Mouth and Throat Pain

Well I am in shot 21/24.  1A Peg and Riba.  About a month ago, my mouth got really sore.  Went to the hep doc and he said I had what they call strawberry tongue (ha, hadnt even been eating strawberries!)  Anyway, it has progressively gotten worse to the point that I can hardly swallow and have red bumps on back of tongue.  VERY PAINFUL!

Been to PCP and had strept test done (awaiting results).  The hep doc said she thought it might be stomatitis.  What the heck is that?  Has anyone ever experienced this?  She is calling in a steriod paste for me to use.  Sounds Disgusting!!!

HELP!!

Shari

[charm27]

my friend sons had stomatitis. He is 2 years old. Its inflammation of the mouth lining due to hygiene
habits. Kids get it.

Probably just another darn sx from INF and there  calling it stomatitis???
Hope you feel better soon.
keep us posted

[debnevada]

get your pcp to have the pharmacy make up magic mouthwash. has benadryl, nystatin and some other things in it....Gish ordered it for me.  you swish and spit the stuff.  works great.

[charm27]

Good to know if I need it..i will know what to ask for... I will write that down and add to my list.
thank you

Seems like only the females get this.

[chevyelcam79]

She actually called in a steroid paste that she wants me to try.  

This is the email I received:
It sounds like you may have stomatitis (mouth ulcers in mouth and throat) from treatment. This can be severe in rare cases with this therapy. As I eluded to in my last email, the viscous lidocaine is simply a numbing agent to allow you to eat and drink with less discomfort. This solution will not make the problem go away. There's a steroid paste I can prescribe that you put in your mouth at night or at times during the day when you won't be eating or drinking for a couple of hours. This can help with the inflammation and pain. It doesn't work immediately and may not take the problem away completely but it should improve your symptoms. The bottomline is that as long as you're still on treatment, you're at risk of this problem coming and going. Let's try the steroid paste.

Ok, how do I do that during the day when I am supposed to drink water like a fish?.........

Shari

[dogsledder]

I have severe mouth sores and was given Mycelex. Cleared it up in about 8 days. I use Biotene mouthwash and toothpaste for dry mouth syndrome. It's important to drink lots of water too. If the mouth gets too dry it changes the pH and all kinds of funky things grow.

[wyntre9]

Oh YUCK!

Sounds horrible!

I've had corner of the mouth sores but nothing like what you describe.  (yet).

Good luck with treating it.

wyntre