This forum is for questions about medical issues and research aspects of
Hepatitis C such as, questions about being newly diagnosed, questions about current treatments, information and participation in discussions about research studies and clinical trials related to Hepatitis. If you would like to communicate with other people who have been touched by Hepatitis, please visit our new
Hepatitis Social/Living with Hepatitis forum
OH, & BTW, I threw away the brush that I used on that one day that my gums bled.
Welcome aboard! Grab an oar!
E
It really bugs me too that the nail salons just use the Dremel (sanding) tools on everybody. I went to one nail salon who gave everybody their own nail files & those little spongey things that they use to buff the nails & Kept them in our own personalized container. Sure, that's all great, but what good does it do if they are using the same sanding tool on every customer? The sanding tool is usually the culprit that knicks the cuticles.
BTW..my nails look like **** right now..I'm doing the transition of quitting the salon.
E
Hi aiuta!!! I hope you had a nice weekend!!!
E
But most people have NO IDEA that it is so possible and assume it's mostly druggies / ho's that have HepC .
Like with AIDS being a "gay disease" nobody cared very much about it at all until them men started bring it home to their wives.....etc.
IF Congressmen and the like realized that their beloved wives/daughter/themselves could get this disease from a mani or pedicure - I bet it would change things big time.
I laughed like h3ll the other day when a man outside a nail shop tried to give ME a coupon to go in and I said no thank you and he kept PURSUING me about the big sale...I finally said No I have hepatitis but thank you = and he literally turned and almost FLED trying to get away from me. When I a minute before he was trying to pull me into the salon.
Don't know about the "ho's" but its mostly a druggie disease..
BBunch you got it, why isnt the public being warned? I think one reason is the medical sstem would collapse under the weight of numbers if they tested everyone routinely is one reason. They dang well know it is happening yet the Govt is silent and continues to hold the line that drug use is how you get it, so people dont get tested because they dont have a history of drug use.
I also think we are being exposed in clinical settings and they know it is happening but they have no idea how to prevent it.
New hepatitis viruses are being discovered all the time, Hep C isn't the "newest" one unfortunately. You cant test blood for viruses you cant recognize! time has to go by, people get sick and THEN they are "discovered" Scary stuff. Sure makes me want to stay healthy and AWAY from hospitals (germ factories) and do my own nails! Those little dremel things should be BANNED.
I know those ear piercing guns were taken away from the malls awhile back but think of all the people that had them done back in the day. I think EVERYONE should be tested for this but the stigma stops people from asking their doctors for the test. they fear their doctor thinking that means they have a past IV drug use history. Ugh.
HepCBoy: "Don't know about the "ho's" but its mostly a druggie disease.."
Upon what evidence is this matter of fact statement made? Perhaps sheer ignorance?
I'm sure that the millions of health workers and/or transfusion/transplant victims who have contracted it might very well disagree with this statement.
60% is the figure quoted on the CDC website http://www.cdc.gov/ncidod/diseases/hepatitis/c/plan/HCV_infection.htm which is the lowest figure I have ever seen, still meets my criteria of "mostly" though. . You will note that they also claim that 15% of people are infected sexually, that is simply wrong. But what the hell its the CDC they must know what they are talking about right? Look at the pie chart, would the man in the street be wrong to classify hep c as mainly [at least 75%] affecting sex crazed junkies?
"Nine hundred and twelve cases of newly acquired hepatitis C were identified, representing 2.8% of all HCV notifications for this period. The majority of cases (72%) were diagnosed in people aged between 20 and 39 years. Injecting drug use was reported in the vast majority of cases (93%)"
http://www.medscape.com/viewarticle/468371
"Among anti-HCV positive individuals aged 25-44 years for
whom a questionnaire was received almost 86% reported ever
having injected drugs, confirming the results of national
laboratory reporting."
http://www.hpa.org.uk/publications/2005/hepC/default.htm
Now bear in mind that Doctors don't just sit on their backside all day swapping stories and comparing tax plans, sometimes they check liver biopsies for talc, yes talc. They find that of those with talc in their livers who denied drug use most of them are liars.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=8540508&dopt=Abstract
I think its time we all stopped kidding ourselves. Hep C is a very difficult thing to catch other than via IDVU, especially nowdays with the almost nil risk from blood tranfusions. Now I can hear what you are thinking, what about all the health workers who get needlesticked that must add up to a fair old chunk. The facts are that in the UK in 2004 six [thats right 6] health workers caught hep c via needlesticks.
http://www.hepcuk.info/content/news/story.asp?nid=1&sid=302
When all said and done all we are debating is whether hep c is mostly a "junkie" disease, overwhelmingly a "junkie" disease or almost always a "junkie" disease.
They also report that less than 4% of the US population is infect, yet samples drawn across the nation are showing that results indicating that 4% or more are being found.
But one can say the 1 out of 3 fits their definition of "mostly" so I guess as lone as one uses vague nebulous terms they can go around making any claim they want and say it fits "their" definition.
