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I know what you mean about listening to others problems, and sometimes even listening to the wonderful svr news can bring you down. it is the nature of the darkness, it envelopes the good and the bad.
be well
*(i hope that i have not offended anyone, i have just spoke my heart)*
He said you screwed up, and for that you will be punished beyond your wildest dreams.
Snap out of it?
Snap out of having my life ruined?
Snap out of getting shitty medical treatment?
Snap out of saying the wrong thing to the Dr. and getting put through the shredder for it?
Snap out of wanting to be well?
Snap out of not being allowed to grow old with my wife?
Snap out of wondering if she will be taken care of now that I have no insurance?
Snap out of not being able to see my grand daughter grow up?
Snap out of being looked at as a leper by others?
Snap out of all my dreams and hopes being crushed forever?
Snap out of it?
Won't someone please come forward with a nice "get over it" to put the icing on the cake?
I just want it to be over. All of it.
Since you have shown strength before, I am hoping that what you do is not give in to the quicksand. take the time to recoup and plan your strategy for living. include anyone you need even us.
"I have not been here much lately because I was getting bummed out reading all of the problems...."
Hey but thanks so much for brightening my day with the **** about the slow death. Nice reminder you gave all here.
Heres advice for you- since you seem? to want some-
-Quit blaming your god
-Think before you type (others may be worse off than you, and not need to be knocked down even lower)
- Change your nickname
Why are you here? because i am here to lend some support and recieve some support. This is a two way street. ;)
Wasn't aware more than that was REQUIRED.
Last time I checked, nobody gets out of here alive...
some members here actually post helpful advice (I apprecaite and use)
Take your own advice. You don't know everyones situation (I'm just not whining about mine)
'doesntwant2live' should visit someone like me (hey, check out the ascites, lookin good!)--- maybe he/she would snap out of it then and get on with life.
"I hope that God does not punish you like he is me....
"People get what they deserve...."
Yep, real nice view there.
I don't choose to think I'm being punished...
and I sure don't think I "deserve" this.
(So I posted my own "comment")
Swallow your pride, suck it up, and get help. The black hole you are in is DRUG INDUCED and is not a character flaw or punishment (even if it feels like it is!) Do something about it. There is help for it if you want it.
You have other choices. Stopping treatment is always an option. Dying a slow miserable death is also an option. OR, you can live every day you are given and be grateful to see one more sunrise. No one is guaranteed X number of days. ANYONE can be hit by a bus or taken at any time. Life has no guarantees for anyone, hepC, treatment or not. You never had a promise of seeing anyone born, never mind grow up.
If you want help getting disability, using the ADA, or any other information on how to make the benefits you are entitled to work for you, I will help best I can.
thanbey
****************************************************************
The Answers to "Why Me?"....
A Victim asks how long will it take to feel good.
A Survivor decides to feel good even when things aren't so great.
A Victim grinds to a halt.
A Survivor keeps putting one foot in front of the other.
A Victim wallows in self-pity.
A Survivor comforts others.
A Victim is jealous of someone else's success.
A Survivor is inspired by it.
A Victim focuses on the pain of loss.
A Survivor cherishes remembering joy.
A Victim seeks retribution.
A Survivor seeks redemption.
AND MOST OF ALL:
A Victim argues with life
A Survivor embraces it.
Keep on keeping on. Yesterday I went in for my dumb doc appointment and finally demanded copies of my blood work and discovered he was wrong about my wbc count and it is not dropping like he said. I don't think I will need neupogen like he was saying.
My point is, do what you can and deal with the rest. I want my life back. I keep trying to remember "THESE DRUGS ARE STRONG AND MAKE US FEEL WACKO" I think we are sentenced to "Life" ONE DAY AT A TIME" Sometimes by the hour. If a pysch is for you do it. Mayby it will help. I think Eyedeas is right
dh bill
I do get angry with anyone who implies that any of us "deserve" this.
(that's why I advised her/him to THINK before making comments like that)
THanbey---
GREAT advice.
It sounds like your doctors have not been very supportive for you. Is there a chance that you can find a different doctor/doctors to work with? Finding the right doctor is essential in making it through tx.
I think that your feelings are from the interferon/ribavarin. You need to get some anti-depressants and change doctors, get some kind of assistance. Perhaps one of the drug companies can put you in a study. I don't know. I know how hard it is when you feel that way and I know how hard it is in tx, but you've got to do it. If not for you, for your family. Anyone who talks about wanting to see their grand-daughter grow up has something to live for.
If everyone got punished according to their "sins" and rewarded according to their good deeds, the world would be a better place. Unfortunately, in this world, unfair **** happens to all of us and our good deeds sometimes go unnoticed. Please reach out for some help--you deserve it, you've earned it, and you should have it anyway.
