Not a question but a good-Bye

[EyesofBlue55]

First off i would like to wish good luck to everybody that is fighting this dreadful disease.Bill1954 was the first to comment on the question that I asked back then and we have become good friends because of my hep c diagnosis.You people are the most compassionate I have ever met,,it was the first forum that I ever joined.You made me feel like there WAS a light at the end of the tunnel.
  I have now been diagnosed with lung cancer.I am still in shock and have been told that it is inoperable.The prognosis for a 5 yr survival is very low.And with the hep c it is going to be a complicated case.
right nowI am scared,depressed,dont know but know I will be gone soon,sooo many things running through my mind.
I thought that I was a strong person but now I just want to curl up somewhere and get it over with.If you smoke-dont ever think that it cant happen to you-it can
Ive been to the cancer forum and there is no activity there,its sad because I really need some support and am not getting it through medhelp.My emotions are running wild.
I know God has a plan for me .Like the song"Everybody want to go to heaven but not right now" Gosh that is soo true!
Anyway please pray for me.I need a miracle.....later   always think of you all    cindy;)

[orphanedhawk]

Here is current news on our blue eyed friend:

http://www.medhelp.org/posts/Hepatitis-Social/Just-checking-in-with-update-status-for-many-who-are-wondering-bout-me/show/1837389

[JL8896]

Don't give up! An oversea friend from Hong Kong, China!

[blondie717]

  Hey EyesofBlue55, has a second home now.  The support over there is overwhelming. Just like it is here!  I am just saying that if people want to drop in and say hi to her some time in the future.  Also there is a Hep C site there. not a lot of activity on the hep C side, however there are a lot of people/newbies there that need some support. I have referred 3 people here so far or I should say told them to pop in here. In two day's 2 peoples have asked what SVR is...
So Miss Cindy aka EyesofBlue55 has the same name over there on the LC forum (lung cancer) and to be more specific on the Limited SCLC section.
I am sure she  know's how much support she has/had here. Heck she's even spoken of DOUBLE TX haha
Personally I feel like (like or dislike) this is the best Hep C forum around (besides that other one that I keep forgetting the name of).. But if you have LC (lung cancer) , then one goes to Inspire  . COM..
Thats all.
*****With kindest regards I am Ginger****

[starshine1ca]

Sooo much love and support here for you....you truly are soo loved!  My heart truly aches hearing your news and I cannot imagine what feelings you are going through right now....I truly do believe in the power of prayer and faith healing.  Never give up...there are so many that have overcome this illness, through faith and prayers.  Believe in a miracle. Dr. Wayne Dyer said, "You will never see what you don't believe."  He is so wise...

Be brave...Anita

[katla]

I was so very sorry to read about your diagnosis. I hope everything works out in the best possible way...❤ ❤

kat

[ellen1960]

Please go to livestrong.org for information and support.  Its a great site.  Best of luck to you.

[rambleon40]

"Falling Upward" and other things by Richard Rohr.  "In Defense of Food" by Michael Poulan.  

Nourishment for the soul and body.

[sherritaylor12]

I know this is a blow, but if life knocks us down all we have to do is look up.  The support and love on this forum is amazing.  We are all sending good vibs and best wishes your way.
Happy Trails,
Sherri

[mikesimon]

A dear friend of mine was diagnosed with stage 4 non small cell lung cancer 4 years ago. Anne treated in a trial with Erbitux, chemo and radiation. If you met her today you would never suspect that she was sick. It is really amazing - she looks fantastic - and for a healthy person too, not just a sick person. We have dinner with her every week and I can't get over how good she looks. She drives herself and shops for clothes and groceries and has a great social life. For a while Anne's Husband carried a small oxygen tank to the restaurant where we eat dinner but she hasn't had it with her for maybe a year now.

I watched the Erbitux trial carefully and generally the results were not encouraging. There was, however, a subset of patients who did better but I didn't see any results anything like my friend. When she was diagnosed 4 years ago they estimated she had about 6 months to live....and she went for a couple of second opinions including Sloan-Kettering so she was seen by real experts. I really believe they don't know what to tell her.... except that her tumors have shrunk considerably and are barely observable.

I always believe the first step toward getting well is to have hope and this is just one story that might help you keep hope alive.

I wish you the very best.
Mike

[CoWriter]

Dear Cindy:

I'm so sorry about your news.  Don't give up.  There are other options.  For example, Metformin, which is an insulin sensitizer used to decrease insulin resistance, is anti-cancer.  Yes, lung cancer.  It also makes chemotherapy more effective.

It would be a great option since Hepatitis C causes insulin resistance. I'll find you the studies.  I have them...somewhere.

Then there's Naltrexone....and vitamin K which has been used to induce remission....and diet.  Cancer thrives on carbs.  I'll find you the article I have about that.  : )

Co

[blondie717]

Inspired by ...
My oncologist says he has had patients live with sclc for 10-15 years. This beats any stats i have seen 3 fold. So everyone out there with sclc, LET'S MAKE PLANS FOR TOMORROW , THE NEXT DAY AND THE DAY AFTER THAT.

Hey 1:15 am. over @ dat sight. I sent ya a friends request. I copied this off someones page Im hanging on the Limited sclc ,and the two sclc. Man lots of good results even for typelV.

[EyesofBlue55]

I dont understand why med help would block the site you were trying to give me.I AM A HEPPER too,It seems that they would understand that you were trying to help me.Its because it doesnt have anything to do with hepatitis.Anyway I figured it out and thx.

