It's maddening! I want guarantees, damn it!!
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