Stay here and ***** as much as you need. That's what we're here for.
I too have felt many of the feelings you listed in your post. When I was first diagnosed in 1989, I thought my life was over and that there was no point living with such a "terrible, dirty disease." I went into the worst depression I've ever had (I have a long term history of depression). I thought no one would ever love me again or want anything to do with me. I contemplated ending it all. Well, THAT IS SO WRONG!!!!! It's the depression talking. People have ALL KINDS of medical conditions that they didn't ask for. You have two choices, 1) Wallow in self pity, 2) Accept that you have a medical condition which needs to be managed and get on with living! Life is a GIFT from God even though it doesn't seem like it sometimes. Life is a blessing and I hope you can come back to seeing that.
In your previous posts, you've typically been upbeat and an inspiration. I can't help but think these meds are really getting to you. As others have mentioned, please reach out for help.
Take good care and best wishes with whatever you decide.
He was crucified for our sins and chastised for our mistakes. He loves us so much that he sent his one and only son here to pay the penalty for us so we could be free of condemnation... all we must do is place our trust in him for forgiveness and not in ourselves...none of us could possibly be perfect enough to stand in the presence of his Holiness... we need His gracious forgiveness,provided by Christ... and all we have to do is ask for it, and it is ours forever...and we start over with a clean slate...
there will always be a bunch of **** on this earth to deal with but, he has promised to walk with us and give us peace through it. HE WILL NEVER LEAVE US NOR FORSAKE US...HE LOVES YOU TO PIECES AND"WANTS YOU 2 LIVE".....SANDI
I AM WORRIED ABOUT YOU..U SEEM TO HAVE HIT ROCK BOTTOM HERE.
AND FEEL AS THOUGHT THERE IS NO MORE HOPE LEFT.
I DO NOT KNOW WHAT STAGE U R IN OR WHAT WEEK OF TX U R DOING.
I CAN TELL U THAT I AM SVR. I HAD THAT WILD TEMPER GOING ALL OF THE TIME. MANY DAYS JUST WANTED TO TAKE SOMEONES FACE RIGHT OFF.
I LOST MY JOB WHILE I WAS ON TX...I WAS TOO SICK TO GO TO WORK.
WENT ON DISABILITY. I HAD NO CHOICE.
I ALWAYS FELT AND STILL DO AT TIMES. THAT I WAS BEING PUNISHED.
I CRIED EVERY WEEK....AND EVERY WEEK I WANTED TO GIVE UP.
I HAD HAD IT!!!!!!!!!
BUT EVERY WEEK CAME..AS SICK AS I WAS..MY DAUGHTER GAVE ME MY SHOTS.
I FELT LIKE A LEPOR ALOT, ALSO...MANY MANY TIMES...I FELT AS THOUGH THE PLACE WHERE I WORKED LET ME GO CAUSE I THOUGHT, THEY THOUGHT, MAYBE I WAS A LEPOR!!!!!!
U R NOT ALONE THERE.....BY A LONG SHOT.
KEEP TALKING TO US...GET ON ANTI-D..IT WILL ALLOW U TO SEE OVER THE DARKNESS....PLEASE....DO NOT ALLOW YOURSELF TO BE DRIVEN UNDER BY THIS TX.
COME ON....FIGHT DAMMIT!!!!!!!!!!!!!!!
LIZE :O)
I can totally relate to the despair you are feeling, as can many, many others....you're not alone in this....if there is anything I can do to help or if you just need a shoulder to lean on, email me on ***@****
Hang in there my friend....things are gonna get better....you'll see.
Chin up.....WE ARE GONNA BEAT THIS!
Sending lots of love & hugs your way.
Louise
Bystander, your mean comments hurt me, I am sure that is what you intended. You are not alone, the world is full of mean people like you. When you need a kind word, I hope that no one is as mean to you as you have been to me. I hope no one kicks you to the curb as you have done to me. Next time you see a homeless person, please remember to tell them to "get a job you piece of ****".
Everyone else, thank you so much for your compassion. I know I should not feel sorry for myself like I am. But sometimes I just can't seem to see the light throught the darkness.
All I wanted was to try this treatment without the stress of work. I am sure my Dr. has some kind of quota that he has to contend with about how many people they let go off of work. The almighty buck again. Now, if I continue, I will be terrified to tell him anything but "doing great doc!" and drag myself to what is left of my career. I mean, what the hell is the disability insurance for anyway? Deathbed only? I thought the idea was to pull out all the stops and get better.
I will go to the shrink, let him/her experiment with whatever drug is in favor, and no matter what, my story is "I feel fine, Doc" no matter what to stay on tx if it is working.
