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I'm sure I have left out some sx. but these were the worst. The AD's helped some, I also took klonapine for my nerves, something to help me sleep(me @ sleep aids don't get along). I would stay up many, many nites all nite long and read on this forum and read the archives. I hated loud noise and bright lights! And I was so tired of wearing pads because of the cough, I was a pee-pee pants.
The thought of suicide crossed my mind many times, but being a Christian, I knew better than to act on feelings. I can't even start to remember all the meds we tried and all the ones that didn't work! You'll find ppl can be so wonderful, but then some who are supposed to help...like some of the witch nurses could be so mean. I had trouble like many others...platelets dropped to 9 at one time and stayed there for about 3 months.
And then there were the outside...family problems...my daughter was driving me crazy. I found out during tx my daughter and g.daughter were living in a house where drugs were being sold. I have my 10 yr old g.daughter w/ me now. My daughter seems to be doing better. She has move out of the drug house and looked quite "clean" yesterday when I took her daughter to see her. We also had to take in my husband's 16yr old step son. But he messed up here with bringing pot into the house so he is gone now. My dad is bi-polar and that was hard during tx. He also had 3 mini strokes. To say the least it is as hard on my Mother as it is on my Dad.
Well I hope this has helped for the ones who asked me to do this. I hope everyone else will give their in-put and maybe add some things I forgot.
I am 4 months post tx today and waiting on my first blood test results, done on Thurs. since I have finished tx. I was first diagnoised with fibromalgia (after finishing tx.) but since have been told my problems are tissue related. I will find out more about this on the 16th of this month and I will let ya'll know.
I want to thank EVERYBODY here for being so kind and listening to me whine sometimes!!! lol Newbies, IT IS ALLOWED< whinning that is. I love each and everyone of you and I pray nite and day for us all. Please remember don't let the little things take up space in your mind!!! Be kind to one another and never hurt anyone's feelings, enough to make them leave this forum. I STILL MISS RINGADING!!!!! She made me laugh and that's the best medicine!!! So gang hang in there and remember...NEVER QUIT !!!
I almost did many times! I love you all, Sincerely, Cindee
Hope everyone else is doing well and having very mild sx.
Everything you've listed as far as symptoms I've experienced too.
I haven't been able to work for the past 2-1/2 years. I've had to deal with spiritual problems as a result of treatment, too. It's very disconcerting when as a Christian, you've can't feel God's presence, this has happened to me every time I've treated. I've had a lot of lung problems, weight loss, mood swings, hair loss+it grows back in sticking straight up! Personally speaking, my husband does not live with me and my son is seriously mentally ill so he lives in the state hospital. So, basically, I'm alone quite a bit of the time. So what I'm saying is that I know how hard it is, keep on having faith in Jesus and he'll carry you through the rough parts.
Susan400
I am 40/48 (this coming Tuesday). I really missed you guys on the HMB..but have had NO energy to get on line since around 30/48. It looks like I missed alot, and I see many new people.
One day, I just passed out in public, and went downhill quickly.
NOTE to all on allergy meds: I started taking allergy meds in September for my throat, rash, etc. Well, it did sort of help, but unbeknown to me, I had an inner ear infection, upper resp. infection that could not drain as the allergy pills stopped the natural draining process...so my infection had a "home". I started "growing" an infection that just pocketed for months. Meanwhile it was like I was "unplugged" from any energy source at all. I was sick and tired of being sick and tired. Well, my body gave out....Anyway, I have been on two rounds of antibiotics, and I can finally "do" life again. So, if you are on allergy pills, make sure you are not doing a "double whammy" on your system... I no longer do allergy pills, so I live with the other sx......
The good news is my hubby has done EVERYTHING for me. (I might get spoiled).....I have a shot countdown on my refrigerator and it is exciting to actually "look forward" to shot night, as I take my pen and mark off another "stab" at the dragon.
Cindee, I have NO energy, cannot breath after short duration (numbers not low enough for procrit, etc) Riba Rash, burning throat, anemia, having the blues, although my riba rage has settled a bit, dry skin, cotton balls in eyes, and stabbing eye pain, (sometimes) I have a very tired body, but my mind is spinning like a top....more brain fog since about 35/48. Constant ache in left ear, some ear ringing, dizzyness, and sometimes just "falling", running into walls (last night I got up to visit the bathroom, and instead of walking into the hall entrance (I could not figure out why I could not find the door) I was trying to "walk" through my bedroom window...DUH!!!!!(Glad my husband did not see that.....I was throwing the curtains around) My "woman" cycle is crazy, I have four bald spots on the back of my head...still get the "flu" ****, and I cough all the time. I take meds to sleep (weird dreams) I can hardly wait until I do not feel like this (will it ever be?)
My husband's "assignment" is to come up to me through out the day and hug me and say "I love you". He is so cute, he sometimes just does it while I am raging and we laugh. Back aches....I could go on and on but I won't.
