Aa
Question peg with SLE
Today my first shot peg(3xtx Vic)
I am afraid , did not tell hep md possible autoimmune besides hypothyroid , cause wanted tx
But no afraid possible problem
ANA is negative
Blood test was positive for drug induced lupus
Have rauynauds fingers
Dry eye positive test
Malar rash but only when stress triggered flares
RH factor 18 but could b hep c related
Can interfereon make this worse?
I am afraid , did not tell hep md possible autoimmune besides hypothyroid , cause wanted tx
But no afraid possible problem
ANA is negative
Blood test was positive for drug induced lupus
Have rauynauds fingers
Dry eye positive test
Malar rash but only when stress triggered flares
RH factor 18 but could b hep c related
Can interfereon make this worse?
Yes, this is important.
Please let us know how it turns out.
Wishing you the best.
OH
Please let us know how it turns out.
Wishing you the best.
OH
Please do! I have been on wait for treatment while the thyroid and pancreatic issues were being ironed out. It is very important you keep ALL your doctors in the loop on who is treating what issue with what medication.
In definite agreement with everyone here!
In definite agreement with everyone here!
Thank you everyone I got half way there chickened out, going to call hep md to talk on phone about concerns
Very good advice thank you all!
Xoxoxoxoxo C
Very good advice thank you all!
Xoxoxoxoxo C
With my autoimmune stuff (T1 diabetes, a skin and esophagus disorder) I was terrified of using interferon. I would not have started using it without fully discussing these things with my doctor.
You should definitely discuss *everything* with your doctor before starting.
You should definitely discuss *everything* with your doctor before starting.
Interferon can definitely cause SLE to become worse. That doesn't necessarily mean that with the help for your hep doc and rheumy that you can't be treated succesfully. However, taking a chance that your lupus could flare and cause lupus nephritis or something like that is just foolish. Like the others have said, tell your doctor.
In my opinion, hold off on taking the Pegasys injection until you talk with your Hep C treating MD. Waiting to take the injection for a day or two or even more won't matter in the long run. Of course, also hold off on taking any of the oral meds (Ribavirin and Incivek) until you talk with your Hep C treating MD. If I were you, I would call your Hep doc. today and discuss this.
You already have some problems as indicated by your post. If you already have drug induced lupus, you definitely do not want to start Hep C treatment until talking with your MD and disclosing all of your previous diagnoses and test results. If you are being treated for the lupus or the diseases you mention, or even if you are not, both of your doctors should be communicating with each other. Your Hep C MD needs to be aware of the implications of treating you if you have some autoimmune problems already but first he needs to know you have them.
I was just reading yesterday that, while interferon is sometimes used to treat some autoimmune diseases such as multiple sclerosis, treatment with interferon can cause drug induced lupus and some other autoimmune disorders.
I started researching this because I have developed a stubborn rash and a biopsy of one of the red raised areas showed possible connective tissue disease. So my derm. doc ordered an ANA, and yesterday, while having my CBC drawn, the lab tech told me the derm. doc has added an ENA. This got me wondering (and worried) what they are finding in the lab tests so I went on line to do some research. Anyway, I found a couple of publications about drug induced (interferon induced) autoimmune disorders.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2991778/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2743115/
I think the first link is the better link.
My point is, interferon seems to cause autoimmune disorders or at least syndromes in some people being treated with interferon. If you already have indications of an autoimmune disorder, this may potentially worsen those conditions. You really must tell your treating Hep C MD because it may alter his/her treatment plan.
And, again, I would not take any of the Hep C meds until I talked with the treating MD. Hopefully you will call him/her today.
You already have some problems as indicated by your post. If you already have drug induced lupus, you definitely do not want to start Hep C treatment until talking with your MD and disclosing all of your previous diagnoses and test results. If you are being treated for the lupus or the diseases you mention, or even if you are not, both of your doctors should be communicating with each other. Your Hep C MD needs to be aware of the implications of treating you if you have some autoimmune problems already but first he needs to know you have them.
I was just reading yesterday that, while interferon is sometimes used to treat some autoimmune diseases such as multiple sclerosis, treatment with interferon can cause drug induced lupus and some other autoimmune disorders.
I started researching this because I have developed a stubborn rash and a biopsy of one of the red raised areas showed possible connective tissue disease. So my derm. doc ordered an ANA, and yesterday, while having my CBC drawn, the lab tech told me the derm. doc has added an ENA. This got me wondering (and worried) what they are finding in the lab tests so I went on line to do some research. Anyway, I found a couple of publications about drug induced (interferon induced) autoimmune disorders.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2991778/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2743115/
I think the first link is the better link.
My point is, interferon seems to cause autoimmune disorders or at least syndromes in some people being treated with interferon. If you already have indications of an autoimmune disorder, this may potentially worsen those conditions. You really must tell your treating Hep C MD because it may alter his/her treatment plan.
And, again, I would not take any of the Hep C meds until I talked with the treating MD. Hopefully you will call him/her today.
Agree please tell your doctor right away. I had no obvious signs of autoimmune anything but by the end of treatment was loaded up with them. I'd imagine someone that starts out with things would have an extremely difficult problem.......it will have to be closely monitored by an appropriate specialist at least.
Candy, you need to tell your Dr everything! He's trying to help you and if he doesn't have all the facts, you may not reach SVR. I currently have other issues going on and my Dr said "you cannot treat now because we have to take care of A, B, and C first. If we did tx now you would FAIL and may become resistent"!
Even though I wasn't happy about it I have to trust him and take his advice. He's the expert here not me. Yes I was ready to treat but evidently my body isn't.
If you want your best chance of SVR you need to tell him what is going on.
Have a great day!
Jules
Even though I wasn't happy about it I have to trust him and take his advice. He's the expert here not me. Yes I was ready to treat but evidently my body isn't.
If you want your best chance of SVR you need to tell him what is going on.
Have a great day!
Jules
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