But that's OK, just continue to propogate the notion that it's simply a druggie disease and then wonder why it remains the silent epidemic and why research for newer more effective treatments is lacking or why research for a cure is not happening.
This is the current release of the guidelines from the AGA, published in Gastroenterology (January 2006). MAJOR RECOMMENDATIONS
Screening
Routine screening of all asymptomatic adults, who have a low prior probability of hepatitis C virus (HCV) infection, is not recommended.
Well thanks a lot. I have the Red Cross to thank for dx Hep C when I went to donate blood. I have been sick for almost 2 years and have been tested for everything under the sun except Hep C so this is where it has come down to. I am not in the high risk group and was completely shocked!! I tell everyone I know to ASK for a Hep C test when they get their routine blood work done. I am appalled that the recommendation still says those with low probabibility should not be tested.
No.
That said I guarantee you 100% that not *all* of them are telling the truth though.
I think that all heppers need to accept that the stats prove that this is largely a disease of drug abusers [UK/USA], those that contracted it by other means need to be aware of that more than us ex-druggies.
There is a sigma attached to hep c , personally I don't think that is because of the drug use profile, I think its because people do tell lies about likely routes of infection. I think many people are faced with a choice of telling the truth or not and some choose the wrong path. I think that damages the entire commuinity.
To my ignorant eye the problem sems worse on the US side of the pond, it seems there are some powerful financial incentives amongst certain demographics that drive the pushing of "plausible" infection sources.
I have told my friends about the issue with nail salons but they have not heeded my advice.
My point is, we have to find those sources and warn people they exist. It isn't as if "they" are out there testing and examining these modes of transmission and keeping data. Far from it. Prisons and rehab centers are where that data comes from, we need more data if 20 - 30% +/- contract it some other way.
Yes, IV drugs is the #1 way to get it, BUT it is not the only way and to say it is keeps MANY people from testing due to their lack of drug use history. My doctors did not ( and I saw 5 in all) one of them even think to test for it and later mentioned "there was no sign of drug history" as the reason. This is one of the KEY issues/myths we have got to put to rest. We have to educate people about the OTHER possible modes of transmission.
500 million is the statistic used in this year's Hep C awareness day info
What angers me and many others on this forum is that, because of the assumption that IVDU and transfusions are the main causes of hcv, we've been running around for decades with the virus damaging our bodies, and we were never tested. Had I been tested twenty years ago, I wouldn't have stage 2 fibrosis and all sorts of autoimmune disorders. More than the stigma of hcv, the failure to test everybody on a routine basis is extremely disturbing, and dangerous.
Now I'm a liar :)
Try this link http://www.hepcuk.info/content/news/story.asp?nid=1&sid=302
>nobody knows the percentages because nobody is testing large groups of people without regard to "risk factors."
How large do you want? Try 15,000,000 US blood donors who give at least yearly.
http://digestive.niddk.nih.gov/ddiseases/pubs/chronichepc/index.htm
http://www.emedmag.com/html/pre/gic/consults/071504.asp
Elaine,
I have read from several different sources it can live through bleach. To be honest with you, I don't know what kills it. Maybe it is the concentration of the bleach that matters? Time does kill it eventually but it takes days. Most say about 4 days but I have read longer times too. Who knows who is right on that one! Is bleach what you were told to use for clean up?
I just think that until we reach the point where people are open and honest about likely infection routes it will be hard to get the non-IVDU routes indentified. I think throwing up "plausible" but unlikely routes of infection harm that process.
I don't agree with you on the research though;
"Relationship of cosmetic procedures and drug use to hepatitis C and hepatitis B virus infections in a low-risk population."
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=16871571
NO ONE.
Lots of people, see the link in my previous post for just one example.
In the UK it is a notifiable disease, combine that with acute cases [hep b too] and that acts as a decent early warning system of possible current infection routes.
There are an estimated 100,000 needstick incidents in the UK NHS each year, in 2004 resulted in 6 cases of hep c, or 1 case per 16,666 needsticks. Or to put it another way, walk into your nearest hospital pick up a needle, stab it in a random person and then into yourself. If you did that every single day it would take you over 45 years to be 100% sure of being infected. Thats how hard hep c is to catch.
Hey...here is a question..if you can't get HepC from a needstick then why are there so many doctors and nurses in my HepC Support Group? Hmmm?
I was just at the dentist and told them I had HepC and they said not to worry, we autoclave all our instruments. But what about that plastic suction thing? Then they showed me a jar of this super cleaner newest on the dentistry market and they said "oh this stuff kills all viruses, bacteria etc. So I read the small print and it had a long list of viruses it kills and HepC wasn't on the list...so I said "Well? What about this stuff?" They just looked at me like deers in the headlights abd changed the subject.
B-bunch
Good eye!! I think I would have probably pursued that converstation tho. I bet none of them knew the answer, but I bet they're been reasearching it now!
E