Aa
One week into chemo
First off thanks for all the well wishes Ive received in the last few weeks.You all are amazing!!!The sides of chemo are not pleasant by far.My energy is zapped and I just cant get motivated for nothing!!!Received a letter from my hepatologist the other day wanting me to come to see him seems there is a medicine that he wants me to take to keep my liver "cooled" while im on the chemo..Its called Urisdol.Even though Im stage 0 with the liver'
I feel very strange and even dont feel like myself at all.Really hard to explain but knows that I have to do this no matter how hard it is. cindy
I feel very strange and even dont feel like myself at all.Really hard to explain but knows that I have to do this no matter how hard it is. cindy
You are in my thought's. Hope you have your lap top with you because you forgot to hang the phone up again ;-0)
cindy, you're one strong and amazing woman. i'm sending you hugs and prayers. i've been thinking about you and am shocked you're up to being on the computer. take care of yourself. belle
Hi EyesofBlue55, I'm so sorry you are having to go thru all that~ If you are talking about Ursodiol, I remember taking it, when I had elevated Bilirubin, during my pregancy, because I had this intense itching under the skin, in my upper arms.
I didn't have any ill side-affects from it, and it did lower my Bilirubin~ sending you healing thoughts and prayers <3
I didn't have any ill side-affects from it, and it did lower my Bilirubin~ sending you healing thoughts and prayers <3
Cindy,
How remarkable that you have the strength to get on the computer and type. You are an inspiration. As Hector says, your number one job is taking care of yourself right now so I hope you will do that. As you said, you know you hve no choice so you will push through.
My very best thoughts to you
frijole
How remarkable that you have the strength to get on the computer and type. You are an inspiration. As Hector says, your number one job is taking care of yourself right now so I hope you will do that. As you said, you know you hve no choice so you will push through.
My very best thoughts to you
frijole
Cindy, I can only imagine how difficult this tx is and how it completely zaps your energy. Hope you have some time to recoup between treatments. Also hope you'll see some positive results soon. Hang in there and thanks for your updates when you're feeling enough energy. Thoughts and prayers to you.
Hi! It is good that you have enough energy to be able to post again.
Do you mean Ursodiol (er' soe dye ol)???
Ursodiol (Actigall, Urso, Urso 250 or Urso Forte) is a bile acid, a substance naturally produced by the body that is stored in the gallbladder. It works by decreasing the production of cholesterol and by dissolving the cholesterol in bile so that it cannot form stones. It is basically a bile thinner. Also it is used “off label” its main potential seems to be a chemopreventative in those at high risk for colon or liver cancers to reduce the risk. Maybe this is the reason your hepatologist is thinking of treating you with Ursodiol? Note: The drug must be taken for months to have an effect.
As you say, now one chooses chemo for fun. It is a very difficult treatment as anyone who has undergone chemo can attest to but IT DOES KILL CANCER TUMORS and still it is the best treatment we have currently. I am glad you have started treatment to fight your cancer. You have a good attitude dealing with the chemo and side effects. I wish you all the best during your next round and hope you get a early and clear response to treatment.
It sounds like you are feeling the affects of "chemo brain". This is normal though disorienting to say the least. Sound familiar?
* Forgetting things that they usually have no trouble recalling (memory lapses)
* Trouble concentrating (they can’t focus on what they’re doing, have a short attention span, may “space out”)
* Trouble remembering details like names, dates, and sometimes larger events
* Trouble multi-tasking, like answering the phone while cooking, without losing track of one task (they are less able to do more than one thing at a time)
* Taking longer to finish things (disorganized, slower thinking and processing)
* Trouble remembering common words (unable to find the right words to finish a sentence)
Remember it is all temporary and it does go away post treatment.
Here are some tips that helped me get through the fatigue of post chemo side effects.
Being “busy” vs. allowing yourself to rest
Society has many rules about resting…and that we should always be ‘doing’ something. Cancer recovery can be a demanding job and being on the couch can be perfect in this situation. There is also a time post-treatment where you may still feel fatigue but aren’t ill anymore. Resting and convalescence is really important then too.
The keys for self-care when dealing with fatigue are:
Learning to listen to your body. Each day, really listen to how you are feeling, what you are able to do and what you want to do. It is turning off the external world in a sense, and going to your internal world.
Acting on it. If you are exhausted, you need to clear your schedule and rest. You may be used to putting the family, partner or job first. But now, it’s the other way around. You are number one and have to put yourself first.
Cheers!
Hector
Do you mean Ursodiol (er' soe dye ol)???
Ursodiol (Actigall, Urso, Urso 250 or Urso Forte) is a bile acid, a substance naturally produced by the body that is stored in the gallbladder. It works by decreasing the production of cholesterol and by dissolving the cholesterol in bile so that it cannot form stones. It is basically a bile thinner. Also it is used “off label” its main potential seems to be a chemopreventative in those at high risk for colon or liver cancers to reduce the risk. Maybe this is the reason your hepatologist is thinking of treating you with Ursodiol? Note: The drug must be taken for months to have an effect.
As you say, now one chooses chemo for fun. It is a very difficult treatment as anyone who has undergone chemo can attest to but IT DOES KILL CANCER TUMORS and still it is the best treatment we have currently. I am glad you have started treatment to fight your cancer. You have a good attitude dealing with the chemo and side effects. I wish you all the best during your next round and hope you get a early and clear response to treatment.
It sounds like you are feeling the affects of "chemo brain". This is normal though disorienting to say the least. Sound familiar?
* Forgetting things that they usually have no trouble recalling (memory lapses)
* Trouble concentrating (they can’t focus on what they’re doing, have a short attention span, may “space out”)
* Trouble remembering details like names, dates, and sometimes larger events
* Trouble multi-tasking, like answering the phone while cooking, without losing track of one task (they are less able to do more than one thing at a time)
* Taking longer to finish things (disorganized, slower thinking and processing)
* Trouble remembering common words (unable to find the right words to finish a sentence)
Remember it is all temporary and it does go away post treatment.
Here are some tips that helped me get through the fatigue of post chemo side effects.
Being “busy” vs. allowing yourself to rest
Society has many rules about resting…and that we should always be ‘doing’ something. Cancer recovery can be a demanding job and being on the couch can be perfect in this situation. There is also a time post-treatment where you may still feel fatigue but aren’t ill anymore. Resting and convalescence is really important then too.
The keys for self-care when dealing with fatigue are:
Learning to listen to your body. Each day, really listen to how you are feeling, what you are able to do and what you want to do. It is turning off the external world in a sense, and going to your internal world.
Acting on it. If you are exhausted, you need to clear your schedule and rest. You may be used to putting the family, partner or job first. But now, it’s the other way around. You are number one and have to put yourself first.
Cheers!
Hector
We're absolutely holding your hand every step of the way through this. Please keep posting, we're all thinking of you!
Thank you for checking in. So sorry the treatment is so rough. It is awful not to feel like yourself. It's going to be OK. You are going to make it. You may not feel it but your light is radiant.
Keep your inner peace, however you can, pray, meditate, focus on the beauty and love in the world :)
how often and how long do you have to do treatment? I hope it's not for too long, or you at least get time to recoup inbetween treatments.
Youve been in all our thoughts and prayers and will remain to be!
Wishing you the VERY BEST CINDY
Gene
Wishing you the VERY BEST CINDY
Gene
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