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Avatar universal

On OFF LABEL Sovaldi and Olysio!

In my 3rd week now and feeling really strong.  Without the nasty Interferon and Ribavarin this time - I have had minimal side effects and I am so very grateful!  My 2 week labs came in today and ALL of them are in normal range... including AST and ALT.  Second month of the meds have been ordered and are now on their way so stay tuned for more updates as we knock out these 12 weeks of treatment.  I truly believe this 3rd attempt to SVR will be the final one as it will be the cure I have needed using these 2 drugs!
I will keep you all posted.
Hugs and God Bless!
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6708370 tn?1471490210
I'm hoping that you will be undetected as well. Even though the brass ring is SVR, for those who have lived for decades with the virus, undetected is a wonderful thing to hear
Best to You
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Avatar universal
Do you live in tx,I have same ins,but live in al.,trying to find doc that can prescribe these two drugs,nurse said these r unavailable to them.im in beam,al
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Avatar universal
Dear Grammy,
Thank you for sharing all of it! You don't even know how much it means and
how happy I am for everybody who is getting better and hopeful for everyone who is trying....
Started Olysio/Sovaldi  last week and had a strange reaction - vomited the first pill in 3 hours and could not stop vomiting for a day had to to go to ER to get hydrated....and I am  just hoping that it was just a fluke ..... now taking a break...for a week to make sure it was not a stomach virus at the same time....
Have a history of many years(blood transfusion after child birth) living with HEPC, was only diagnosed in 1997, was on interferron(the old treatment of 3 injections a week) for 6 months and was taken off of it due to severe side effects ...you all know what I am talking about ...
Over the years ....had ercp of the bilary duct ,lost gall bladder, was anemic, had hysterectomy ....now compensated cirrhosis platelets at 60, enzymes over 450, but I am still very hopeful that I will succeed ...my AFP is over 200; MRI shows no signs of cancer yet but....
I was just wondering how  many of you have lost their gallbladders and if any one was vomiting profusely at any point and how they dealt with it being on sovaldi/olysio...Good luck to all of you. Optimist3
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Avatar universal
thanks so much for being here, all of you. I think I can write some lame posts once in awhile ;-) I'm on a lot of drugs at the moment, prednisone, cyclosporin and this Sovaldi Olysio combo. So far it's just got me very fatigued and my platelets went down a little from normal, the pharmacist told me that that can happen with some people, that this will make one's counts go down a bit, but not too much, like the other treatments, let's hope!
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475555 tn?1469304339
Either way I'm sure you will clear the virus. w/o RBV is easier on the body.
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Avatar universal
Thanks for the info.  The first month's supply of pills are being delivered today!  I can't take them until after the teaching visit next week.  I am waiting for a call from my doctor - he may decide that I don't need to take the Ribavirin.  
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