I REALLY THOUGHT THAT I WOULD FEEL BETTER AS TIME WENT BY, AND, IN FACT, THE OPPOSITE IS TRUE FOR ME....(everyone is different, though) I do not want to bring anyone down or scare anyone, but the sx are so varied and change every day...mine are worse now...(but only 9 more shots!!!!!!! hip hip hooray)
I started reading the posts a couple of days ago, and when I saw Cindee's sx request I thought it was a good time for me to say "hello" again. Though I really only posted a few times before when I was active here.......I do not know if you guys remember me....BUT HELLO OUT THERE, MY FRIENDS...I AM GLAD TO BE BACK. I hope you forgive my rambling......
Peace
my original Dr. and she said get there as soon as possible. (120)miles. My Dad came and got me and I was hospitalized for 5 days.The only thing Dr. Anne did was take me off 225mg. of effexor and put me on 10mg. of Lexapro and gave me a shot of B-12. She kept me on my riba and lowered my dose of xanax. Within 48 hr. my mind was back(mostly)and my appetite started coming back. Still not great, but I at east eat 1 good meal and have a carnation instant breakfast every morning. I just did shot 15/24 last night and am staying w/ my Dad. My platelettes, which were dangerously low are back up and I no longer have to do weekly blood-work, just monthly, and I haven't missed a shot.I still feel tired and lethargic most of the time, but about 1 day a week I get a burst of energy and feel great all day. I'm itchy, but nothing like it was w/ jaundice and a couple hives now and then, but very little hair loss and 10 lb.s weight loss. I knew thered be rough times, especially being alone, but I wasn't prepared for how bad it got. So my advice is if you have to be alone most of the time, have a support group that you don't hide things from cuz you don't want to worry them. My best to all, Love, Joni
Sorry to ramble. As to my sx, I can only try to remember. Flu ,chills, bad cough, blurred vision, hearing plugs up so I can't always understand voices at times, hair getting very thin (shaved it bald the other day),almost total exhaustion to the point of barely being able to get out of bed for as much as a week at a time,mouth sores and constant itching, bone and joint pain, dizzyness, but haven't passed out yet Happyhepper! I've had my riba reduced 20% due to blood problems. Very rough this week. But I do have to say the Lord has never given me more than I could take as last week was excellent and I felt really good (Thanks).God Bless you all and thanks for your help.
Luke
But if my liver had not been as bad as it is, if I had years, I still would have treated because I take personally these millions of little basta*** in my body whose sole purpose is to kill me. I'm a survivor, through alot I'd never discuss on this board, I'm not about to let anything destroy me as long as I have God on my side and his strenght to pull me through. If I die from this disease, it'll be because it was my time, not because I didn't fight w/ all I had. Love , Joni
Good luck, this site is a fantasic place to receive knowledge.
Peace
In other words I am living my life. Somewhat limited, not a happy camper too often, but I am still living my life. I cope by telling myself, "just for today you can do this Audrey. Just give it one more day, one more shot, one more dose of riba. You can get through a day, right?"
I learned this way of thinking in AA and NA and it serves millions of us well. Maybe I cannot take 48 weeks of this. Maybe I can't take 12 weeks of this. BUT, I CAN take another day. And that is all I have to deal with. I swear to all of you, that if I let myself think any other way I could NOT DO IT!
I am clean and sober for 18 years and I have done that also one day at a time.
So, by all means, you can STOP tx.
But can you first just get through one more day?
#1 Hep C pisses me off!!!!!!!
#2 PPL who run others off the forum pisses me off. We're here to help each other. I stay outta those "silly" fights. LIke the old saying goes....>>>>>Oppinions are like "butt holes"...we all have one!<<<<<<<<<
Best of luck to you on starting your tx. I'm so glad we didn't scare you away. One day soon I'll print a copy of "Don't Quit". I have posted it 2x already...it carried me thru tx and I think all the newbies need to hear it! Much love and many prayers to all, Cindee
Remember, better moments will come. We are here for you.
With that in mind and for the newbies still lurking and deciding. My experience after 36 shots:
First 4 weeks I remember no major sx, I felt good. A little chills and achy. I did notice shortness of breath increasing as weeks went by. Tightness in the chest and later pain behind the left breast, forgetfulness, high BP. Those sx subsided on Procrit (it was the mentioning of the chest pain that prompted them, my count was not as low as some here), I see many suffering these sx and it seems a shame that the doctors are going by numbers and not the actual symptoms experienced. I had many of the other sx mentioned, but they have become somewhat stable and manageable. I am still working, having sex, trying to exercise(slacking off) and hoping for a hcv free life without permanent sx from the tx. I did not pass out, :-).
So, it seems most of us had common sx, some more severe than others, some people get them sooner than others, some never, The variables are the only predictable thing.
Those of you scared after reading all the sx (as i once was), you can't tell what YOU will feel until you try. You might be lucky enough to have manageable sx and continue life as usual.
Gl all
A million thank you's
Scott
Food for thought