Agit-weyeyy- sdjuuiiii-   LOL   you know what I mean

[blondie717]

  Well rapca Do You speak pig latin? Guess MH dont like us viewing other websites ? I lost your email!!  Inspire-they. com  hehehe. I feel like a guard is reading the mail. Wonder if computers speak pig latin. hum??? Think its on Google translate?

[blondie717]

  *********** (drats I got censored? ;-) ) above. So just type in ***********  where this site blocked it.

[blondie717]

Hi cindy. been looking at this forum. for some hours. I joined it. The link is @ the bottom of this page. It seems to be more active than most. I found some of the remarks very encouraging.  I dont know how the board works yet so I pasted a part of the post. Hey they have acronym's for this disease as well ;-0 . And it seems some are going forth w/radiation of the cranial after lung diease to avoid BC (brain cancer). NED = no evidence of disease Hey some of these soldiers even report no sx ;-), some continue work ;-0,its just a whole comunity of well informed limited SCLC cancer support/survivors and I think it could help.. They even have a hep c side. so Im going to slide my rear over there and take a peak. Will it be dark or light? ;=0)  ****Ginger**** .                                                                                                                                                                                   until they do more scans next month but take it from me...there is hope so don't ever give up. Will keep your dad and family in my prayers. I know the whole thing really stinks!
I just joined this site and have read some amazing and inspirational stories. I've decided to quit reading all of the "statistics" and let my mom fight her individual battle. I'm so proud of her!

Reply

By davesgirls03
Reply 2692612
December 16, 2011 at 9:17 am
Report post
I didn't mention that Dave was extensive stage when he was diagnosed on 9-5-2010. He does not follow a specific diet.

Reply

By luvhubby
Reply 2692805
December 16, 2011 at 10:25 am
Report post
My husband was diagnosed in Oct 2008 with SCLC Limited stage. He had 4 cycles of chemo..25 lung radiation treatments and 10 PCI (brain radiation) treatments. He went back to work in May 2009 after his treatments were over and is still working today and is still NED (no evidence of disease) which is what the Dr's seem to say today instead of cured.
His biggest issues were fatigue of which it was the worst after the PCI treatments...kicked in about a month after the treatments were over and it lasted about 7-8 and then dissapeared overnight. My husband was in a clinical study that gave him a stronger dose of radiation than was normlly given and he did get a sore throat that lasted about 2 months. My profile picture shows him in May and he was back to his normal weight and feeling pretty good. He is 63 and does have some SOB (shortness of breath) due to the radiation, but he tries not to over excert himself. He is doing well!
They say with SCLC it is always good to get into a clinical study if there is one in your area.
Wishing him all the best!!

http://www.***********/groups/lung-cancer-survivors/discussion/sclc-6/

[blondie717]

Hey Cindy what i meant to add is that these trials are being done @ Emory. So you might ask your doc about those trials and find out the pros and cons of doing a trial.   Ginger

[blondie717]

http://www.medscape.com/viewarticle/749207

http://clinicaltrials.gov/ct2/show/study/NCT00632853?term=small+cell+lung+cancer&recr=Open&rank=37&show_locs=Y#locn

http://clinicaltrials.gov/ct2/show/study/NCT00632853?term=small+cell+lung+cancer&recr=Open&rank=37&show_locs=Y#locn

Hey Im getting pretty good @ copy n paste ;=)..  These are just 2 trials that offer the current SOC for (SCLC) and both are being done @ Emory. Phone ringing. TTYL   Hugs Ginger..PS I like the first one best. It uses the word cured I believe. And the chances there are greater

[Allison1965]

Hi my name is Allison.  I have a friend that was diagnosed with stage 4 lung cancer in September 2011.  He was not given much chance at all, they started chemo and in November it was not really helping.  Then they decided to give a new drug called Xalkori a try.  Here is a web site that talks about it.  I am sure my friend would be glad to talk to you about his experience, if you would like, I will contact him and ask if I can pass his name along to you.  He is on Facebook and I am sure he would be glad to give you some support.  http://www.medicalnewstoday.com/articles/233439.php
This is the website.  Good luck and again let me know if you would like me to talk to my friend about sharing his experience with you.  PEACE~HOPE

[blondie717]

  Hey the big one got away. But heck I'd rather talk to you , than gut a fish ;-) .. Well sweetie. Just keep positive...  Cry, laugh, through a fit if you want...  Hey anytime feel free to call me. I dont care if its 3am.
I like the sound of the cancer tx centers of america.  Peggy was told to go home and get her affairs in order. 10 years now. And shes riding her horse. Ginger

[EyesofBlue55]

Thanks SOOOOOO much for all your kind words and prayers.It really does mean alot to me.I am OVERWHELMED with all of your support for me while I go through this.And I will keep all of you(my Cyber Buddies)in my thoughts and prayers also. Love to All   cindy

[Dee1956]

Thank you so very much for your information above, it helped me very much,  I imagine as always it helped others as well

[Dee1956]

I am so very sorry to hear of this.
For once in my life I do not know what to say and believe m I am a chatty cathy
My thoughts and prayers are with you now and in the future
Dee

[ann61]

Cindy, I am so sorry for your diagnosis.  I can't even begin to imagine the pain this causes you.  Please know that your are in my thoughts and prayers.  Once you get over your shock, I hope you find peace and happiness that make each day in your life the best day in your life.  Ann

[screaming48]

hang in there, new stuff comes up all the time, I am sure several of us have known someone with lung cancer I have and the treatment is rough, one of my friends did well on it and is now cancer free. I will be keeping you in my thoughts and prayers, and don't leave we are here...anne