Remember Eddie Haskel from Leave it to Beaver? That's my new way to get through this.
"My goodness Dr., your coat of white is quite luminous today, wherever did you get such an intelligent and compassionate staff?" "I must be dreaming, you are the best Dr. anyone could ever hope for!"
"No, I feel great, please send me to work so I can afford to pump thousands of dollars into your money making machine that masquerades as a compassionate organization where everyone is free to enjoy quality healthcare"
Thanks guys, I hope I can be there for you in your times of need too.
xoxoxo
The sarcasm stops before the last line.
Thank you from the bottom of my heart. No one knows what this is like unless they are going through it.
I wish I could give everyone a big hug.
Thank you for helping me out of my dark hole and back into the light.
xxoxoooxo
God Bless †
My wife is a career of hepatitis C.What can i do now?
Susan40
I'm glad there are those here that try...as I try to do most of the time. Today, I'm cranky and pissy and down...I've been there and done that... I've felt the same way about myself and doctors and medicine and money...
This person has had these issues before treatment began...I can tell...I know the feelings. Treatment should never have been started without already being seen by a Psych doc and on psych medicine.
The doc needs to pull the treatment...and he needs to get some psych help asap.
HCV isn't necessarily a death sentence...can be far from it for many...I've had it 20 years...
Suicide is PERMANENT. Stop the treatment, get some help. I had to do both. Where does one draw the line?????
To everyone that has been so supportive and kind to me during this nightmare,
After my 12 week pcr coming back down from 6,900,000 to 30,000, I find myself unable to continue taking these meds. I am not sharing with the Dr. but I have been having suicidal ideation and feel like I am losing my mind, completely unable to function.
A complete emotional wreck. I have been through the wringer trying to find an antidepressant and something to relieve the riba hell I am in.
I didn't want to tell the doc cause I know I would be yanked off treatment immediately.
I'm just going to take care of myself, not drink, and rebuild my life, and be thankful for each new day.
Best of luck to you guys, I don't know how anyone can tolerate feeling the way this stuff makes you feel for 48 weeks. And to those who have, my hat is off to you.
This may or may not comfort you, but we definitely do not (as a rule) get what we deserve. Whatever mistakes you may have made, they certainly do not justify this disease. It is not your fault any more than it is your fault that cancer exists.
I don't know what to tell you, but hang tough, be honest with yourself, and do not give in to despair. Even the worst situations can work out, many times in ways we do not underatand at the time. A lot of people here have plenty of reason to complain and be angry. Sometimes comments are emotional. Anyway, my heart goes out to you and others and I pray for the best knowing there are no guarantees.
Call the BE IN CHARGE program they can try to help.
Im on my 6th shot and I notice my temper getting bad and Im on an AD
BUT
I AM NOT giving up on my life.Do you not think your wife wants to grow old with you too?
When I first was diagnosed I was thinking "Is God punishing me? But then He showed me... It IS NOT a punishment! Its happened to me to be shown what I have in life is worth living for, worth fighting for and Im not giving up no matter how much depression or anxiety I feel.
FIND another doctor! Yes they are all there for the money and mine has shown me that this week too. BUT do you think Im going to lay down and give up what life I have left because he dont care/dont know what he is doing? HELL NO!
Im going to learn as much as I can and Im going to find the help I need and Im going to slay this dragon with all I am worth!
I bet your worth a lot to that little grand daughter of yours too! Not to mention her parents and your wife.
DONT LET IT WIN!!!!
IT IS NOT A NEW ONE! I DO NOT THINK HE NEEDS OUR ADVICE ANYMORE
HOPEFULLY IT ALL WORKED OUT FOR THE POOR GUY.
You know how those 12-step program slogans make you want to puke sometimes? Well, maybe not.
Make a gratitude list...pray...don't take a drink, drug or do anything else stupid even if your ars falls off, my worst day sober is better than my best day stoned, etc.
Ride it like it is until it's better. It's the natural process of dealing with it. Just don't give yourself permission to ride it until you get too sick to recover.
Joey
Do they just read the first post and ignore everything after that?
Too funny!
Lets see if it runs for much longer...PXX
I do have one queston for the person that brought back this old post :
-- Sumon25 -- what does this mean:
"Sir,
My wife is a career of hepatitis C.What can i do now?
Anyway, it's only five years old. I've seen much older ones here and it didn't stop anyone from talking to ghosts of Christmas past.
As usual, Bill's on the ball, realizing 'career' was a typo for 'carrier'. I missed that and I'm good at that stuff.
Hi Bill, hope all is well. Always a pleasure to hear from you, even on an old post.